sorry

It's hard to write about grief at four years out. Hard to know what to write here.

I want to tell you that you will never forget your baby.

I want to tell you that you will find a way to move on, grow about the pain.

I want to be the beacon of hope ahead of you, the woman with the life that has not collapsed around the dark matter of the dying star; that I was not sucked in and lost, heavy as the universe and destroyed in a hopeless inward swirling soup of moulten grief.

I want to tell you that you won't forget, that cosmic clutter and home grown atoms seared themselves into your soul and cannot be unwritten.

It feels wrong to write of present grief here. It feels wrong to write of recovery. It feels wrong to be either - healed or unhealed.

I missed my slot here last month. Almost missed it this month.

Grief hauled at me, made me unreliable. I chose to fail to prove that grief had me in its grip and prove that I had outrun it. But the truth is I couldn't feel it. I was numb. No words came. To write badly is the ultimate betrayal of my boy.

I'm held back and pushed forward by grief, by loss, by the bundle of boy in the paper flat pictures, the boy I grew quite perfectly who couldn't live without tube and wire.

You might imagine that pulled in all directions is unfathomable pain but it seems to bring nothing but inertia and dulled senses.

You don't need me, I told myself, because I am both then and now and neither is helpful. At four years out grief absorbed is of no more use than grief worn smeared upon my person and slathered, unwelcome, on every interaction.

Do you want to know that grief is just as painful 4 years on? Do you want to know that 4 years on I cry most often because his loss is so familiar that somedays I do not think of him at all?

Do you want to know you will forget? Do you want to know you never will?

That is my apology. Grief is endless and full of ends. Grief is circular, linear, long and short, impossible and easy, ever present and constantly receeding.

I'm sorry I wasn't here.

***

This morning my living son, born after, brought me Freddie's picture. We don't speak of him here. We are not a family of vivid gesture and outward remembrance. His photos live in my room and nowhere else. I have not wanted to make this youngest child one growing in the shadow of loss. I've never spoke of Freddie to him.

He asked us who the baby was, seemed to know that this was a baby who had not become a person he could place. And then, with uncanny understanding, he gestured to my candle shelf, to the collection of trinkets and gifts I have bought his brother.

"Baby Freddie all gone," he said.

Yes.

He's all gone.

No fine words can alter that.

4 years or not, it feels a giant of a thing to understand.

I don't think it is ever going to change.

What do you hope for as the days turn to weeks and the weeks turn to years? Do you have a sense of the resting place you grief should have? Or, how do you accommodate your lost baby or babies in your family? And how do you cope when others from inside or outside your immediate family, step outside your coping parameters?

the hardest thing

I have drawn landscapes with words in my journey through loss these past three years.

Baby lost, I lay gasping upon the scorching desert sand; clothes burnt from my back, undefended against the blasting rays of grief. I spread my hands and grains of a lost reality slid through my fingers. There was no shelter, no relief; time as it should have been marched ahead of me like a mirage; my lost boy, my lost life, my lost self.

The hardest thing I ever did was survive the desert. With my back to my boy, I stumbled on, the dreadful knowledge that I was stuck - forever - in the desert.

Damaged and raw I woke to find myself alive and sunken deep inside a sucking, cloying marsh of despair. To wake and find the nightmare still going, the jungle noises of life as grim and terrifying as anything I could dream, the weight upon my chest enough to press the life from me. I wished to sink, I begged to sink; to never hear the sounds that cawed from morning radio like a heartless mockingbird.

The hardest thing I ever did was gird my loins and shut my ears, throw back the blanket and live another day. Again. Again. Again.

The world tilted and we found ourselves on ice; reality biting at frostbitten, delicate extremities. To grieve a baby is to stand alone, perfectly still, balanced and poised awaiting the next tragedy. To barely breathe and await the cracking, yawning sound of deadly cold that will - must surely - claim all that is left of life and love.

The hardest thing I ever did was touch a fingertip to a small white coffin, say goodbye, be polite and brave and GOOD and bargain with the universe to leave the rest of us alone. Please. Just leave us be. Please.

A blizzard hit, my vision fogged and faded and all was obscured; cold, dizzying, grim and suffocating, wiping clean, covering tracks, bringing a clean, white slate with all the mashed and broken earth beneath it. Time passed. I do not remember it. I know each moment lasted lifetimes.

The hardest thing I ever did was live through New Year, leaving my boy behind, losing him forever.

Spring did not bring hope. Spring blossomed and hope faded and the landscape was not fecund and inviting. I found myself wizened, dried up, barren, scrambling over dusty plains and faced with unimaginable climbs. Thorns scratched, dirt stuck in my throat, breath was gritted, dragging.

The hardest thing I ever did was trying again. The hardest thing I ever did was live the months of failed conception, of bitter galling blood and toil.

And then... a precipice. Flat against the cliff, staring down, rock crumbling, skittering away with each weighted footstep. Uncertain, hope, fear, breathless anxiety, the ache of bones and mind. Inching along, one step, two steps towards an unknown summit. Eight months just moment by moment, a ticking time bomb, a waiting avalanche.

The hardest thing I ever did was carry another child and face the possibility of loss again. Such risk, such potential pain, for the hope of a glorious view.

The view. Spread below me, rolling, green, forgiving, gentle. Breathe in, fill my lungs, breathe out. Grasp the moment. Feel the sun upon my face and not be burned. My skin is strong now, strong enough to weather the sting of those grief rays when they touch upon me. But the view... glorious? I see the shadows that my journey etched across it. The dips and rolling valleys hide iced lakes and craggy cliff; grief and I have walked them as reluctant, sullen companions. The distant haze hides dust and desert - and hides my boy. He drifts in atoms of sun and dust and breeze across the landscape.

The hardest thing I ever did was learn to live again, be grateful for what I have, for luck and joy, like people say I should. But without him.

Without him.

What does your grief landscape look and feel like right now? What phases of your experience stand out, either because you weathered them in unexpected fashion or because they were particularly, perhaps unexpectedly, difficult? What is the hardest thing about where you are at this moment?

Community Voices: Grief is...

Today we are very pleased to present two more of Glow's community voices.

This first piece is by Ruby. Ruby writes: My second son Edgar died on the day he was born, 21 December 2012.

There is the ocean we went to to shake out baby ashes from a cliff-top. The ocean at the westernmost tip of Wales, a sublime spot, above a wide curving bay where his brother is digging in the sand and flying a little kite. The kite is up and down, trailing along the ground, bobbing up in the sky, hopping across the sand, tacking out above the line of the cliffs. Rising, falling, turning, falling, flapping, toddling. The boy running about is the only child visible to the eye. There’s no baby brother sleeping in our bright-blue beach tent either. His name is in the sand. I scratched it in with the child-size yellow spade meant for sandcastles. The sun is shining and the waves of the ocean are rushing onto the sands, rushing over and over, shushing my grief.

My grief is another ocean. A wilder ocean, an ocean of raging tears. So many tears left to cry, stretching out to the horizon. An ocean from which tsunamis crash over the established land and crush the buildings out of it, leaving in its wake a scene of devastation and no human in sight; there’s no-one left before that ocean. My grief is a vast, slate-grey ocean on which I’ll never come to shore.

There is the ocean we went to to shake out baby ashes from a cliff-top. And then there is the ocean of my grief.

The second piece is by Christina O'Flaherty. Christina is a psychologist and mother of two boys, with a third boy expected in April. She writes to share the experience of losing Finn, her first son, and the lessons loss has taught her.

Grief, during these last three years since I lost Finn, has been my teacher.  At first, I riled and raged against him, as I did most painful experiences in my life.  I fought the lessons and the process, outraged that my life had been so cruelly disrupted, but my patient teacher persisted.  Sometimes stern, often compassionate, my teacher continued to gently guide me to the lessons I needed to learn in order to move forward.  These were the hardest things I’d ever been asked to learn.

In fact, I confused them with punishment, which in some ways helped me to turn inward for an answer as to why this was happening to me.  But, I couldn’t really be sure the lessons would serve me until, a year and three miscarriages later, I felt I had nothing left to lose.  That’s when I learned to listen; to observe the lessons coming out of the chaos around me, like one of those pictures where a perfectly clear 3D image finally emerges from a mess of dots when you stare at it for long enough. 

Grief’s lessons transformed me and I think that was Finn’s purpose in this world.  I miss him desperately but I thank him for his legacy of lessons and love.

Where do you find yourself--right now--in this ebb and flow of grieving our children? Do you perceive a change in your grief from day to day? Month to month? Year to year? What kind of ocean are you in? What kinds of lessons are you learning?

lost in translation

We sat across from her, an arrangement of flowers and a small analog clock sitting on the table between us.  She was young, only a few years older than myself, pretty with a well-tailored black dress and an almost preposterously large diamond ring on her finger.  Her office overlooked part of a very famous street in Los Angeles where the wealthy spend ungodly amount of money on handbags and diamond-studded watches.  She was a psychologist or therapist, I can't remember which now, that we found via a referral from our OB after George died.  There were five names on that list and I picked hers from the lot solely because she was the only woman. I naively believed that her sex would somehow imbue her with special counseling superpowers.  I should have known better.

Sitting stiffly in the overstuffed couch, we told her all about how our life had gone from blissfully happy to utterly broken.  I did most of the talking (between wiping away tears and my runny nose) while Leif sat beside me and quietly held my hand.  I relayed the events leading to George's death and watched her reaction to it all with an observant eye.  She furrowed her brow at the right times and nodded sympathetically when I had difficulty maintaining my train of thought.  She said all the right things and reacted in all the right ways, yet something about the blankness in her eyes made me feel as if instead of talking about the death of a much loved baby we were discussing my disappointment over being passed over for a job promotion.  It took all of ten minutes to conclude that she was an experienced actor and that she had little empathy for the ugly circumstance which had brought us in to see her.  Forty minutes later it was over and I was writing a check to her for an absurd amount of money, thankful to be done with experience.  

Back in the car we agreed never to go back to see her.

After that miserable experience I threw out all the other counseling referrals we were given and turned to the Internet.  I tried every combination of words to find counselors who specialized in pregnancy and neonatal losses. Grief + infant + death + depression + counseling = the saddest collection of words I've ever Googled.  The results were abundant and spanned the spectrum of mental health workers: from family therapists to psychiatrists and even naturopaths.  I must have looked through those results dozens of times before gathering up enough courage to pick one and make the call to set up an appointment.   Given how badly our first experience went it still surprises me that I somehow mustered the bravery (desperation, more likely) to even make another attempt. 

Thus the Internet threw me a lifeline -like it has done for me on so many occasions since we lost George- and brought me Anne.

Anne was the antithesis of the first woman we had earlier met with.  Her warmness was as welcoming as the first therapist’s disingenuousness was off-putting.  Even their appearances were starkly contrasted.  Instead of an expensive black dress and hair slicked back in a tight ponytail, Anne wore casual white slacks, a pastel sweater and a string of understated pearls on her neck.  She smiled easily and it never felt inappropriate or forced.  From the moment we began talking it felt like a homecoming and for the next eighteen months it became my refuge.

When I first started seeing Her I felt alone in my grief.  As much as I had tried to convey to friends and family how lost I was or how deeply I missed my baby it was a language completely foreign to them.  It wasn’t as if they didn't try to understand but there was something fundamentally lacking in their ability to interpret my words and behaviors in the wake of George’s death.  Once I wrote in a blog post that it was incredibly painful for me to be faced with images of carefree pregnant women and a pregnant friend took deep offense.  It made me feel awful, both because I had hurt someone who had been a good friend, but also because it made so very clear to me how alien my experience was to those around me.  That was the last time I ever wrote or said anything of that nature outside of the safety of Anne’s office (and later the safety of private conversations with other baby loss people) for fear of offending someone who was not fluent in the language of loss and did not understand the consequences of post-traumatic stress.  After a time I learned to hold back my words for fear that they would be falsely translated into insults or that they would make the impression that I was more depressed then I actually was. 

It was incredibly isolating and not just a little discouraging. 

To Anne, when I told her how much I hated hearing about other women’s pregnancies or how deeply I burned with envy at seeing birth announcements, I was completely normal.  To a grief counselor I was just mourning the loss of my baby, my pregnancy, my previous life, and my self-image.  She understood my language and there was no need for me to make any effort to translate for her.  I did not have to soften the edges of my sharp and sometimes cutting thoughts.  Every week I saw her it was an emotional and physical relief just to sit with someone and not need to filter or mold every word out of my mouth to either A) convey how devastated I was or B) avoid making myself sound like a black-hearted monster. 

One of the most valuable things I learned from our time together was how to accept that no matter how eloquent the words I used to describe my grief there was always going to be something lost in translation for those people who were fortunate enough to have so far been spared any real tragedy in their lives.  They would never ever totally understand (how could they) what I was feeling but the good ones worth keeping around would make an effort to try.   She assured me that there would be people that I would find walking the same long and arduous road that I was on and they would not need any translation.  There would be people who understood.  I just had to keep my eyes and my heart open along the way. 

Anne was the first person I came across after George died who gave me hope that I would not be alone in my grief forever. I found those other people she told me I would find, other souls who were slugging through the same muddy road as I was: other grieving souls who would become friends and for whom no translation was needed.  Hope is an amazing gift.

Have you seen a grief counselor?  Was it a positive experience?  Was there someone else who you felt understood your grief when no one else seemed to?  Has it been frustrating for you to have people not understand or misconstrue your words and/or behaviors in response to your child's or children's deaths?