This time, again

Those five weeks between when we found out he was sick and when he died exist outside of time.  They accordion out behind me as one infinitely long moment and then compress back to simply Before George and After George, the contents reduced to the width of a single piece of paper.  I alternate between being surrounded by memories, smells, tastes which bring me back to those weeks and real disbelief that The Horrible Thing actually happened at all.  

The more time that passes the more I seem to have difficulty grasping the core of what his death has really meant.  I tell myself that I can't regret what happened in the past because my present is filled with love for my daughter, who in a very honest sense only exists because her brother doesn't.  I fortify myself against the reality of his death rationalization by rationalization.   I am a master at trying to soften the edges of his death.
Then March comes around the corner, always unexpectedly, to knock the breath out of me.  The ether of emotions that normally fog my brain crystalize and it is all suddenly so simple again.  I gave birth to a baby in the cold sterility of a surgical suite.  I held his small sick and dying body, kissed his head, whispering to him I loved him and that I wished he could stay.  Then I simply waited for his tired heart to stop its battle to keep beating.  In March I can distill all the regrets and justifications and apologetics that I conjure up during the other eleven months of the year into a simple elixer of love and heartbreak.  
I am a mother to two children.  One who lives and thrives: a marvel in front of my eyes.  The other dead and gone: a shadow in the periphery of my vision.  But for a few weeks in March, when the world around me is waking up from its wintry slumber, that shadow feels a bit more substantive.  Almost as if I can reach out and hold him again, kiss his head, whisper him I love him, and that I wish he could have stayed.  
 
Do you rationalize the death of your baby to ease your pain?  When the anniversary of the death of your child approaches does it change your perspective on the past or make you feel closer to the one you lost?  How do you feel (or think you will feel) about milestones or anniversaries?  Are they intensely personal events or do you feel the need to share those important dates with people in your life?

circle time

It occurred to me later, like days later, that in that room we were the newbies. Going into the week of A's sixth anniversary on the Jewish calendar, and ten days short of the same date by Gregorian calendar, we were the newbies. Or, perhaps, in that room we were all veterans, and it didn't matter when exactly each of us started. Only it did, a little.

The woman who planned and organized the whole thing, that day she was ten years and a day on from the day her nine year old died in his sleep. To the right of her-- a woman whose 13 year old died close to 50 years ago. Two brain tumors in the room, a few cancers, three babies, a rocket, and a seven year old who ran onto the ice to try to save a dog. He didn't have boots. That was 40 plus years ago.

A Gathering to Remember, it was called. Our two rabbis and our cantor, he of the literally award-winning voice, closed the circle that otherwise contained bereaved parents, grandparents, and a sister. Each of us had the opportunity to speak in turn, though some chose to let their spouse do all the talking (like, ahem, a certain male of the species residing in my own house).

Because we sat down to the left of the organizer, we ended up being the last to speak. Which, I think, turned out to be a blessing of a sort. I wanted to be there, to sit in the room with these people, most of whom I didn't know before that day. But I didn't prepare anything specific to say, and I didn't bring anything ahead of time. I didn't even know what I would say beyond the crystallized truth of our existence-- my son died, I love him, I miss him, and somehow my crazy busy full and overflowing life is not complete without him. Ten seconds max. Had my turn been early on, that's probably all I would've had to say. Because, you know? As is, I spent most of the time listening. Parents and grandparents, 10 years out, 11, 50, 50 again, 15, 40-ish.

Before we started, a younger woman came up to one of the rabbis, saying she was just here to support "her," and that she'd sit in the corner. Oh, no, please sit with us, said the rabbi, my rabbi, who came to my hospital room and officiated at the funeral. "Her" turned out to be her mother, and the mother of that seven year old boy who ran onto the ice without his winter boots. When it came her turn to speak, the mother struggled, cried, pulled out the picture, and struggled some more. The daughter offered to speak in her stead, from a sibling's perspective, but the mother pushed through, and got her story out, disjointed in pieces, but she did it. The daughter got to speak too, showing us a scar that is her very own tangible reminder that her brother was actually here, and reminiscing about a family trip chock full of good memories that they got to take before her brother died.

Would I ever forget the date my son died? The day he was born? I'd think that I could never forget the date if I still had the mind to remember A at all (or, you know, anyone else-- my grandmother's dementia taunts me from afar as a pretty terrible way to go). But this boy's mother forgot. She said it happened in January. December, the daughter gently corrected. And yet she fought to be the one to tell his story. And yet, listening to her talk about it, that slip-up seemed so very minor. In fact, except for seeing an old woman in front of me, except for her telling us how long ago this all happened, from her voice, from the urgency in it, from the burning love and yearning, you'd think it just happened a year or two back.

When our turn came, I ended up thanking the group and talking about how it turns out I needed to hear them all. Because my ten second summary, it's all true. But so is the perception many of us share that the outside world is rather impatient with and rather forgetful of grief. And sometimes I start to wonder whether my own gut feeling, that this grief is not something I will ever forget or get over, but something I slowly get better at living with, whether this way of looking at things is not right, whether we should, at some point, just be fine already. I am, though. I am fine. And yet, I am also grieving. And listening to everyone in the group, everyone who is a bit ahead of us, and everyone who is waaaay ahead, in the end that felt like a permission slip-- yes, grief is like that, and it is ok to sit with it, now and whenever. Grief is like this because love is like this, and in the end it is still very simple-- we love them, and they are dead.

I finished by talking about the quote I noticed in the new High Holidays prayer book our synagogue started using recently. It was embedded in one of the notes in the margin that are on virtually every page of this very new prayer book, and it hit me so much that I had to come back later with my phone and take a picture of it. I've had the quote on my phone ever since I did that in September, and that morning I pulled out the phone and scrolled through the gallery back to the quote.

It is used in the book to argue that a certain passage should not be seen as a request for restoration of what once was, but rather as a plea for resilience. The quote is from Elie Wiesel, who really does know from resilience. "God gave Adam a secret--" he says, "and that secret was not how to begin, but how to begin again."

 

Do you ever feel self-conscious about your grief or its expression? Have you found fellowship with others in a different kind of a grief boat? Those on a different timeline? Have you had unexpectedly validating or unexpectedly invalidating grief experiences?

Missing One

As strange as it may sound, I MISS the wincing sting I felt in the first couple of years after losing Roxy. A wincing that brought the end to so much of what I had been. It twisted my back and made me old. It made me permanently nervous. And yet, somehow, over 5 years out, I miss the immediacy of that pain.

Sometimes I search through my emails and my journals and my songs just to reunite with the horrifying disbelief of our loss. During those first couple of years, I couldn’t WAIT to escape it. I counted days away from Roxy’s death. Yet now, somehow, sometimes, I want to go back.

I recently went on an email spelunking mission, looking through my archives, searching “song” and “Roxy” and seeing what came up. I wanted to remember the songs that saved me or destroyed me in the aftermath of losing our daughter.  I came across this exchange I had with my good friend Faith about a song that hit me hard at the time, and it just washed me out to the Roxy Sea, an ocean of beautiful grief… and it is beautiful, my grief. It IS my Roxy. It’s all I got to keep.

I’m told “Missing One” by Bonnie Prince Billy was written about his father, but it sure hit home for me that night. Here is a portion of my exchange with Faith as well as the song itself.

KENNY: “…it’s been rough this month… just feeling the day come around the corner.  Last night I had practice in Indy and I was driving home and I was just flooded with it all… Roxy’s face and skin and the nightmare after they took her away from us and out of our room for good.  I was listening to the new Bonnie Prince Billy, but just lost in my own sadness, kind of allowing myself to go through it again (I rarely do that, but sometimes it just needs to be done)… suddenly this song comes on:  Missing One (god have you heard it?).

I know that missing you has just begun
There’s years to come
And trying to sleep tonight next to your kin
Is fully lovely as I’ve ever been
But I wouldn’t trade my life for someone’s millions
And I know you left for a reason
And the trees and flowers and creeks and rocks
Hold your face for every season
I know I will continue to try and please you
And even in some ways,
To try and be you
But also my fulfillment will be to do what I do
As you taught me to
I know that missing you has just begun
Love me family
And just sleep to all of us

I felt like it had sprung right from my sad heart right that moment, sung to Roxy.  The moon was a little more than half full but really lit up the whole sky.  I almost disappeared completely into it all.  I listened to the song over and over again.  I tried to invite the tears to come, but they wouldn’t.  I really wanted to feel that release.  still, it was magical, sad, and somehow important.”

FAITH: “Oh man. Those lyrics do seem sent straight to you… I haven’t heard the song, but being a Bonnie Prince Billy fan, I’m guessing it’s not up-tempo.

I can really imagine that scene – the highway, the song, the moon, the memories. It’s a beautiful image, heartbreaking as it is. I think Will Oldham should list his occupation on his tax form as “professional tearjerker.” The tears will return when they need to, my dear friend, preferably when you’re not driving.”

It seems, even under a year away that I felt too disconnected from my pain. It has been more than 5 years now, and the tears still haven’t fully come. Or maybe they spilled backwards into my brain and blood. Or maybe the missing has just begun.

Do you ever feel too far away from your grief? Do you try to keep it close? If so, how?

alone

We broke up a few months after Sky‘s birth. I don‘t need TheDad in my life to be connected to my son. My life will always be Minus One but I will never be as alone anymore, because I got myself back. Has anything delayed your grief? Did you ever have to wait to grieve because a situation or place felt unsafe, emotionally or physically? Were there any times that you or your partner's grieving and coping skills frightened you? How did you handle it?

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