No place called home

Four walls, a floor. A roof, and a door. Doors leading to other four walls, windows leading to the other side, the outside. Maybe even a window looking up at the sky? All this, and our things, our dreams, our moments, our memories.

This is what made a home to me. Real estate can assess location, square footage and price all it wants, all I wanted were walls, a floor, and a roof. A few doors and a few windows. All I wanted was a place for my children to grow up in, to make mischief and messes in, and to spread their wings from. A vagabond my whole married life, I wanted permanence, mundaneness, busyness, tiredness. Just an ordinary life bringing up, running with, holding up, my two children.

The walls fell down. The floor cracked, the roof gaped open. The door led in cold, frozen air. The windows were fogged with the breathlessness of death. When the carnage was over, and death left our broken little family stranded in the dark, all that remained of my home was the window to the sky. A suspended window that I look out of every day, toward the sky. Toward the new home of my little explorer.

Do Raahi-s, do explorers, do those on a constant, eternal journey, ever have a home? Surely there is a symbolism in her spending her whole life in a hospital, traveling with us after coming to live with us, and dying in a hotel?

We have spent this past month and half looking for a house to buy. Our means are limited, our list is not long either. We don’t need a lot of space. We just need a place to call our own.

And yet, after a day of looking at homes, making and comparing lists, and focusing on little and big things, as I lay in bed one night, I wondered, is there a place I can really call my own? Should there truly be the security, the certainty of a home for Raahi’s family, when they have been through the harshest insecurity and uncertainty of life itself? Our smallest, newest member, true to her name, never claimed anyone, anything as her own, and lived and died in two temporary places, from where people come and go, and never stay for long. She did not have a room assigned to her, nor a dedicated nursery awaiting her big arrival. Depending on her graduate student father’s new employment, however, her parents had rented the biggest home they would ever live in, in a place far away from her birthplace, and the hospital she was born and lived in.

Her mother, rocking Raahi every day on a hospital-provided rocker near her crib in the NICU, with the clock ticking to the time she would have to put her baby down and head home alone, wished for no new furniture, but a rocker, in her new home. She dreamed of placing it next to the big glass door leading to the backyard. There, after her husband and son would leave for work and school, she would sit and hold Raahi, hold her all day long. She would get up to change and feed her, and sit back again. She would sing to Raahi, play with her fingers, look into her big bright eyes, move her fingers gently on her face, her neck and arms, and tell her that she is finally home, never to go anywhere again, never to be away from her family again. Her mother had promised Raahi, putting her back every night into her crib in the hospital, that she would never put her down at home, and hold her so much and so long, that they would both forget they were ever apart. She had dreamed of taking her little baby out on walks, and of placing her on a mat in the backyard. There, she had promised Raahi, they would have their own little picnic. Raahi would play, lying down, the warm sun on her cheeks, the gentle breeze blowing her black hair, and sometimes making her bright eyes blink, as her mom sat next to her. In the evening, after “the boys” would come home, they would gather near the kitchen, and Raahi would play with her brother, in her playpen, as Ma and Baba watched and cooked dinner.

That was my dream for a home. That was my dream home.

Nine days before our rental home became available, Raahi died in the hotel. She never came to this home, and I vowed never to sit on a rocker again. I seldom go near the door to the backyard, and I do not like the warm sun or the gentle breeze on my face or hair anymore. Her few things were placed in a box, her playpen never unpacked from the move, and they were all stowed away in the guestroom closet. There I sometimes sit, closing the door and liking the darkness and the closedness of the closet. I often stop at the driveway, and look at this home, thinking how it can be home if she never came here. I often wonder if I would have been able to live here, if she had died here.

Owning a home is a big step and a lifestyle change. “You don’t need to compromise, you have to be happy in it,” chimes our confident realtor. She often comments on how easygoing and “reasonable” clients we are, liking most things, accommodating others. She knows about Raahi, and is patient with us not knowing how many bedrooms we need in a home. “If I were to have another baby” is a sentence I utter during every showing she arranges for us. Even the uncertainty of a future pregnancy seems to be a stronger determinant of our needs than the reality of a lost child. Raahi is never assigned a room. She has no need that we know of.

Here, in our quest to plant our roots in a new community, I feel uprooted as Raahi’s mother. I, a true gypsy who felt unsettled her whole life, had come home with my daughter. My explorer had settled me. Then she left alone on her voyage. Am I true to her legacy if I settle down? Can there be a home for us when she is on a journey?

Four walls, a roof. A floor, a door. A few windows, one always, always opening to the sky. A place to live and grow old in, and a place to house my broken family. Maybe a refuge from the storm, maybe a hideout from the outside world. But never to fill out the empty space, and always temporary, always by the road, always incomplete.

Never a home.

What thoughts did you harbor about bringing up your family in your home? What does "home" mean to you after the death of your child(ren)?

what she stands for

I was there. Right there. Within an inch. No, on the spot.

Precisely, undeniably, absolutely my dart was in the center of the target. That red center, that renders all the surrounding rings meaningless, as if they are merely decorative, their presence adding mere circumstantial detail to the act of throwing a dart. You miss it by a ring, or you miss it by an inch, you have missed it. And I did not. I had set a target for myself with regards to my family. Not consciously, but very, very cautiously. I wanted my second, and last, baby, before my son would be four. I wanted to complete my family while I was still in graduate school. And for the first time in my ten-year-war with my luck over my reproductive wishes, I hurled the dart on the spot, and got pregnant effortlessly at the beginning of the fall of my second year. I would have her right at the start of a year-long fellowship that would allow me to stay home with her. I would have her at the end of two years of staying apart from my husband. And most importantly, I would have her and complete my longed-for family of four. I was done. I could move on. I could make plans. I could focus on the career I had forsaken for ten years. I could focus on raising my children, and be the ‘whole’ mother to them I had longed to be. I was done making babies or trying to make them. I was there. I had hit the bull’s eye.

So accurately, that I was blinded by the beauty of it.

I stepped in. Hesitant, unconvinced, nervous. I could not believe I was one of them. Oh, finally.

I had wondered often how high the fence surrounding the playground was, willing even to swing my feet over it, only to feel once what it was to belong. A poor little girl, who had been standing outside the playground gates, longing in her eyes, for years. We all know her, passing by a neighborhood playground, many of us have seen her. A girl in rags, with a dark, unclean little face, bright eyes, dirty hands, hair in lumps, holding on to the wires in the fence. Eyeing the kids playing in the playground, and the candies in their hands they wanted and got, with pain and hope in her eyes.

And yet, on that autumn day, the door opened to me. Somehow, I got to come into the park, and with trepidation and disbelief, I felt like maybe I was indeed one of them. Someone handed me a candy, but I was told that I, unlike the other fortunate kids, would have to pay a huge price for it. I was willing to do anything to have a taste of the candy, to have a taste of belonging. I went through fire with the candy held firmly in my hand. I reached the other end of fire, and the candy was snatched from me.

I was thrown outside the park again, and the world didn't even look back at me, lying there in the ground, crumpled like a piece of discarded paper, my clothes still warm from the fire, my face covered in ash and soot, hot tears rolling down my streaked cheeks, my heart heaving from the fall. I missed the smell of the candy, and would happily cross a few thousand fires again to hold it again within my two fingers.

But I cannot. I was never one of them. I never belonged. It was a charade, I was only a clown, meant to entertain, meant to be made fun of. To be handed a coveted prize, only to be made aware what it is like to never, ever, be able to have it.

But I was there. I belonged. Only I came so close that I was burned by the fire.

I saw a butterfly. I believed it was there, fluttering away within the crevices of my belly, around me in the expanse of my dreams. I believed it came from me, and I believed it came for me. I let this thought, this faith, flutter in me too, that it brought beauty and freedom to my life, and that all would be well now. After years of warring with an adamant and invisible destiny, that seemed to be harboring some ancient and strangely esoteric grudge against me, I felt free from its clutch, free from the diabolic predictability of nothing ever working out. In a conscious, tactile moment of certainty, it felt wonderful to finally cease to be cynical, cease to feel trapped by unseen forces.

Finally carrying the girl I had always wanted, I began to believe in what had increasingly become an unattainable fairytale for me – that I could be a very ordinary woman now, with a little family of my own, able to live with my husband under the same roof. I did not care that this meant I would be severed from my work environment again, all I cared about was that my girl was here, we would be together, all would be well. I trudged on with the pregnancy, alone with a preschooler in the Chicago winter, looking ahead at summer, when my family would be complete, and the light at the end of the tunnel would lead the rest of our way.

I believed in my life. I soared high in faith. So high, so high, it unraveled me, bit by bit, on the crash down.

A feeling of having achieved the target of completing my family. A feeling of belonging with the more fortunate, who got what they wanted, especially in matters as natural as motherhood. A restoration of faith in my own life, the faith that everything will now be alright. My little girl, apart from being a beautiful, bright-eyed, intense, fragile little person, was all of this to me. She stood for the fulfillment of achieving my target. She stood for the patience of waiting for my turn to belong. She was my symbol for the faith that things can turn around in one moment.

She was here. My strength, patience, faith were here. For a few moments of music and magic, my fairytale had come alive. Only to turn into a darker tale of blank horror.

I cannot remember what it was like to not hit the target, to feel like I don’t belong, or to not have the faith in my life. And I cannot forget how, even as I was carving out her place in my life, in our family, I could see the coming together of my whole life, my deepest emotions and values, in her.

No, losing her is not the meaning. Having her is.

What do(es) your lost child(ren) symbolize in your life? How has having, and losing them, altered the meaning (or lack thereof) you ascribe to life?

The train brother and sister

This post is about my older living child. If you are feeling sensitive about others' living children, please skip this.

I am a boy. She is a girl.

I am big. She is small.

I am her brother. She is my sister.

I am the Metra. She is the El.

We were three. Now we are four.

Gender. Stature. Numbers. Opposites, new formations, favorite things, references. The unequivocal, irreversible way a three-year-old’s awareness of self was cemented, and his knowledge of the world expanded, as we announced to him gently about his unborn little sister.

Days later, we stuck two little Lego figurines – that of a little boy and a little girl – to a yellow Lego platform. The boy wore a hat, the girl had pigtails. They were my little son and my littler daughter, and we were very proud of our favorite ‘sculpture’. As we were fulfilled with our little children.

The Lego figurines still stand on my dresser. My children’s Lego avatars are together there, close to each other, on the same plane, in the same world. And around them plays a little boy, alone, his eyes not even daring to look at the figurines or claim them anymore. Now he calls himself “the boy who doesn’t have a girl.” Now he doesn’t want to grow up, turning his head side to side whenever someone calls him a ‘big boy.’ But even now, irreversibly, in his beautifully numbered world, we are four. When I burst out crying because he says that he always thought she was going to come out of my tummy and play with him, but she left without playing, he instantly assures me from the backseat, “Don’t cry Maani. I know she is always with me.”

Where do I begin this story of love, who do I tell about them? About a little boy and his undying love for his dead sister? What should this story be about? Should it talk about the truncated promise of camaraderie and companionship? Should it talk about love, pure and strong, that he poured from his heart? Yes, maybe. Maybe this story is about all of that. Yet, along the way, it becomes a murky tale of destruction, betrayal, abandonment, of meaningless loss. This story is about unfulfillment, of breaking apart, of having all this love but not having the one to give it to.

And then, this story is about a journey. Of a train brother and his train sister, running on parallel tracks. Never to meet again, never able to touch or hold hands. But always running together.

We rage on, angry, livid, that this happened to him, that our baby is having to unlearn all that he learned, and walk backwards at a time when the only road for him should be the one ahead. We are heartbroken that he was made to lead, and then left alone midway without a sense of direction. We watch helplessly as he eyes friends’ siblings longingly, coming home to tell me someone’s ‘baby is growing teeth,’ or another’s ‘baby is walking and falling down.’ Then we talk about what his sister would have been. Would. Have. Been. You would think it is too much for a little boy to imagine. It is.

But he smiles as he imagines “Bonu walking and falling down, walking and falling down.” He looks at my lost eyes, and smiles wider. I wonder if he would have smiled like this if she were here, walking and falling down. She. Were. Here. You would think it is too much for a mother to imagine. It is.

Then we travel together to what-if-land, stretching our imagination as far as it would go. Yet, it never stretches to reality, bouncing back like a big colorless knotty yo-yo. The imagined shapeless vision lays bare a very defined and empty reality. So we let our minds come back, shaken, frozen, broken. We let our imagination break away and freeze up, little by little, as we wander back to what-is-land, still smiling, and never looking away from each other’s eyes.

Those who know and love Aahir often tell me how he has had to grow up in the past year. That is partly true. Aahir, who is my knight in 5T clothes, grew up too much, too soon, long before Raahi died. He watched his Maani cry the day Baba left for Columbus, and there were still three toothbrushes in the caddy. They hugged and talked about her fears for Bonu, and he watched her make countless trips to the hospital alone. He grew up into a sheltering tree the morning he found his mother scared and needing to go to the hospital, since Bonu appeared to be coming that day. Sleepy-eyed, yet wide alert, he offered to wipe the spilled milk at breakfast, and again they worked as a team, he the fearless comrade, hurriedly putting on his shirt, she the tireless fighter, getting his bag together. When he said that he loves Maani, Baba and Bonu, as Maani buckled him into his carseat to go to his school, and then to the hospital, her eyes were full and her mental reserves empty. She desperately hung on to his faith, as hers was gone. He was three years old.

Those three-year-old hands would pull Raahi’s rolling bassinet to a private room we were finally allowed to bring her to, after her second surgery. His toes would get hurt every day, as the wheels rolled over them. He pulled on, never looking away from the bassinet. At the hospital, he stayed way past his bedtime, his eyes fixated on his little sister. He often fell asleep on the couch, waking again when it was time to go, his sleepy fingers pulling the bassinet back to the hospital nursery. All of the nurses knew Raahi’s big brother. All of them said he was the most caring big brother a little sister could ever have. When we would visit her by ourselves, they would all ask for my “big helper.” They didn’t know that he was less a helper and more a sustainer.

His “Big Brother” shirt hung in his closet, waiting for the day he would bring her home. He wore it for the first and only time, on the morning of July 15, 2013, as he danced around, readying his trains to welcome his baby sister into his home. He pulled at the “standy,” the feeding bag pole, at the hotel and the airport during our move, and ran ahead of us, alerting everyone, “Watch out, watch out! My little sister is coming!”

In the early morning eight days later, all he could do was scream. “Don’t hurt my Bonu Baba!” as a distraught Som gave CPR to an unresponsive Raahi. “I don’t want to go Ma!” as I pushed him into the neighboring room in the hotel. I could hear him screaming from behind the closed door, in there with strangers, as a war was raging outside. My comrade, my warrior son.

After we brought him back from a friend’s house that evening, he was quiet. He didn’t ask any question about his missing sister and the missing swing he had put together with Baba two days back. He lay next to me, ears perched like a wounded deer, sometimes holding my arm, often curling closer. He listened intently over the pouring waters as I sobbed in the bathroom. “Maani is crying,” he would alert everyone.

In the following days and weeks, Aahir got to know that his sister had “flown away,” and that he was never going to see her again. He remembered the little box in his chest, which housed the trains in Evanston and Tiki Mashi (my friend Katie), wondering if Bonu will be living there from now on. I had told him that everything and everyone we love live in a little box in our chest, and we carry them everywhere, when he was heartbroken at having to leave the Metra, the El, and Tiki Mashi back in Evanston. And I had said that the trains are going with him. “The Metra is Aahir, as it is big, and takes serious, heavy steps. The little colorful El Train in Raahi’s favorite purple, the color of my university, is Raahi herself. It flits by next to the Metra, hurrying along, running fast, just like she will soon!”  Aahir loved to think of himself and Raahi as the train brother and sister, and from then on, he would often talk about the many journeys they would take us on, and how he would always run ahead of her, showing her the way.

We didn’t know that the littlest train would outrun us all in four days.

A week after Raahi left, Aahir asked me, “Has she gone on to her next station Maani? Why can’t the Metra go there?”

I ask myself that question every day, and try to understand it. Was this earth one of my little explorer’s many sojourns, was her brother her fellow traveler only for this one short journey? Did she know how much we loved being on this journey with her? Has she gone on to her next station? Is she saving us all a seat on her train?

I don’t know. I know that right now, we’re on the magical Metra. We tell him every day how much we love riding with him. We watch every day as he gazes into space, still looking and wishing for his colorful little El train to run by his side, and the emptiness, the meaninglessness of this drive clouds his eyes. Then he smiles back at us, and takes us on a spectacular journey, holding my hands tight, leaning on his father. Showing us what lies ahead, and what comes along the way.

We wave the flag, clear our throats, and blow the whistle for the train brother and sister.

How have your living children responded to their loss(es)? Is there any special imagery/story you have created or found that helps them address the absence of their sibling(s)? What have you, as parents, learned about them from the way they are growing up with and despite loss(es)?

a home for my sorrow

We are honored to have Aurelia of Losing Chiara as a guest writer today. Aurelia is a mother of 3 children, 2 living. Her daughter Chiara was born still in August 2012. She writes, "22 months into this grief I find myself still searching for ways to incorporate her into my life, to honor her memory."

A cemetery is a good place

to take your sorrow.

Even if the one you grieve is not buried there,

you are still in such good company.

Monuments to lives and loves all around.

Widowers walking the grounds for exercise,

and to be close to their wives.

I walk past the graves,

read the names, do the math.

I am looking for the children,

the babies.

Some are all grouped together in the baby garden.

Chimes and whirlygigs flying in the breeze.

Tiny stones,

most with just one date on them,

a birth and death day.

Some are within large family plots,

“to our sweet angel Silvio”

“our daughter Lizzie”

“our beloved baby”

now all cradled in the earth with grandparents, aunts, uncles.

Some are not named, an inscription on a bench for all

“children known only to God”.

And what of you, my darling girl?

Your ashes reside on a shelf in my house,

but I feel you in these places.

I carry you, my love for you, my sorrow for you,

everywhere.

Here in the cemetery where I learned to ride my bicycle as a child,

where my grandparents and great-grandparents are buried,

my sorrow feels at home.

Do you visit cemeteries? Do you find any comfort there, whether or not your baby is buried in one? Are there other places where your sorrow feels at home, places outside your home where you can be at present with your grief?

Here. But where?

A scream. A bloodcurdling, earthshattering scream.

A stare. A lost, opaque stare.

A shudder. A stranded, unforgetting shudder.

The first emerged – is there a word in any language to describe what it did? – on a July morning last year. It came from a flight down from where I was. It came from the center of the earth.

The next has stuck, to walls, floors, ceilings, grass, roads, the sky, and often even my face, every single day of this past year. It is plasticky, and has a shape. It is not colorless either. It seems to be drawing things in, but actually wants to let things go. Everyone. Everything. Go. Go. Go.

The last, a bodily movement. Like a snake in unsuccessful hibernation, wriggling its way out of crevices and holes after a winter of painful alertness, unsure of where to go. It is an earnest attempt to remember, and a desperate attempt to forget, all at once, all in one.

These are expressions. Or their absence. That have come from, and crept in, my husband of twelve and a half years. A bereaved father of a year.

He found her dead. He laid her to rest. He goes to the cemetery. He works. He reads to her big brother at night, and tucks him in. He takes care of me.

He screamed. He stares. He shudders.

The words I cherished the most from my husband for the entire nineteen years of knowing him were not “I love you,” or “Will you marry me.” They were “Come here.” He whispered these benign, almost mundane, words to me in a moving train, lying on the lower bunk, half asleep, as a cold January day in 1997 broke outside. Teenaged college students, we were on a clandestine trip to another part of the country, escaping our reality that had been rattled by the sudden death of two beloved friends. We needed comfort, and a change of scene, so my mother secretly sent us, then friends and no more, to my cousin’s house near the west coast of India. The thrill of leaving friends and family in the dark, and the excitement of what lay ahead was a heady, almost unbearably explosive feeling. And yet, on that first morning, as the train blazed through the countryside, all was quiet. Unknown, unborn. I woke up in the rocking train, and made my presence felt by reaching down and touching his arm. He opened his eyes, and looked at me as if from a million years away, and yet within a finger’s distance. “Come here,” he whispered with a fluttering smile.

“Come here!” He screamed.

Those exact words. The words that had been sacred, pure, so fragile it almost scared me to remember them. Eighteen years later, on a July morning in 2013, the same words that once weaved our lives together hurled back to me again, to unravel it, strand by strand. They sounded like a visceral grunt, a roar, a call for battle, for disaster. They were the stricken groan of a hunted animal, moments before its fight, its life, is over. The words, the scream hurtled me into space, and I, with my life holding on to my heels, came tumbling down the stairs. The day was breaking outside, and all was quiet again. Known. Dead.

Over the next few hours, and then days, all I would comprehend would be my husband’s words. And his eyes. The same eyes that brought our lives together by asking me to come to him. Forever glistening in a dusky face, and often bloodshot when tired, those eyes have been my Polaris. They were the first thing I now saw in the hospital room after the police officer drove me there. They were red. I saw Raahi, in a pale white bundle, on the distant bed. I collapsed.

“No more knives on her,” he said, declining the autopsy. In the room they took us to, as the ER nurse still held my hand, I remember his words. Back at the hotel, his invisible arms were around me, as I lay in bed and he talked. To social workers, policemen, funeral home people, friends, family, and most of all, he talked to our son. His invisible arms. The invisible umbrella.

He decided that two days later was the day. She would turn three months old that day, it was another Thursday, her birth day. I could not decide if I could go. Again I remember his words, telling me not to, as if they came from a faceless crevice. A gurgle of invisible but omnipresent waters, flowing underneath the rocky surface, the jagged edges. They flowed, the words. And yet they were stilted, like water entering, and then flowing out of, fissures. They sometimes disappeared into the hollow of his mouth. During one such act, I began, “But how can I not …”

Now the waters roared. They poured out with a conviction only those set free but wanting to be contained can enforce. “No, you will not go. You don’t have to, and you can’t. Stay right here. Stay with how you know her. That is not her. Look at me. I don’t have a sense of smell or taste anymore. I can only smell her from the CPR. I can only taste her.” The bloodshot eyes, dead, and all-seeing. The waters of clarity, the powers of a storm, gushing at me, pulling me in, holding me in place. Bobbing, bouncing, but in place.

What place was that! What was the “here” my husband no longer wanted me to leave, as he drove our daughter’s tiny casket to its resting place? Just like I had touched his arm from the top bunk of a moving train, wanting to be one with him, he now took me in by placing his palm on the glass windows of the car as he stopped at the driveway for a moment. I stood up from the chair on the funeral home porch and floated a few paces, holding out my hand. Our eyes met. Our hands met. He did not ask me to come, he wanted me to stay. Stay away, stay apart, stay far from the abyss that he was creeping into, all by himself, alive, wide awake, wildly alert.

And yet, we were together. In a new place, unmeasured by distance. Our last “here” with our daughter. We couldn’t ask her to stay. She didn’t ask us to come.

Over the past year, Raahi’s father and I have grieved differently, at a different pace, in a different way. And yet every week, there comes a time when he carries an invisible me, unable to walk, but eager to be borne, to a patch of grass, and sits with me there, our new “here.” He observes and memorizes how the grass is growing into and becoming one with the surrounding ground. He tends to it, planting a pinwheel, organizing a few sticks to mark the space, feeling the wind he always wanted her to feel.

Back home, he shudders often, as if his body disperses his horrific memories into the air around him, and his mind, invisibly, forcibly, desperately, gathers them back into the broken shell he now is. He stares blank with the same eyes, now blunt and lifeless, their brightness inherited by, and forever gone with, a beautiful dusky little girl. His facial muscles taut, his posture gaunt, and his hair standing on its roots, my daughter’s father walks on with me, carrying our two children on his shoulders.

Come here. Stay here. He’s here. But where?

How have you rediscovered and redefined your relationship with your partner after losing your baby(ies)? Have your perceptions of each other changed or grown stronger? Do you grieve in the same way, or differently? Do you both have specific roles and responsibilities around your loss, or is it undefined? Are there specific words, phrases or incidents in your story that have assumed a new meaning or dimension after your loss(es)?

After The Bear Hunt

The discussion boards for Glow in the Woods are truly that warm, welcoming campfire to so many of those who find us in the darkest of journeys. Throughout Glow's five years, the boards have grown tremendously. We are so grateful to how graciously our community continues to abide, listen, and support one another. Through our growth and feedback from our community, we felt it was time to expand and add another board--Parenting after Loss. Whether you were parenting children before your loss, or parenting a child born subsequently, Glow felt it was time to create a space to talk about the specific issues around parenting and grief.  We hope this space will be welcoming to those in all stages of grief and parenting. As always, if you have any suggestions or feedback on the community section of Glow in the Woods (the general board or the ttc/pregnancy/birth after loss board or our new board parenting after loss), please contact us here. We'd love to hear your thoughts. 

Today, we are thrilled to introduce Merry of Patches of Puddles as our new Board Moderator and a regular contributor. Merry's support and love permeates all the nooks and crannies of this community.  Merry's fifth child Freddie lived for eleven days in SCBU before dying of pneumonia. She is parenting Freddie's little brother and four older sisters in the UK. We are so lucky to have her keen eye, compassionate heart, and eloquent voice among ours. --Angie

“You can’t go over it, you can’t go under it…Oh no, you have to go through it.”

So say the words of a rhyme my children sing; lines that have played in my head since I stepped upon this grief path. The Bear Hunt; the long, difficult, fearsome journey.

I tried to find a way to scramble over grief, glide upon its surface and slither down over the other side of a glass dome that reached skyward, holding my baby and my pain inside it. I pledged to write him out of my mind and memory, believing I could escape the trite truisms of the steps of grief. With no intention of reaching acceptance, I relished denial. Busy, stretched beyond measure by the damaged children surviving Freddie alongside me, I pushed my tears to the quietest moments, the dead of night, the bathroom, lonely car journeys of the parent taxi trail. In the daylight, fear and pain on the faces of his sisters when I cried was too awful to behold. Keep it together, put on a brave smile, hold them when they cried. Just keep swimming. Just keep gliding.

Just keep scrabbling desperately to hold on to the life that had been ours, when we could count our children without confusion. When we could hold them all in our arms. When there was no space on the sofa, no space in our hearts, no empty spot between us all.

And then came despair. Choking, horrifying, utterly consuming and black as night and twice as bitter, despair. And I tried to go under it. I told the world and all her wives of my lost son, just to see the shock, see the horror, see the recoil from all the checkout women and frightened postmen who wished the crazy lady away. Begone, with your foul, mud soaked, horrifying grief. Get over it. Move on. Be on your way with your inappropriate love for a boy made of ashes. His loss rose up between us all, the husband and girls who went on and relearned a smile and the mother, woman, wife and now barren and broken part-human who tunnelled through days and wondered how to make another life. Month after month, I sunk beneath blood and anger and disbelief as a never birthday loomed and a life mourning a baby stretched impossibly - broken - in front of me.

You can’t go over it.

You can’t go under it.

Oh, no… you have to go through it.

Through the mud. Through the tears. Through the river that takes the feet from under you. Through the grass that sways above your head, disorientating, blocking the view, all you can see. And all the time dragging my broken children along with me, committed to the path I had chosen - the hunt I had wanted - which was punishing them so utterly.

The work and effort of grief, a journey, a slog, all to find a big black cave and a big black bear and turn tail and run for home, retracing steps, trying to find the place where once you were, trying to keep my other children safe as they bumped and scurried alongside.

And then… and then… lying on the bed, chest heaving from the chase, bones exhausted, tears all cried out and heart hammering. A memory of horror and fear and the jawed yaw of utter destruction, of unimaginable pain, right there, in your mind’s eye.

Slipping… sliding away.

A memory.

He was here. One of us. I do remember him. We did love him. I do love him. He was a person and he is – always - my boy. He was also a journey, one that broke me on every step and which brought me home, but not to the same place.

And, having gone through it, I tell you a truth now. Life goes on. Not the same life. Not the same person. Not scarred exactly but somewhat brutally reshaped.

The journey, now part of me, has the air of a badge of honour to it. I would not be without it. Here, in the unasked for afterglow of grief, I find myself, us, a family, with every decision we make infinitesimally altered by the knowledge that one of us can die.

The lens is different. Everything I do is tinted by the grief lens. My girls go out and I hope to see them safely back. The telephone rings and I hope to not hear of death. A baby is born and my head reels that people ask for weight and gender, not first breath safely taken. My child, admitted to hospital, makes it safely home. I am stunned by survival. The car breaks down, expensively. Nobody died. Our livelihood is precarious. Nobody died. The toddler ballpoint pens the expensive sofa. It’s just a thing. Nobody died.

This is my story, 3 years on. Mine is a journey complicated by my travelling companions; the living children I brought with me, guilt that they know grief, regret that they see fear in my face when illness strikes, sadness that they fumble answers to simple questions about brothers and sisters. Nothing has been the same for them since Freddie died. They do not have the same mother, or father, or family. Everything is a fight to weigh the knowledge of loss against the right to independence. They trod the terror of the subsequent baby path with us and their life is changed because of that.  And his life, the precious princeling who came after, is a kaleidoscope of the fragments of loss, love, longing and fear and joy and wonder that he has as yet no knowledge of and cannot change.

I am not the mother I was. I am twice the mother and half the mother, a patchwork of unwanted experience. I am surviving the hunt and the fear, but I will never be home, not quite.

Where are you on your grief journey? Have you tried to move under it? Over it? Tell us what it is like to move through it.