suit and tie

We did not commemorate Roxy’s death at the time with a ceremony. We did not have a funeral. We did not have a memorial. The theory at the time was that there was nothing for anyone to remember. Roxy had died before she made memories for anyone we might have invited. Most of the folks wouldn’t have even seen her. We surmised the ceremony would have been to support us, and we felt nothing like planning anything. We felt like lying on our backs. We felt like lying down until we didn’t exist. Until nothing at all existed. In short, at the time, it was easier not to.

I continue to address the devastating mental and emotional fallout from losing Roxy, and will until I die I’m sure. During a recent session addressing my ongoing severe anxiety issues, my psychiatrist said “it’s interesting that you felt such a deep connection to Roxy, considering you never got to really know her.” My blood quickened and heated at this. My eyes narrowed. I informed him that love had poured into and out of me the moment my first child, Mason, was born, right at his first cry. It was like a river, and that river didn't wait until we "got to know each other." That same river washed all over me when Roxy didn’t cry, I told him. I do know her. I know her terribly, terribly well.

As the calendars have changed numbers but continued to provide little actual space between our now and our then, the fact that we didn’t have some sort of real ceremony for Roxy bothers me. It is a regret. This song is about her death, and about our ascent to the maternity ward where Terra would deliver her. It is also about this regret that we never acknowledged to the world in a ceremonial way that we lost a daughter. We lost someone we knew and know deep in our marrow. My blood knows her. My skin. I was wearing a tshirt when I met her. I should have worn a suit and tie.

To the second floor we climb
Down a fluorescent hallway we glide
And I should have worn a suit and tie
Yeah I should have worn a suit and tie
Jenny said she’d walk us down
She fumbled with her silver bracelet
And I could not quite hear the sound
And I could not quite picture us making it
And there’s only so much time
Yeah there’s only so much left
Sometimes love is all you get
I asked a doctor where to stand
What should I do with my hands?
Well my baby never cries
And I should have worn a suit and tie
And there’s only so much time
Yeah there’s only so much left
Sometimes love is all you get
Sometimes love is all you get

Did you have a memorial service or some sort of ceremony for your child? If not, is that something you regret?

the scbu legacy

There is a boy on my lap, ten months old, and he's been gasping for breath all evening and the antibiotics that should be helping are making a red rash creep up his cheeks. It's getting harder to breathe now and I'm looking at him and I know what the doctor - kind, understanding - is going to say next.

"I think we need to admit him."

I'm all on my own with a million screaming voices in my head and I don't know how to help him - or me - and a tear splashes down on his face.

I'm always raining tears on my boys.

And then she says:

"He will be okay."

Beat. Follows Beat. Follows Beat.

I look up and I can feel the look that I give her.

"I've been told that before."

Flatly.

Don't tell me this will be okay. You know nothing. You people can't save my boys. I don't believe you.

***

There is a boy on his lap, ten days old, and he's arching and gasping and the room has stilled to a horror struck silence. He's been stable - doing better -  but suddenly the world has dissolved and a hiccuping gulp for air has become a desperate grapple for life and he's suddenly all ours, our responsibility and I can see that he's dying and it's going to be unbearable, painful, the cruelest and worst possible ending.

The antibiotics that should be saving him are doing nothing and no one knows why.

I know what she's going to say next. Kind, understanding.

"I think it's time to make a decision. If you wait, there won't be a decision to make."

Beep. Follows Beep. Follows Beep.

Damn monitors. Damn wires. Damn tubes that came between us and didn't save him. I don't know what to do to help him. Or me.

And then I do.

I look up and I can feel the look that I give her.

"Do it. One last chance. Only one. Give him till tomorrow to try to live."

Don't tell me this will be okay. I've been telling you for ten days that this won't be okay. And you can't save him. You don't know why, but you can't save him.

And I'm all alone, all night, with a boy who said no to his one last chance and who chose to give up on breathing and chose to reject the help that all the medics who wanted to save him offered and who left me, with a million voices screaming in my head, with the knowledge that I let him go because that was all the mothering I could give him. That was all the kindness I could offer. That was for the best, for him, for all of us.

***

We don't talk about the SCBU days. We don't talk about how the rhythmic beep of a monitor still sends us into silent meltdown. We don't talk about how each illness, erroneous blood test, each new health problem for our girls and rainbow boy forces us to silently confront the reality that our child died and when we needed them, the doctors couldn't save him. Didn't know. Can do so many brilliant things but couldn't save a little boy who lacked the fight to live. We don't talk about how one doctor said he would do well, that 24 hours later we crashed as another spelt out what 'do well' might mean for a boy who didn't want to suck. We don't talk about the peak as he opened his eyes and began to respond or the pit of despair that hauled us down as something inexplicable tore him away from us again. When our subsequent child is - repeatedly - admitted to hospital with breathing problems (and lives, I grant you) I go alone to care for him. Alone beats the companionship in terror of the SCBU parent bedside journey.

Just waiting for the balloon to go up. Just waiting for the hammer to fall.

Three years on, we do not let ourselves look at Freddie's 11 days and acknowledge how easily it could all happen again. And that means we do not look at his life at all.

***

They couldn't save him. They didn't know. And so how can we ever believe  in "it will be okay" ever again?

How has the loss of your child changed your feelings to illness since? How has it altered your parenting to subsequent or other children? Are you stronger or weaker in crisis since? Do you see death lurking around every corner or do you thumb your nose at it? And if you experienced a SCBU (NICU) journey, what is it's legacy in your life since?

at the kitchen table: connecting through loss

1. We know that sometimes families talk less and less about pregnancy or infant loss as time goes on. What, if any, other losses in your family were revealed to you after your loss? What was it like to hear about those losses?

2. Did anyone who had already experienced babyloss reach out to you in the months after your loss? What was it like to connect with others who had already been through babyloss?

3. If any of those babylost parents were from a different generation, what did you find was different about your experience from theirs?

4. Did you attend a local area support group after your loss? What was helpful--or not--about your support group?

5. What role has the internet played in connecting you to other babylost parents? How has that been different from connections you may have made in person?

6. Many of us have found, as time goes on, that we are suddenly in the supporting role, as "experienced" babylost parents. How has reaching out to others with newer losses helped you in your grief journey?

7. How have you found yourself relating to other people's grief in general? What about people around you--friends, coworkers, neighbors--who have experienced the loss of other family members, not babies?

Read More

Community Voices: An Open Call for Submissions

This fall, Glow in the Woods will start a series called Community Voices where we publish readers’ voices. We are asking for short submissions of no more than 250 words. There are three topics for Community Voices that we will be publishing over the next six months. For each theme, we will feature several selected voices together in one or two longer posts. 

Please read the FAQ here.

felled

The most extraordinary life grows out of dead trees.

 

photo by reassaure

Ferns and orchids. Lichen and fungi the color of absurdist paintings. Small toads find refuge under the decay. The forest bed swallows death into a loamy mound of old and new growth. A birch bark lies just beyond. It tells the tale of circles, births and deaths, the years unfurl. I hold it up, that shell of stability, the center falls out like rich soil. I whisper my story to the bark scroll. These words, masquerading as scratches on its old skin, appear on its shell.

My daughter died. I wrote the story out long after it served any usefulness. I wrote about how the grief was gone. No one read about my not-grief anymore. It didn't hurt to have people turn away. I would have turned away in my early months, but I kept writing through it. I would let go of the grief, and then pick it up again. Because since she died, it has always been about her death. Maybe before her death, it was about her death.

There were others who came before me, who reached back. A simple gesture, but monumental, I see now. They revisited their grief while abiding mine. They kept silent and listened to my story and so I did the same, until reaching back no longer served any one. My hands are empty now as my story unfurls. There is new life here. And my story must become part of the fertilizer of others.

I wrote longer than I should have. The reaching was for me, pulling my unforgiveness along, leaving bits of it on the forest to become something beautiful. For when I listened to the other stories, I became more forgiving of my own story, of my own culpability. I didn't kill her, yet I have spent nearly five years forgiving myself for her death. Only you understand that.

Nothing. Nothing can ever make Lucia's death okay. And nothing, not one thing, can ever bring her back. A paradox that no longer confounds me.

Grief is as changeable as the forest. You never trek in the same woods twice. And grief is the same. You never write about the same grief twice. There is awe and emptiness and a void of her that is unique and different in every moment. Yet what I write sounds the same, over and over, because I began looking back at my grief, rather than writing of the present grief. The present grief became the fabric of the forest, the greens in everything. It is still there, the grief, that is. It is my mistake to say that it is gone. It is just different. It is a gratitude, and a comfortability in this life, despite her death. In the early years, the writing became a way to not feel grief. I could explicate a sentence, diagram it, break it down. The words meant nothing but grammatical math. I felt something, but did not, or rather, could not feel the true weight of her absence. I made it pretty, wrote moss around it, wove nature into the story, but make no mistake, it was still daughter-death. Ashes and dead babies. Sterile hospital rooms and calls to funeral homes. Sisters never played with. Babies never cooed after. Three broken people trying to remake a family. Over and over again.

But then it would catch up with me, and I would feel that grief with the weight of a redwood, leaning on my back. 

When a woman grieves alone in the forest, does she make a sound?

I made it a point to be heard when I was felled. I started forest fires, and shot off shitty emails and wrote angry blog posts indicted everyone for my solitary grief. I entangled the hearing with the reaching. My heart burst open, broken, bleeding, raw. And I keened. 

THIS TERRIBLE, HORRIBLE THING HAPPENED TO MY FAMILY!

I screamed it. I would not be silenced so others could feel better about dead babies and grieving women and communities of people who spring up in the dark corners of the internet grieving their children that never lived. I would not be shamed because I painted it, or felt sad about never knowing my daughter, or wore my heart on my sleeve, or for starting a literary arts journal around the art of grief. Maybe all that happened for way too long, but it happened just the way it needed to happen. 

Today, my grief is grown over. The Now of Angie exists, absent of raw grief and anger, simply because I wrote about it and cried in public and arted and complained and felt sorry for myself and felt gratitude and made people uncomfortable and only talked to grieving people for a while and lived moment to moment and created rituals around my grief and made thousands of mistakes. It happened because I grieved out loud, in front of God and everyone. When I fell in the forest, I made a sound. It was a terrible, beautiful, righteous sound only the bereaved understand.

I am walking away from the writing about Lucia's death, not because I couldn't keep writing or because I no longer grieve, but because my writing serves no one anymore. Least of all me. Felled by her death, the forest floor crept over me. Overtook me. And small writhing insects made a home in me, something flew away from the forest floor, others stayed. New life grew in me, out of her DNA which still lives in me.

She is dead. We are alive. This is the great noble truth of our family.

 

With immense gratitude, I share my last post with the Glow community. Thank you for abiding with me on this grief journey through the last almost five years, for loving me when I could not love myself, and for sharing your stories and babies with me. Through the next few months, I will be transitioning out of the role as editor as well. I am passing the reigns to Burning Eye. Her creative fire and inspiring words will carry this space for new parents walking this dark road, and as always, Merry will continue guiding the discussion boards with aplomb and compassion. Together, I know they will continue to stoke the fires of Glow in the Woods' warm welcoming circle of parents.

Tell me, then, about your grief. How have you been making noises about your grief? Are you feeling heard? Are any parts of your grief are grown over? And what still flourishes?