Community Voices: Grief is...

Today we are very pleased to present two more of Glow's community voices.

This first piece is by Ruby. Ruby writes: My second son Edgar died on the day he was born, 21 December 2012.

There is the ocean we went to to shake out baby ashes from a cliff-top. The ocean at the westernmost tip of Wales, a sublime spot, above a wide curving bay where his brother is digging in the sand and flying a little kite. The kite is up and down, trailing along the ground, bobbing up in the sky, hopping across the sand, tacking out above the line of the cliffs. Rising, falling, turning, falling, flapping, toddling. The boy running about is the only child visible to the eye. There’s no baby brother sleeping in our bright-blue beach tent either. His name is in the sand. I scratched it in with the child-size yellow spade meant for sandcastles. The sun is shining and the waves of the ocean are rushing onto the sands, rushing over and over, shushing my grief.

My grief is another ocean. A wilder ocean, an ocean of raging tears. So many tears left to cry, stretching out to the horizon. An ocean from which tsunamis crash over the established land and crush the buildings out of it, leaving in its wake a scene of devastation and no human in sight; there’s no-one left before that ocean. My grief is a vast, slate-grey ocean on which I’ll never come to shore.

There is the ocean we went to to shake out baby ashes from a cliff-top. And then there is the ocean of my grief.

The second piece is by Christina O'Flaherty. Christina is a psychologist and mother of two boys, with a third boy expected in April. She writes to share the experience of losing Finn, her first son, and the lessons loss has taught her.

Grief, during these last three years since I lost Finn, has been my teacher.  At first, I riled and raged against him, as I did most painful experiences in my life.  I fought the lessons and the process, outraged that my life had been so cruelly disrupted, but my patient teacher persisted.  Sometimes stern, often compassionate, my teacher continued to gently guide me to the lessons I needed to learn in order to move forward.  These were the hardest things I’d ever been asked to learn.

In fact, I confused them with punishment, which in some ways helped me to turn inward for an answer as to why this was happening to me.  But, I couldn’t really be sure the lessons would serve me until, a year and three miscarriages later, I felt I had nothing left to lose.  That’s when I learned to listen; to observe the lessons coming out of the chaos around me, like one of those pictures where a perfectly clear 3D image finally emerges from a mess of dots when you stare at it for long enough. 

Grief’s lessons transformed me and I think that was Finn’s purpose in this world.  I miss him desperately but I thank him for his legacy of lessons and love.

Where do you find yourself--right now--in this ebb and flow of grieving our children? Do you perceive a change in your grief from day to day? Month to month? Year to year? What kind of ocean are you in? What kinds of lessons are you learning?

Loving and losing

The other day one of those supposedly inspirational quotes popped up on my Google+ page, among the many well and truly inspirational stories that populate it on the daily basis. The real inspirational stories are there because I am subscribed to a bunch of science-related feeds. Just recently, there was a story of recreating martian clouds in a giant lab structure on Earth, one about using a small 3D printer to print objects of any size through the use of an ingenious after-printing folding technology (no, really!), and one about a new discovery in astronomy that implies that life on planets outside the solar system is a lot more likely than we previously thought. Oh, and right above the inspirational quote, one about a possible vaccine against malaria. You know, malaria, disease that killed about 660 thousand people in 2010 alone, most of them children under 5 years old. Inspiring, no?-- to think that some day soon we may take that 660, 000 right down to 0.

And then there was the quote. Because for some reason Google likes to throw me those little nuggets of Hot on... Perhaps it is worried that I'd miss the really important stuff, what with my tragically unhip collection of subscriptions. Anyway, the quote. It was by a woman I haven't heard of before, though she is supposedly fairly well-known, Barbara De Angelis. "You never lose by loving. You always lose by holding back." it said, accompanied by a picture of an intertwined couple looking like clothes are about to start flying, if you know what I mean. 

It chafes me, the quote. At first I think it's the carefree couple in the illustration that is making the quote profoundly one-dimensional. And while it certainly does that, maybe that's not the whole story, since I can't seem to mentally walk away from this one-- the quote and the post keep bugging me. So I keep thinking about it. So maybe it's the absolutism of the quote itself, the lack of gray zones. Is it really true that you just can't lose by loving? What about an abused spouse-- shouldn't they be pulling back, walking away no matter if they still love their abuser? Or how about a teenage crush? Or, you know, those budding feelings at any age-- can you really never lose by plunging right in?

But eventually I realize that my internal issue is not about the intricacies of intimate relationships. It's about-- DUH-- me feeling like, again, the babylost, the childlost, the grieving, are cropped out of the conversation that is meant to be had. Our situations, our stories are not hallmarky enough for short quotes. Our stories illuminate what is, sometimes, really risked, by loving. Imagine for a second the same quote accompanying a picture of a small grave marker, a tiny coffin, or those impossibly small hand or footprints many of us have. Instead of wise, doesn't the quote suddenly sound cruel? Or, at least, impossibly sad?

Look, my personal blog's title, a quote from Sarah McLachlan, is the promise to not fear love. I think about that too, together with the quote, and wonder why the quote bothers me so much. And I come to think that perhaps it's because the quote makes it seem so plain and easy and obvious when it's none of those things. It's an impossible choice even when it feels like it's not a choice at all. We chose to try again, knowing what we can lose, again. Or we try again because not trying feels worse than trying, even knowing what we can lose, again. Or we chose to not try because we know what we could lose, again. Or the choice is made for us, and we are left to pick up the pieces. And no matter whether there's another round, no matter how the next round shakes out, a child, or children, we love is-- are-- still dead. We still love them, and they are still dead. And it's impossible for me to say that we haven't lost.

I've said for a long time, that I see grief as a mirror image of love. We grieve because we love them. We grieve because there's nothing else to do. So does it follow that if we didn't love them, or didn't love them as much, we wouldn't grieve (as much)? A friend has been known to occasionally pine for a lobotomy-- a way to forget the whole thing, pregnancy and on. I see the appeal, I do, though I can't, even this many years later, want it for myself. It used to drive me batty that nobody but us knew A, that he just doesn't matter to most people. It doesn't hurt as much anymore, this particular part, but I still can't wish for the memories to go-- it feels like wishing to diminish what little is left of him in this world. Of course, I realize that this is circular reasoning. It hurts me that he is invisible to most. With a hypothetical lobotomy I wouldn't remember, and so it wouldn't matter. I know, but I still can't wish for it.

All of this is theoretical, though. In this universe times moves in one direction, and sometime in our past, a child, or children, died. And now we are here, having loved them, still loving them. We are here and they are not, and we still love them, but have we not lost? Could we have avoided losing, or maybe lost less by holding back? Theoretical again, I know. Except our experiences inform our choices going forward. Which is why I called my blog what I did-- it was a note to self, writ large. I tried to be prudent, to hold back for a while, and I do think it helped keep me sane in the early months of the next pregnancy. But eventually I leaped. And I got lucky-- that son lived. He almost didn't, but he did.

I think this is why the quote bothers me so-- it makes a hard choice seem easy and it promises a reward that is nobody's to promise. Choosing to love is hard. And nobody, but nobody can say what will happen if you do. Choosing not to love, not loving, is often also hard. The choice takes your breath away. Sometimes, you make the choice despite yourself. Sometimes, you don't get one. Life is messy, and heartbreaking, and beautiful. And too complicated for simplistic prescriptions.

How do you feel about the quote? Do you agree with me or do you think I am overreacting? Or tell us about another quote that may seem innocuous to others, but bothered you because of your babylost experience. 

the other way

Some scientists say there are parallel worlds, realities stacked side by side like books on a shelf, or piled high in an old, dusty attic.  That seems obvious to me now that I have a whole other life hidden in my head.

The day went smoothly, the birth long but ultimately raw and right and beautiful and true.  Those first insane and breathtaking days when Silas was in our arms and screaming in our ears and staring into our eyes seemed to pass instantly and slowly, all at once.  The uncertainty of new-parenthood was a knot of fear and hope and determination in the core of my being.  I was positive I was the happiest person in the entire world, but then I'd look at my wife Lu as she breast-fed him, and I wasn't quite so sure.  Maybe the happiest man on Earth, I thought, settling for that and into the couch next to their bonded bliss.

Weeks turned to months and already a big baby, he grew fast on mom's milk.  I learned to change diapers, to hear the language of his wailing cries in the middle of the night, in the middle of the day, in the middle of the everything.  The middle of everything, that's exactly what he was whether he was awake or asleep, or whether I was, too. He slept well.  He was ahead of the curve.  Naps were long and pleasant.  He weaned easily and ate everything.  He learned to talk early and told us things I could never imagine.

On it goes, that impossible world, each day we didn't live that way seared into my mind as time pressed on.

The not-so-funny-part is that I had to make it all up before Zeph came along, but now I know exactly, specifically, precisely every single fucking detail of everything that we missed and everything we won't have. That parallel world I first inhabited wasn't just a figment of my imagination, it was the only salve to my damaged soul.  Simply accepting this world with all of its not-Silas-ness was a physical impossibility. I fantasized that whole other way as I cried and drove or lay stewing wide awake deep in the night, not hearing the wails of my dead son.

For years I was a shadow of myself, a projection of what I should be, even as half of me was gone within, wading into the deep deep deep waters of grief and anger, of loss and pain, of utter and complete rage that the midwives had failed us, that this is how the Universe rolls, and that it had just rolled right over us squashing us to nothingness and drowning us in tears.

But when Zeph was born, everything began to change in that parallel world.  Instead of feeling split in two, divided equally between the what-is and what-should, I had to focus strongly on the life in front of me.  Silas as his three year old older brother was harder to see than the baby we never had, and now the baby we did.  As Zeph grew day by day and the fantasy vision of Silas's life was shattered on the shrieks and laughter of an actual baby, I felt that other way slowly fade and dissolve, merging into the single path we now tread.

It is a relief to be whole, even with the hole.  Living halfway in a hope that could never be was maddening and exhausting.  Silas is gone.  Zeph is here.  In order for Zephyr to have the joyful life I want him to have, the only thing I can do is to be here with him, all the time.

But that other life is in me, still.  Still I grieve.  Still.

~~~~~~~~~~~

What do your parallel worlds look like?  How much time do you spend there?  Is there a certain time of day or part of your life where you feel the life you never had more strongly? How do you reconcile what you wanted with what you have?

This time, again

Those five weeks between when we found out he was sick and when he died exist outside of time.  They accordion out behind me as one infinitely long moment and then compress back to simply Before George and After George, the contents reduced to the width of a single piece of paper.  I alternate between being surrounded by memories, smells, tastes which bring me back to those weeks and real disbelief that The Horrible Thing actually happened at all.  

The more time that passes the more I seem to have difficulty grasping the core of what his death has really meant.  I tell myself that I can't regret what happened in the past because my present is filled with love for my daughter, who in a very honest sense only exists because her brother doesn't.  I fortify myself against the reality of his death rationalization by rationalization.   I am a master at trying to soften the edges of his death.

Then March comes around the corner, always unexpectedly, to knock the breath out of me.  The ether of emotions that normally fog my brain crystalize and it is all suddenly so simple again.  I gave birth to a baby in the cold sterility of a surgical suite.  I held his small sick and dying body, kissed his head, whispering to him I loved him and that I wished he could stay.  Then I simply waited for his tired heart to stop its battle to keep beating.  In March I can distill all the regrets and justifications and apologetics that I conjure up during the other eleven months of the year into a simple elixer of love and heartbreak.  

I am a mother to two children.  One who lives and thrives: a marvel in front of my eyes.  The other dead and gone: a shadow in the periphery of my vision.  But for a few weeks in March, when the world around me is waking up from its wintry slumber, that shadow feels a bit more substantive.  Almost as if I can reach out and hold him again, kiss his head, whisper him I love him, and that I wish he could have stayed.  

 

Do you rationalize the death of your baby to ease your pain?  When the anniversary of the death of your child approaches does it change your perspective on the past or make you feel closer to the one you lost?  How do you feel (or think you will feel) about milestones or anniversaries?  Are they intensely personal events or do you feel the need to share those important dates with people in your life?

Scars of the Heart

Take my heart out and you will see the scar.  From top to bottom, jagged across the middle, the scar is still raw and pink.

But against all odds, my heart is nearly whole.  Lu and I took the time to stitch the other's back together with words and love and patience and time.

Pass by pass, stitch by stitch she sealed and healed my rendered soul, my tattered heart, and helped me learn how to walk and speak and think again.

I thought I was going to die in the days after he did.  I thought we would be demolished by the unfathomable grief and lacerating sadness.

Yet somehow, now, eight years out from the day I married Lu, I can somehow still think that I am lucky to have her in my life.  Lucky that we have our amazing son Zephyr.  Lucky that we found a way to rediscover laughter, to allow light to re-enter our darkened world.  We are lucky to be together despite our terrible loss.

I married her because she was beautiful and sweet, patient and spontaneous, because she was steadfast, honest, brilliant and true.  What I didn't know then is that she was one of the strongest and most determined people I would ever know.  Her strength of will and incredible outlook on life were absolutely pivotal in our ability to stay together and stay in love when everything around us shattered and disintegrated on the day he died.

She healed my heart with her gorgeous, liquid eyes, and I held her tight through terrible days when not one single thing in the world made a speck of sense.

But the scar remains and always will, and if you look closely enough you will see that it is only nearly whole.  There is still and always a space, a void, an endless abyss in the shape of my son Silas.  It looks minuscule from a distance, but don't be fooled.

That fleck of darkness on the surface of my pulsing heart expands wider and wider the closer you get until the obsidian midnight rift is all-encompassing, swallowing the field of vision until we pass within, into the endless shadow of my limitless grief.

I don't want that hole closed.

I don't want to give away the pain of his absence.

I don't want to ever be so healed that I cannot feel him in me, in us, in our sense of the world.

When Silas died I had no idea what it was like to have a son.  I was hurled into a shadow world of counter-factuals, of impossible ignorance.  I thought Silas was going to teach me how to be a dad, but instead I learned how to grieve and not die from it.  With Zephyr so vivid and alive right before my very eyes, everything I was denied is being revealed, but the weight of losing Silas makes me ballistic with fear sometimes.  I panic at the slightest thought of anything happening to Zephyr, ever, for any reason at all.  Yet just as I refused to let grief define and destroy me, so too do I deny the power of fear to stop me from reveling in Zeph's every breath.

Lu is an amazing mom, and I am thrilled to share this life with her.  I cannot believe to this day that I can feel this good, after so many years of terrible sadness.  The strangest part, though, is how that still-present sadness mixes with the happiness I feel when I spend the day with Zeph, or watch him curled up and nursing in Lu's lap, or hearing him shouting "Dada!" when I get home from work.

The echo of his shout is the silence from Silas and the  knowing look in Lu's eyes.  She hears what I don't either.

I love them all fiercely, the two here with me, and the one we can only share in our sewn-up and scarred hearts.  This is our family and it will always be so: drenched in light and love and happiness and shadowed by our loss that we can never fully comprehend.

~~~~~~~~~~~

What do your metaphysical scars look and feel like?  How have you and your partner navigated the treacherous landscape of your life together after losing your child or children?  How do your living children affect the memory of what you have lost?