Hearing Voices

Last year I befriended a woman who moved to my city to give birth at Children's with the knowledge that her baby girl would need surgery. (To cut to the chase: Her daughter, though she came close to brink -- dangling her feet off the ledge even -- survived and is now a beautiful fat one year old.) I packed up some cookies and fresh fruit and went down to the hospital one spring day to see how the parents were doing. I had no intention of "helping" really, but simply listening, which I did.

There is, as many of you know, a certain language that comes with a stay in the NICU. It's full of medical jargon and loaded with fear. But for many, it's also dripping with sarcasm, and dotted with macabre humor: responses to doctors, observations on treatments, acknowledgment of fears. It's also a kind of humor that I could see someone with no reference point not understanding, being made uncomfortable by, or even being offended by. I of course smiled and giggled (while passing out kleenex and adding my own one liners when appropriate).

The respirator machine that shakes like a hotel bed hopped up on quarters. The doctors that are so young you watch that you don't slip and call them Doogie. The lines from doctors that they have no idea will stay in your consciousness for months or years to come: "The sickest baby in the hospital." "We're not out of the woods." How many times did you discuss your child with a man in a suit while you were topless and hooked up to your double-pump?

Here at home, we had our own humor after death, too. While trying to cease lactation, Bella asked, in full voice in front of a kitchen full of people, "Mommy why are wearing Salad on your boobs?" To my husband, through tears, telling him that the receptionist at my six-week post-partum visit asked if I brought the baby: "Why yes, here she is!" whipping a box out of my purse.

Riffing off the bad lines that people fed us; musing on the irony of a relative who gifted us with alleged daily prayers at the Vatican for our unbaptized daughter whom we pulled off life-support.

"I made the therapist cry today." High five.

One reason I love my husband as much as I do is his sense of humor, and the way we can banter back and forth. We deal through a lot of adversity through humor -- it's who we are. And a week after Maddy died I realized this was a place where humor didn't work. I didn't know how to communicate with him for any length of time seriously. I dragged us into therapy.

Eventually we found the funny and the means to talk again, and when I started blogging six months later I used this voice. My voice. The only one I've ever known, the one that got me through everything from infertility to my doctorate to watching my team lose in the championship game. I needed to fall back on it, to rest on it, to rely on it, and allow it to guide me through this passage, too. I only knew how to communicate effectively with cynicism and profanity and funny. It would have to do.

In grad school, one of my advisors said a line to me regarding one of my drafts that went down as one of THOSE lines -- that get repeated and used in conversation by everyone, especially when drunk, and ultimately become quite funny:

"You don't read much poetry, do you."

No. I don't. I don't write that way either, obviously.

I was a bit surprised when I noticed that readers whom I'd describe as, let's say, "religious," began reading my blog. No more surprised than when I consistently started reading theirs in return. I think we all need to fall back on our voice, whether it's religious or spiritual, lyric or poetic, wry or fucking side-splitting. And when writers channel their grief through that voice, the one, the true one, I'm riveted. It's always raw and powerful and beautiful. It's as if this grief has introduced me to a world of different languages.

There are writers who question their voice -- question the appropriateness of humor, the need for positive thinking, or the bedrock of their religion. They swim in their voice, challenging the metaphors, pushing the limits of prose and sacredness and flat-out good taste. Others find a new voice -- a dollop of sarcasm or perhaps a streak of divinity. Even though I never questioned nor found God or the sonnet, I love these writers too.

About the only voice I can't bear to sit with is one that is obviously false, the one that hangs like a bad suit: It's glaring to me when the person brings up the Almighty in the first post and it's evident they haven't used the language in years if ever. It's painful when they drop an F-bomb and are awkwardly, overtly, uncomfortable about it. When they start in, very soon, too soon, with the happy-sunshine-y "I'm finding the positive in this," and "This has given me unbelievable perspective and strength." Or when they assume that speaking of a deceased child necessitates florid vocabulary and intricately constructed metaphors when it's evident to the reader they simply need to cough up the facts and state the obvious: My baby died. I'm fucking sad.

I know people adopt false voices for a variety of reasons -- convention, assumption, or because mom and dad are reading the blog. I feel for them. I think the only way through this mess is leaning on what you know, what is yours, what this can't take away. My voice, thankfully, did not die with my baby.

How would you describe your voice? Did it change after babyloss? Do you find yourself gravitating towards writing that uses a certain type of voice? Are there voices you appreciate even though they're not yours? Does your blog voice differ from your true voice, and if so, why?

Dear Friend,

I'm so sorry you thought of us when your friend's newborn died this week.  I'm sorry for your friends and their lost child most of all, but I'm sad for you, and for us, too, that we are now experts at this.  But fear not, you contacted the right people.  We can help you help them.

First of all, start cooking.  Do laundry, clean the house, take charge.  Keep it up for at least a month, with the help of other friends.  Right away, order her to bed and give him a beer or nine.  Yeah yeah yeah alcohol is dangerous and addictive and all that, but I swear to whatever god is out there, delicious malted barley and fermented hops probably saved my life in those first days.  Way better than the anti-depressants or valium they'll probably want.  But let them have them, too, for a little while.  Obviously, not together.  But a little bit of numb is fine.  They are in shock-panic-disaster-mode.  All their alarms are going off and nothing makes any sense at all right now.  Let them grieve, but help them be calm, too, if you can.

And frankly, yeah they are probably a little suicidal and a little crazy and definitely extremely lost.  Their souls have just been shredded by the Universe itself.  They are fucked up and they need help.  That is why you have to hold them tight and keep them close.  Do it in shifts.  Be with them, but don't overwhelm them with people.  If anyone manages to make either of them laugh no matter how dark and awful the humor, that is an extremely good sign.  Don't bring in clowns, but aim for a little bit of black humor if they are the type that needs that.  I did and my brothers did me right.  Those moments of dark levity were less-awful-spots in a terrible, incomprehensible time.

Don't make them have to make decisions.  In the first days after Silas's death I could only think a few minutes into the future and not all that successfully.  "Should I get up?  Should I eat?  Should I bother even thinking about any of that?"  I felt alien and awful in the outside world.  I'll never forget my first errand out to the bank and a Walgreens after he died.  I returned worn out from a ten minute ride up the street.  I was crazed with grief and overwhelmed by the fact that the world just kept on going even though mine had come to a complete stop.

Do anything you can to make them have less to think about.  Right now they are trying to figure out what the fuck they are supposed to do with their dead child, with their demolished hopes, with their annihilated lives.  Don't make them have to think about chores, too.

And yeah, she's worse off than him right now in a more immediate, physical way.  But then the other way around, that also makes it worse for him, too.  His disconnection from the physical bond mother and child shared is also a loss for him.  Mentally, emotionally, chemically, he was preparing to meet and bond with that child, just like the mother, but now he has even less than what she had, in a way.  Really all I'm saying is he's working hard to stay strong and upright for her, but don't mistake courage for strength.  I always felt like I was on the verge of a bottomless, endless void.  Stand there and face it with him if you can, and don't let that void consume either of them.

A death like this can be a poison to their souls.  It will take a great deal of patience and time for either of them to even begin to fake normalcy.  Shower them with love.  Talk about their child, use her name.  Look them in the face and the eyes when you discuss the absurd awfulness of their plight.  Tell them how much you miss her.  Do not be afraid to be direct and honest and clear with them.  The death of their child is like a blazing nova of utter blackness and its awful light reveals everything about their lives, their hopes, and about their friends and their families.  Do not be afraid to stand directly next to them and face directly into that palpable pain if you want to keep them alive and keep them protected and keep them as friends.  Those that cannot handle what they are going through won't stay around long, and they will know very quickly who they can count on.  Be someone they can always count on, because right now they can't count on anything at all.  The Universe itself has turned on them.

Never say that everything happens for a reason.  Never try to mollify them with talk of angels and meant-to-be's.  Never say that God works in mysterious ways.  Never compare a trivial loss in your own life with what they are going through.  Don't talk about babies.  Don't talk about hope and somedays and futures.  Help them deal with the immediate dilemmas of everyday life (ie what show to watch, what time to eat, that it is okay to not shower) and don't even consider trying to tell them anything about the true nature of reality and what good might someday come.  Any of that is just dressing up a shit sandwich with rotten tomatoes and wilted lettuce.

I'm sorry.  I love you.  I miss your child.  I'm here for you.  Let me do that for you.  Those are the only things you need to say right now and each and every one should be followed with a tight and true hug.  Cry with them.  Be silent with them.  Talk with them if they can find any words at all.

Lastly, don't forget to take care of yourself, as well.  Work with your friends to always keep someone close, but make sure to sustain your own life so that you are strong and ready when you are with them.  They will be strange and sad and difficult, but if you love them and are patient you just may keep a flicker of light alive in their souls.  But don't worry about sanity right now, that's a lost cause anyway.  Just leave breadcrumbs on the trail back and help them be a little bit okay for a little bit of one day, each day, every day, hour by hour, minute by minute.

They are on a whole new timescale now.  They are now counting the moments since they lost their child, and nothing will ever be even remotely the same again.  They need company in this new landscape, though, and that means you need to help them find their way step by step.  But don't call them baby-steps, they just might punch you in the face for that one.

~~~~~~~~~~~~~~~~~~

What else everyone?  What advice can you give to the friends and family of someone that has just lost a child?  And what do you disagree with from what I said?  This path is completely different in so many ways for each and every person so I'm sure my advice is anything but exactly right for everyone.  What did I miss or get wrong?

ripples, ripples everywhere

You know the story. Your baby dies-- a profound, ugly, messy, bloody wound. You nurse it, gradually you learn to live with it, you know, because you have to, yadda yadda. But that's not what this post is about.

And you know what happens after, too, the thousand tiny little cuts that follow. Family members who get pissed because you are not reveling in their joys or because you are not symapthetic enough to their grand tragedies, which, you know, don't seem that grand to you. Friends who somehow just can't find the time to call, or call because they just had to share the funniest thing their three year old just said. Strangers who say stupid things because they don't know, or because they just heard and react with a violent case of word vomit. And everyone who thinks they know just how you should be feeling by now (better) and what you should do to feel that way (follow their sage advice, naturally). But this too is not what this post is about.

What it is about is the unexpected ripples, the things you wouldn't have thought would have to do with your baby dying. For me, right now, it's my job. Lack thereof, actually. My last contract ran out in November, and I've been looking since. In my field, the jobs are mostly seasonal in start dates. So there was nothing for the spring semester, and now it looks like I didn't get anything for the fall either. More than a hundred people apply per position these days, and I am not looking beyond the area where we live, so it's not entirely unheard of for me to not have found anything yet. But it is unsettling, in the makes you see bleak scenarios kind of a way. There was also a crushing blow of a good interview and then not a peep for weeks, until finally a very pleasant rejection letter, all about a stellar group of candidates on the short list, which I made, and the tough decision, which they made.

I am one of the crazy people. I have what I see as a calling. And that means that I can't, still, see doing anything else. And dammit, I am good at this thing I do, at this thing I feel as my calling. Walking away, doing something else, it feels in no uncertain ways like giving up. Not just on this thing we call a career, but on myself, on what my definition, my understanding of myself is.

The ripple of this, the way it goes back to A's death, is that I was then in the middle of a one year position. I went back to work three weeks after A died, less than three after he was born. And I finished that year, somehow, cobbled through it, despite shit for attention span and a newly-acquired failure to care about a bunch of things in that job. I even put together a good piece of work by the end of it. But then I decided to take time off, to give myself breathing room. That was a wise choice. I should've stuck with it. I should've spent the time alternating between doing little and doing some of those projects around the house that sit on that looooooong term to-do list that always becomes way more long term than you mean it to. And then I should've looked for a position for next fall.

What I did instead was apply for that one position at the end of that summer, and I got it a couple of months into the fall. It seemed promising, it seemed like a great opportunity. But it didn't end up being that way. It ended up being far less challenging and interesting than it was supposed to be, and far less productive. Part of that was my fault, as I tend to get demotivated when what I am doing isn't interesting or challenging. Part of it was the hellish and medically complicated subsequent pregnancy. And none of it matters now. Because now I am looking for a job in a far worse economic climate than I would've been had I not taken this detour, and competing against a lot more people.

A week and a half ago I was in a complete funk. Now I am alternating between that and a stupidly stubborn determination to somehow get out of this hole I dug for myself, even if it means a long way around and a bunch of seasonal jobs with uncertain prospects along the way. I have a calling, and I don't know who I'd be if I gave up on it. I don't want to look over the edge of this particular cliff. I am too scared to look. But when the funk gets me, I am feeling like maybe I am already falling off that cliff, already midflight, already done for, and all that's left for me to do is to acknowledge the end.

What are some of the surprising ripples you have encountered so far? What has changed, for the better or for the worse, in places you didn't expect changes?