I'm So Happy For You

Babies are appearing everywhere, and the afternoon light is such that I expect for us to be expecting, too. The late-setting sun blasts through the windshield as I turn off the exit to my house. The angle of those rays are filled with meaning.

This is the season of my almost-fatherhood. This is the time last year when all I could think about was everything that I thought was to come.

There were so many plans and hopes in the works. Spring and summer were full of boundless potential and imminent adventures. The full bellies and multi-strollers all around foretold our amazing future, and I was thrilled to be on the cusp of fatherhood.

Fulfillment, success, perfection, they were within my grasp and now all I hold is dust and desolation.

Since it is impossible to grasp dust, and because desolation rots the soul, I have stopped trying to hold anything.

This has become my summer of the willing suspension of disbelief. I'm working hard at accepting the World as it is, and dealing with whatever is exactly in front of me.

I learned that from my parents. My mother has had MS since before I was born, and over the years they have shown me how to handle the impossible trials of their everyday life. Do the next thing first and then deal with whatever comes after that.

Do it right, do it with humor, don't stop until it's done. Don't rely on anyone else. Don't be surprised when it doesn't go at all the way you think it will. Don't give up and don't stop loving the people around you. Those are the lessons they taught me, and I'm working hard at most of them.

I'm stuck at Don't Give Up, though. I know there are people around me ready and willing to support me with their love, if only I would return an email or make a call. The ball is definitely in my court at this point. For phone-tag I am IT a thousand times over.

It is beyond me right now, though.

Reading through the interview below I was struck by how clearly I identified with all of those Phases, but I was surprised in that I seemed to be experiencing them completely out of order.

I feel like I've been through Confrontation and even a little Accomodation, but that Avoidance is where I stew these days.

It is a nuanced Avoidance. I don't stop thinking about Silas all day. I don't pretend that my life is anything that it is not. I know to the core of my being the depth of our loss. Or at least, I know how deep it seems to go from here. I have few illusions left at this point. I'm not avoiding his name, or the pain of losing him.

I am always ready to talk about Silas but I attempt to avoid all external reminders of what we should have.

That list includes: newborns, babies, people that just had babies or are pregnant, talk of the trials of having kids, strollers, carseats, first birthdays, the Internet, driving, walking and being awake. As long as I keep all of that out of mind & sight, I should be just fine. Ha!

Another part of the problem is that I'm starting to feel bad about how bad I still feel. I don't want to talk to friends because it's the same goddam fucking sob story every fucking time. I'm sick of hearing myself sometimes. I'm sick of hearing my soul's lament, sick of my mind devising strategies to fix our broken lives, sick of my heart oozing despair and ichor whenever another scar is peeled back, or a new, surprising wound pierces my defenses.

July was brutal. Three of my closest friends had babies this month and essentially all I could do was ignore them. Didn't stay in bed moping. Didn't drive off to the wilderness and leave everyone behind. Didn't stop working or playing or living. But when it came to those three, they were mostly out of my life.

I kept in contact until the day of birth, but after they each went perfectly, I had to cut them off for the moment. I feel like an asshole of the highest order, but I had to do it in order to save myself.

The idea of even talking to them on the phone to congratulate them, knowing they were holding their perfect new child in their arms, it took the push out of my fingers for every digit of their phone number. These are people I love and care about and all I can do is nothing.

I'm active and alert and fully engaged in most of my life, but the new babies are impossible right now. Once I start thinking about my friends, I think about everything they are doing with their new child and those thoughts completely immobilize me.

I know babies. I love babies. I don't mind the cheesy puke or the weird, wide alien eyes or the tears of hunger or confusion. I used to love babies.

But there is a period of time between birth and 'baby' that I really don't know anything about. By the time I've met most children they were at least a few weeks old, if not months, and I've never had that true newborn experience. I thought it was going to be a special, beautiful time with my son and first-born, but that was not the way it happened. So now, when I hear about a new child in the World, it fills me with a mix of hope and dread and joy and fear that is impossible to parse.

I'm thrilled for the parents. I'm thrilled the child is alive and healthy. I'm jealous beyond words that they have that child to cherish and nuture. I'm terrified by how close they came to living in my World without ever considering how bad it can get, and I'm enraged at myself for my inablity to do anything but look away.

All I can do is say how HAPPY I AM FOR YOU and look away, look away. I look away and try to feel Silas and hate how much his name sounds like Silence.

~~~~~~~~

What is your collateral damage? Where do you feel stuck? Are there certain aspects or phases of grief that you find particularly daunting? What do you avoid? What do you seek out?

warrior mama

When I was pregnant with Dahlia, I was absolutely, undeniably, nothing’s gonna get in my way going to birth my child at home, and naturally. I was even, I admit, judgmental about anyone’s choice to do otherwise – I just couldn’t understand why anyone would actually want to have their baby, on drugs, in a hospital. Without being aware of it, I took for granted that a healthy baby would be the guaranteed reward of my empowered choices – an exceptionally healthy baby who would thrive even more than expected because s/he would come out of me naturally and go directly to my breast, uninterrupted, in the comfort of our home.

Dahlia had other plans. After 32 hours of hard back labor at home and several of those hours stalled at eight centimeters, I made a very clear choice to go to the hospital for an epidural. Six hours later, she was born easily and safely and immediately put on my chest. Four hours after that, having signed a dozen liability waivers to be allowed to leave the hospital early, we were back home in our bed with our new daughter.

I had my healthy child, in spite of her hospital birth. Even then I took for granted the incredible miracle of her health and her life. I spent a good part of the next year working through my guilt around having chosen to go to the hospital and have an epidural. A part of me felt inferior for the choice, and I felt, in some way, that I had failed.

I did it with Tikva too. Even with this child whose life – of any length – I knew would be a miracle, I fretted for a while during her short life about having chosen the epidural. The epidural I told Dave I wanted because I didn’t feel relaxed, and I wanted – needed – to feel relaxed as I delivered my child whom I knew would be unable to breathe on her own, who might not even make it past her birth. Maybe it was my brain’s need to fret over something that really didn’t matter in order to distract myself just a little bit from what was so constantly at the forefront of my consciousness: That my daughter’s life was fragile and unsure, her future – and mine – unknown. That she very well might die, and that I would be forever changed no matter how the story unfolded.

My thoughts have rambled before around the question of how to birth a child and what my choices mean. But it’s not this that is on my mind right now. Though related, it’s something different.

I have read my share of birth announcement emails and birth stories since Tikva came through my life. All are different. All but one have announced the birth of a healthy living baby (or babies). Some were born in the hospital, some at home, some vaginally and others by scheduled C-section for various reasons. Regardless of location, those that told the stories of vaginal deliveries have shared one quality:

Praise of the superior mother who births her child naturally, vaginally, and without drugs.

I live in the San Francisco Bay Area. It is a progressive place, a liberal place, a funky place, full of New Age and yoga studios and locally grown organic produce and raw food vegan restaurants and Michael Franti concerts in small venues. I love it here, it has been my home for 30 years. And I recognize that I am immersed in just a tiny sliver of the way most people in the U.S. – let alone the world – approach life. Before he met me, my husband didn’t even know babies could be born at home in the western world.

Yet there is a certain holier-than-though message being communicated here without being spoken outright, and I don’t think it is just here in California. As the day of Tikva’s birth approaches a year later, I have become extremely sensitive to it. The message tells me:

You are a powerful goddess, a mighty warrior when you have birthed your child naturally, trusting your inner wisdom and strength to guide you.

Because you are a warrior, you will be rewarded with the undeniable manifestation of your choices – a healthy child.

So what am I? What am I if I birth my child in another way? Am I less mighty, less empowered for choosing to have an epidural? Am I less of a warrior because I birthed my children in the hospital? Do I trust my inner wisdom less?

And what is Tikva, my child who died, whose body was too fragile to live for very long? Any less a gift? Any less a manifestation of the most incredible grace and magic life has to offer?

And what of Dahlia, my precious light who was born healthy, in the hospital, with an epidural?

See what I’m getting at here?

How about this for warrior:

I birthed two babies, and carried three. I said goodbye to one too soon at just 10 weeks of pregnancy. I carried Tikva for 20 of her 40+ weeks knowing that she might not live. I moved halfway around the world to give her every fighting chance. My relationship with my husband grew deeper and more solid throughout her life and since. Together, we cared for Dahlia while she, too, loved and lost her sister.

I loved my daughter fiercely for every day of her short life. I lived with grace, connected to her and to God in every moment. I loved her so completely, so unconditionally, that I knew when it was time to let her go. I held her as she breathed her final breaths. I felt the moment when her spirit left the beautiful body that I held in my arms for the last time. I stroked her soft cheek. I held my daughter as she died.

Am I less of a warrior because of how and where I birthed her? Am I any less her mother because she is not here in my arms?

So much of our collective identity as women is tied to being a mother. No wonder all of that comes into question – in our own eyes as we look at ourselves now, after loss – when our child dies. I can only imagine how much more so when that child dies before s/he is born, or during or shortly after birth.

But we are no less a warrior, no less empowered, no less mighty and powerful and connected to our inner strength without our children here to prove it. I never knew the depth of the warrior I could be until Tikva entered my life, until she departed. I never knew the grace I could live from was possible before her.

I think we are asked – in the moment of loss – to tap into a warrior in ourselves we might never have known was there. Because to mother a child who has died – to say goodbye over and over, to let go a little bit every day for the rest of our lives – is HARD. It is powerful, mighty, full of grace.

The work of a warrior like no other.

That’s what’s been on my mind lately when I think about birth.

That’s what I remember when I read another birth story, when I doubt for a moment the true warrior that I am.

Yes, I am a warrior too.

And so are you.

.::. .::. .::.

What makes you a warrior? Do you believe that you are? How did you approach birth before losing your child, and now?

Birthday pass

Birthday pass

Today is their birthday, and the vision of two years ago has taunted me on continuous replay. He lies fused and lifeless, purple, swollen, covered with wires and tubes, a vision of pain and of the failure of a womb. ... I’m waiting. I’m waiting for you to screw up your face and say No. No! It was not your fault. You didn’t do anything to cause this. Stop it. You did not fail. ... ... You’re totally missing your cue. And I adore you for it.

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Guilt

Grief is a tidy little word on the face of it -- it seems to suggest that we're just humming along, mourning our lost children.

Easy peasy.

But we all know too well that grief is a non-native, invasive species, wrapping itself around other parts of our life and suffocating them. It's a balloon that inflates, until it encompasses so much more than death itself. I often feel like I grieve multiple things: my old body, my old self, optimism, little-f faith, confidence in medical testing, unbridled joy, the unpleasant pruning of family and friends in this debacle, the family of four I envisioned. Oh, and my daughter. What I really want, I suppose, is the freedom to just miss my daughter.

Then there's the extraneous stuff that complicates grief. Multiplies and magnifies it. Doubt. Confusion. Uncertainty. Could be religion or parenting, could be infertility or relationships.

Could be guilt.

The first thing -- the absolute first thing -- I said to my husband after The Conversation with The Specialists where they told us Maddy was dying, and how did we want this to happen, and left the room so we could have a moment together was:  I'm Sorry.  

I'm not exactly sure what I was apologizing for -- marrying me? meeting me? falling in love with me? -- because when you get down to it, I had nothing to do with Maddy's death. Regardless of who's right in this mess and whether Maddy died of some never-before-seen genetic disorder or an infection circa 25w gone madly awry and then correcting itself, I float above rather free of blame. I had an extremely monitored pregnancy, and the umpteen ultrasounds through 32 weeks which never detected a problem. I never had a worrisome symptom. I never had contractions or leaking that needed medical attention. I had amnio because I was maternally geriatric and it was normal. I didn't miss signs, I didn't skimp on care. There was no date where I could have stepped in and said, "Something is wrong," and something could be done where everything would've turned out alright.

There is only the beginning. For me, what residual guilt I have over Maddy -- her awful little life and her death -- lies at the very onset of her conception when I said, "Let's try for a second." That's the only point I could've stopped the train from going off the rails, by not letting the train leave the station at all. But like someone who was broadsided by a car that missed a stop-sign, that's rather like saying, "I'm sorry I went to buy groceries." "I'm sorry I decided to go to work today like I always do." "I'm sorry I went to pick up our kid at school."

And so for the most part, I've let it go, and I swim this complicated sea of grief rather guilt free. I realize in that respect I'm sort of an anomaly in these parts, and that many of you feel guilt surrounding your baby's (babies') death(s) like a shoe on your throat. Missed signs. Care that at the time seemed plenty attentive but in hindsight seems sketchy. That 20-20 vision where you now know exactly when things started going poorly, and maybe if you had known, and could've gone somewhere, and convinced someone, and done something . . . .The feeling that if, if only, what if.

And I often read these posts and want desperately to step in and turn guilt off like a faucet.  It's moot! I scream at my screen. It's happened. And it's only complicating things. Let it go. It's not your fault.

But there's nothing I can say, because I know it's not for me to say it. It's for you to unravel and marvel and wonder as you stare at the pieces in your hands, wondering how you could've missed how they all fit together. It's for me to abide with you, and listen, and comfort, and take pain in your constant turning back of the clock. If there's anything I could do for a fellow parent grieving, it would be first and foremost, to erase the guilt. To separate it from your problems, set it on fire, and watch the smoke drift away. To eliminate that one feeling that makes grieving so, so much worse.

Do you feel guilt regarding your baby(-ies) death(s)? How do you deal with it? What if anything makes you feel better about it, and can you envision a time in your future where you let it go?

journey's end

My father and stepmother were in town, so they took me out to dinner at a restaurant a good deal more upscale than the ones I usually frequent.  The menu, printed in copperplate gothic bold, featured a smörgåsbord of resolutely non-kosher choices -- Curried Tasmanian Crabcakes, Ginger-Wrapped Skate, Pork Loin Dulce de Leche.  I asked the waiter what the soup of the day was, but he said he couldn't tell me because "The chef personally creates it based on what he finds freshest at the market that morning." 

We reviewed my nephews' soccer season, wondered why my sister never seems to be able to find a job or a boyfriend, critiqued the recent Supreme Court decisions on money laundering, and lamented the housing market in London.  

At the end of the evening, as we were saying goodbye, my stepmother reached out to hug me and said, "We were so worried about you, Niobe.  We didn't even know what to say."

"I'm fine,"  I said.  And I meant it.

After the twins died, I read a lot of articles about bereavement and mourning.  They said that the journey of grief goes on for a lifetime.  They said that you never truly get over the death of a child.  They said that the child who died will always have a special place in your heart. 

They didn't say what to do when you come, unexpectedly, to the journey's end; when your fingers fumble, searching for that familiar hole in your heart, only to find it's no longer there.

From the Gut

I read Deborah Davis’ Empty Cradle, Broken Heart: Surviving the Death of Your Baby about 4-6 weeks after Maddy died.  I found it . . . redundant.  I guess it was nice knowing I didn’t exist in a void, but confirming that I’d be feeling . . . exactly what I was feeling?  Thanks?  I guess?

But there was a gem in there that helped me significantly, and rolls around in my head to this day.  I’m sorry I can’t quote it verbatim because I sent off my book to another grieving mom, but it went something like this:  it’s actually a good thing that the major decisions we make during the time from hell are made while we’re sleep deprived and loopy and trying to juggle a million different balls and exhausted from crying because that way, they come from the gut.  Davis suggests that it’s a good thing we don’t over-think the major decisions, and that instead, because of our circumstances, they come from somewhere subconscious rather than based on intellectual reasoning.

If I remember correctly, Davis used this statement in the context of removing life support from a child.  But I really think this sentiment applies to a lot of decisions we made under duress, no matter the specific details around your baby’s death.

We did in fact make the decision to remove Maddy from life support.  But it wasn’t even a decision, really, certainly not one that keeps me up at night.  She didn’t have a nervous system to speak of, her heart was only beating thanks to machines, and she was fed through tubes.  At six days, she was given a prognosis of 48 hours -- on the machines.  And after seeing her almost crash (on the machines), twice, surrounded by strangers, we decided that if nothing else, we wanted her to go peacefully and in our arms.  The decision here was really what kind of death we wanted for her, not whether to grant it for her or not.  And I’m more than positive we made the right choice given our grim options.

But we made some other decisions that week:  we moved her to Children’s Hospital from Delivery hospital, where we were told that they might be able to offer us more in terms of a diagnosis.  This was by no means a life-saving measure, and our only hold-up on this particular decision was whether Children’s would honor our wishes and not take life-saving measures when we didn’t want them.  We were a bit leery of the bright and shiny technology, but they were more than sympathetic and accommodating.  We decided other things too:  to have the nurses take pictures.  Not to have Bella see her.  (It was a bit complicated anyway, since Bella wasn’t feeling well to begin with.  But we didn’t force the issue.)  To name her our first choice of girl’s names even though at that point we finally named her on day two we knew she would die.  To take footprints.  To swaddle her for her death instead of dress her.  To have her cremated.    We didn’t have a service.

I think an outsider might look at these “decisions” and analyze, but wait – if you were that mentally exhausted, don’t you think the doctors and nurses and family were somehow guiding you?  Leading you on?  Making your decisions for you?  Putting words in your mouth?  Last year in group therapy I met a woman who told of a scene when her extremely ill two-year old (he lived to a week shy of his third birthday) crashed at the hospital, with her in the room.  The lights flashed, the bag went on, CPR administered, and the line kept steadily flat.  For a good few minutes.  Her son had been sick since a month after his birth, his prognosis was grim.  The doctor looked at her with his arms in the air and the knowing look, the look that says, “I think this is (finally) it.”  And she said, without hesitating, “Keep trying.  It’s not time.”  And they worked, and a few minutes later, the line started bouncing, and her son zoomed back.  And she bought a few more months with him.

For some reason this story comforted me greatly.  She went with her gut, and she was right.  And when I told her my story of my decision to remove Maddy from life support, she said I was her hero – that she couldn’t imagine being faced with that option and having to make a decision.  But you did, I said, you did.  You did in the face of doctors telling you it probably wasn’t the right one.  We both did.  From our hearts, our guts, and we don’t question them.  We were both right.

I’m not entirely comfortable with all of my decisions, especially not having a memorial service.  I just couldn’t.  I couldn’t for the life of me think of anything to do that seemed remotely appropriate, anything to say.  I was so angry and tired and heartbroken it just sounded like salt in a wound and following a script that I didn’t want to be a part of.  It didn’t sound like “closure,” and it didn’t seem like nearly enough for what this poor little girl went through.  And sometimes I regret that we did nothing – that I should have done something to remember, no matter how painful.  Sometimes I wonder if it would’ve made any difference in how some of our family behaves if they had been forced to acknowledge in a public forum that she was here and living and now she was dead and gone.

But, know what?  I really think I made that decision for a reason.  It was my gut talking.  It’s what flew out of my mouth when I was asked, and what I felt in my disoriented, barely vertical state.  And I think my mind was trying to tell me something about my limitations, and what I could handle at the time, and ultimately what was right for me.  For all of us.

I’ve seen women here and elsewhere struggling with the weight of their decisions already made:  to terminate pregnancies in the face of mind-blowing devastation for their babies, or themselves.   To name their dead children, or not.  Whether they held their children long enough, or didn’t hold them at all.  Whether they agreed to autopsies.  Whether they had services.  Whether they should’ve cremated/buried, or vice versa.  And as I told the commenter, I think given the extraordinarily shitty circumstances and the mental capacity we have at those moments, these decisions are made from our guts for a reason.  I don’t like to acknowledge the tiny voices from within because it sounds like I subscribe to teh Crazy, but let’s face it, there are voices that protect and warn:  don’t touch that, it’s hot.  Don’t go that way.  Change lanes, now.  And sometimes, as a parent, that’s the only way to make the tough decisions:  to listen to the tiny voices emitted from the heart, not the mind.  

I recognize fully that some of us were not given decisions to make; that medical personnel or family intruded and made them for us.  And I find that deplorable, and I’m so sorry if that happened to you.  That’s certainly a subject for another post.  But for those of you were given choices, which really weren’t – choices where A was heartbreaking and B was downright shitty – it’s probably best that they were made in the heat of the moment, while you may have been in a hazy drug-induced coma, or on your umpteenth night of no sleep, or after crying your brains out for 12 hours straight.  And now we simply have to breathe through them and recognize that our subconscious was probably trying to tell us something.

Easier said than done, I know.  Easier said than done.