new at glow: a designated discussion board for TTC, pregnancy and birth after loss

There was a time when I couldn't fathom pregnant women. Couldn't stand to hear about them, hear from them, see them, consider them. They represented hope I couldn't feel, trust I couldn't muster, assumptions I thought blithely naive. And I thought in the months following Maddy's death, with a probable cause of a genetic autosomal recessive disorder on top of infertility, that I'd never be pregnant again. Pregnancy was something to be mourned, something I'd likely never experience again in my lifetime.

There were days when I hopped online to find commiseration and community and found . . . . pregnancy announcements. People yammering about hope and faith and fear and months in the future I couldn't fathom and I felt lonely, left out, left behind. I often felt I'd never fit in, never get this community because I didn't or couldn't possibly want another child. There were blogs I had to read through my fingers, and comments left with pursed lips.

It hurt.

Having said that: I understood, even then, that wanting a subsequent child after loss is both natural and profound, and rife with both hope and fear (or in my case, plain vanilla denial). And that parents riding this wave on top of their grief need an outlet and a place to explore this great contradiction going on in their lives. It was their right to write, despite my feelings of ambiguity and sadness.

(As an aside, it took a few years -- years! -- for me to overcome this, and truly be able to stand behind my fellow bloggers with unabashed support and yes, even happiness for them.  As for pregnancy, it took almost three years of grieving, medical research, and diagrams to decide to try and have another baby of my own, a subject which I discussed on Glow, here.)

We've created a separate discussion board for conversations pertaining to conception, pregnancy, and (gulp) birth after loss. This is a good and gentle thing that benefits all of us in every stage of grief, growth, and healing.

Although I think most in this community are painfully careful to discuss these things gently knowing the hurt that exists out there, there are some who really can't bear to even read the title of the discussion that ensues. And all of this is all within your rights: to have a safe space where you can share your feelings, but don't need to face something you're not ready for, yet.

Due to the wonderful wealth of content on the main board, it's not possible for us to migrate existing mentions of TTC, pregnancy, or birth to the new board. But from now on, please abide by this distinction when adding threads or posts.

We should say at one point we tried to peel apart the forum into themes, and it just didn't work -- it's much easier for most of us to read through the topics in a single list to scan for what feels most relevant. So we're splitting the boards in two with some trepidation -- and we don't want the discussion here to become unwieldy and segmented into multiple sub-groups. But this feels right to us, keeping mentions of pregnancy separate. Then it's up to you to click into the place where you feel the most comfortable, with no judgment.

It took me almost three years to decide to risk getting pregnant again, and even now I'm still a bit nervous reading other people's rationales and experiences because mine seem so different. For some though, there will never be enough time -- there will never be a time when they will read such posts without a gnawing discomfort and an additional sense of grief. For all of you in this community, I'm hoping this is a mindful decision.

Thanks so much to all of you for all the heartfelt advice, support, and communion you give and receive on our discussion boards. It makes this safe space belong to all of us.

ttc | pregnancy | birth after loss

notes from a veteran

Red Pen Mama's baby boy was stillborn more than six years ago. When she started blogging three years ago, her instinct was to follow the 'mommyblogging' path. "I wanted to talk about my kids," she says. "I wanted to be funny. I think sometimes I am (my kids give me great stories), but I was searching for my own voice."

In 2007, she discovered the online world of babylost parents for the first time. "I realized that I could talk about it—talk about him, my baby boy. That along with talking about my living daughters, my anxiety, my struggles, music and books, my thoughts on faith, and my city. But to see that I could share my thoughts and my feelings about Gabriel, and tell his story, and not have people turn away—that was literally breathtaking. I would have people who understood."

Even in the first, fresh few days, I knew that I would feel better some day.

But I didn't want to feel better some day.

The first time I didn't feel absolutely beaten down by the fact of my baby's death, I felt terrible. I was the mother of a dead child, and that was wholly my identity in those first days and months. I wasn't a daughter or sister or a writer. I was a wife—wife to the father of a dead baby.

That dead baby, my son Gabriel, was my whole world. I couldn't believe it. I could not wrap my head around it. I thought it was a dream. I would wake up at night with aching breasts, expecting to hear him cry. I simply could not fathom how this was my life.

I did not want to feel better. But eventually, I did.

photo by niko_si

I can't tell you if it was six weeks or six months later, but I started freelancing again; I went to a concert or two (which was extremely disorienting); I made love to my husband; we traveled to San Francisco with his family, including my pregnant sister-in-law.

I was still the mother of a dead baby. How could I be more than that? Despite my best efforts to not move forward, I was. It was not easy—it was terrifying. But it was forward.

+++

The kindest thing someone said to me in the days after Gabriel's loss came from my uncle, my father's brother, who had lost his 22-year-old son in a car accident years and years ago. You will never get over this. It was such a balm. I didn't have to try to get over my loss, put it behind me, pretend to "be okay". It was never going to be okay.

You will never feel as good as you did before you became the parent of a dead child. That woman, that man, is lost to innocence, lost to the pure joy and miracle that is making babies. Even sex will be fraught for some time. I suggest wine. Not too much.

Every pregnancy you hear about—even (I hope) your own—will be shadowed, sometimes so darkly you will wonder what you are doing in a world where people want to have babies. It's madness. Madness you may recognize someday as your own.

Though you may need help to heal from such devastation—therapy, medication, a vacation someplace far from everyone you know—you will never get over it.

But you will feel better.

Do you remember one of the first moments that it occurred to you that you might be feeling better? Where were you, and what were you doing? How did your heart react, and how are you now?

on breaking habits and freeing arms

Today's guest writer, Mrs. Spit, was amazed to find herself pregnant in June of 2007, and heartbroken in December, when her son Gabriel died.

Choosing to move a step forward in your grief is such a personal, such an individual thing. It comes on its own time line, with its own rules. When you chose to get out of the habit about blogging about, about talking of your grief, your dead child, its a hard thing to understand.

The story starts with a story teller - Stuart Mclean, host of CBC's Vinyl Cafe. I wrote to Stuart this past December, telling him that we would be at his Christmas Concert, and we weren't there two years ago because I was delivering a child that died. I didn't have any particular reason to write, I wasn't really writing to tell him I enjoyed his radio show, I wasn't really writing for anything, and yet, I still wrote.

He wrote me back the loveliest of emails. He talked a bit about perinatal death, but he talked more about the process of finding your spot in life again. He used a metaphor of a wood pile, they put wood in front of you, and eventually you get back to chopping and stacking wood.

For a long time, a terribly long time, I needed Gabe to stay with me. As I lost pregnancy after pregnancy, bleeding and bleeding, I needed Gabe. And if I did not have the warm living body of my son, I had his memory. As I sorted my way through the grief of his death, and then 4 more miscarriages, I needed to hold him close, for comfort, for peace and for hope.

I started a new job about the time I went to the Christmas Concert, and it was time to change my focus. To talk less about Gabe, to carry him in my heart, but give my arms a break. Some of this has been quite conscious - I pass up opportunities to talk about pregnancy, about childbirth, about perinatal loss. When people ask if I have kids, I answer quickly - "No". I am breaking habits. I blog less about Gabe as well, if only because I blog more about everything else. The now.

When I was in high school we turned a wooded area into a soccer field. We took the trees down the old fashioned way - with axes and buck saws. We chopped them down, and then we sawed them up. It took all of my junior year to chop those trees down, and all of my senior year to clear the brush.

photo by zach bonnell

Perinatal death is a forest, laid upon the ground. Trees that are no longer trees, but not yet useful wood. Ratty old lodge-pole pine, a bit of poplar, sticky spring sap still coming off. Torn up ground. Rents, when whole trees have been dragged away to chop. Underbrush and mud, with leaves ground in. Alberta wild roses, full of prickly thorns, winter-berry. The smell of decomposing green matter, cold fall days, freezing winter. Cold, bleeding hands, bruised shoulders, broken toes. Perinatal death and half chopped up forests are not places to linger. They are places of purpose, back-breaking, soul-wearing work.

Like everything, work ends. Four years after we started, grass in, the field level, bleachers and junior girls playing soccer, I stood on the sidelines. But for memory, I would not know field was forest. But for this story, you would not know.

Stuart wrote about the process of living, grieving, wanting, wishing. He made a point: there's wood in front of you. You give yourself over to it, testing the sore parts, not sure if you can trust your knees to carry. You start a bit slowly, then you are more able to carry on with the sore bits, and the truth is, it hurts less. One day, the work is done. Then, you find others, in their torn-down forests, and you tell them the dimensions of a cord of wood."Start there", you say. "That one is small. You can manage that."

Do not misunderstand, my classmates, we talk about that forest-field. Once in a while we get together and we reminisce. We share a secret, we know what you see in front of you was not always there. We know that memories fade. Oh, not the fact: the how, all those awful days or work. All that remains is field from forest andthat transformation is good and right to talk about. But only sometimes.

You understand the description I have given you, even if you have never, by the strength of your back, wrought field from forest. You who understand transformation, raw power, hefting, struggling and bleeding - you understand those dimensions that I gave you, you understand 50 cords of wood from forest.

I can talk about what was, what could have been -  but most people see what is. My stories of Gabriel here and gone make no sense, people who have not built field from forest cannot reconcile heartbreak to the composed woman in front of them. Of the power of transformation, they know not.

Most of the time people, they say "Oh, look a soccer field."

Perhaps one day they will realize that soccer fields don't make themselves, perhaps one day you will need to come along and show them how to make one. Or not. Most people live in the ever present now. And truly, now is not such a terrible place to be. Sometimes you wish your now was different, always you wish it included just one more person. Somedays, when you are tired, when you particularly remember, you remember neither the wood or the soccer field, but that horrible place in between.

Most days, you just nod. "Yep", you say, "that's a soccer field".

Change

Every day I make an effort to have a nice time out there in the World.  I'm not aiming for the stars, not trying to seize every single moment with fervor and gusto, I'm just gunning for good.  Good is enough if you can do it on a daily basis.

I sleep later now, every day.  I need an hour or so of semi-wakefulness to gear up and get ready for the chill and sunlight and this relentless, active life. I guess I still can't believe, every morning, that this is the Universe I live in.

I take a shower and I love it.  As hot as I can stand it.  Sometimes I reflect on how lucky I am to even have a hot shower that I can stand in as long as I like.  Sometimes when it looks like a tough one in my heart or my head, I stand there a little longer.  I shouldn't because of the coming Water Wars, but sometimes I can't help it.

Guilt is gone.  I've banished it.  I do what I need to get by and I don't worry about perfection.  Except in the coffee I roast.  And in the driving.  They both need to be perfect but for completely different reasons.  Coffee because it feels good to do it right and it's my job, driving because anything less is disaster.  I am not down with any more disasters.

The day Silas was born was supposed to be the best day of my life and instead it was by far the biggest disaster I have ever experienced.  Nothing like that should ever happen again.  But obviously, since we're all here together, Should is a word we all know doesn't mean a damn thing.

So Should is out now, too.  Expectations are a fool's game, and I choose not to play anymore.  I declare that as if it is something that can be de-selected.  Mostly I try to do exactly what is right in front of me and I avoid worrying about what I think should happen next.  Maybe it is the not-thinking that keeps me up at night.

3am has become my thinking hour.  I know it is going to be 3:11am when I open my eyes.  For a while that brief, nightly insomnia upset me, but now I look at it as a special time, just for me.  Lu asleep next to me.  The cat is tucked tight between us, not even purring anymore.

Usually it's a song that wakes me up.  Whatever I happened to enjoy the most that day is usually the one that's still running through my brain.  The same refrain, whatever it is.  The song-worm, it infects me.  I don't even think about who Should be waking me.

If you break these moth's wing feelings, powdery dust on your fingers or undecided undefined undeterred yet undermind and then it's the steady, static hum of my soul trying to reconcile another day without my son.

It doesn't stop, I'm sorry to say.  Not so far.  Not 2 years after he was conceived.  Not a day goes by that somehow isn't all about him.

The ultimate reason for that is because in a way, I have become him.  Silas doesn't get to do this Earth so I've got to do each day for him, too.  My everyday experience has been utterly transformed, and I do not at all feel like the person I was before Silas was here.  Two years since we started this journey and our lives look exactly the same, but everything has changed, inside and out.  And like Julia said, it is still happening.

I live my life the way I do as an expression of how my parents raised me, of how I have come to know the World, of how Lu's love and presence have become intertwined with mine.  Today is our 5 year wedding anniversary and despite the sadness of these past years it still always feels right that we are together.

Living extra for Silas--any way I can think of--feels right, too.

His brief life has transformed me in ways I am only beginning to understand.  I suppose all parents go through this, but it is especially difficult for people like us because we can never hug them and thank them for everything they help us become.

All I can do is hold on to every day, every little treat and happiness.  I do what's right in front of me and watch and listen for the beauty that appears.  I keep going forward for Silas, for myself, for Lu, and for whatever it is that happens next.  I know what that Should be, but I can't worry about that anymore.  I can only face what Is and somehow deal with everything that Isn't.

~~~~~~~~~~~~~~~~~~~~~~~~~~~

How have you changed?  Do you have expectations of how things should turn out?  Do you get the ear-worm of music?  What are your refrains?  Do you manage to have nice days, despite your loss and sadness?

Still

Just before the turn on the year Angie asked for one word. One word from each, to make a community poem, to kick off the year of still life 365, the art blog by and for the community. I didn't have my word until it was too late, until the submission deadline was past. I had two, actually, but they were connected and I even knew which I would pick if I had to pick just the one. But deadline was past, and so the choosing was academic. Except that my next thought was that surely both of my words must've made it in by someone else's hand, being so obvious and all.

The poem came out beautiful and stunning, and heartbreaking. Just like you would hope it would. However, and this was a bit of a shock to me, my first choice word? It wasn't there.

The word was still. I meant it in terms of time, as in ongoing, continuous, in progress. Although, of course, the other meaning, the one the describes state of being, defined as "calm, motionless, quiet," didn't escape me either. I kinda liked the double meaning.

I miss him, still. I am not the same, still. It hurts, still. I am sad, still, at times. Of some things, I am less forgiving, still. Of others things-- more, now. I love him, always.

The week building up to A's third anniversary days was busy. And mostly normal. That was ok, comforting even. I thought, at times, that the busy was preventing me from getting ready in some sense I didn't fully understand myself and couldn't really articulate. At other times, though, I've thought that the busy was protecting me from really looking at what it was we were moving towards.

Three years gone. In its approach, it felt to me like an anniversary significant in a whole new way. It's not the first, the towering marker at end of that first overwhelming year, last of the firsts when you don't begin to know what to expect. It's not the second, the first after the first, when maybe you are starting to recognize the outlines of the thing. The third felt, if this makes sense, like the first of many. Like maybe I should have this figured out by now. And for most of the weekend it seemed like maybe I did. Until last night.

What took hold of me as I climed into bed last night wasn't gentle. It wasn't the missing, to which I cop freely any day of the week. It wasn't the sadness-- I know sadness and this wasn't it. No, the thing that made me cry the full-bodied cry like I haven't in long-long time, the thing that made me howl, the realization that felt physically like what I imagine getting kicked in the chest by a horse might feel, was unexpected and it was brutal. I realized, suddenly and inescapably, that I don't just love A, and I don't just miss him.

I realized that I want him, still.

It's not that I thought of him as unwanted until then. He was certainly wanted. It's just that in a universe governed by laws of physics continuing to want him now doesn't do one a whole lot of good. And it's not that I was suppressing this wanting, at least not in any way that I was aware of. I just didn't know that the wanting was in the picture, you know, still.

The realization did nothing to my perception of reality, by the way. That internalized understanding of the futility of my wanting is exactly what made me wail with impotent sorrow. Time is still unidirectional. And A is still gone, and always will be.

I knew exactly what I wanted to say, and it still took me the whole damn day to write this post. Processing, integrating, thinking, feeling. I woke up this morning feeling tender, like I went a couple of rounds with something much bigger than me. I guess I did.

How long has it been for you? What, if anything, has been surprising so far? If you've been at this for a while, how have the anniversaries treated you?