it's okay

We are honored to have Christine's mom as our guest writer today. She writes, "My daughter Christine was stillborn almost two years ago, in March 2013. For me, a big part of this journey has been learning to let myself feel whatever it is I am feeling in connection with her stillbirth and my life without her - the anger, the sadness, and, when I can find it, the quiet calm. It has taken me a long time to do this, to let go of timetables or expectations for my grief, and simply experience it for what it is. This poem tries to capture part of this journey, as well as what I think I needed to hear in those early days of my grief."

 

Okay

I needed someone to tell me
It’s okay.
It’s okay to feel this way.

I needed someone to tell me
It’s okay to feel angry that this happened.
Angry that this happened to me, to us, to our little family.
Angry that we didn’t get to keep her.
Angry that we rode the bus home from the hospital that day
Carrying a box of mementos instead of a baby.
Angry that no one on that bus knew.
Angry that as our hearts shattered, the world kept right on turning.

I needed someone to tell me
It’s okay to feel angry at others.
Angry at the people who said nothing.
Angry at the people who said the wrong things.
Angry at the people who forgot, or who just didn’t know,
How deeply it all hurt
And how long the pain lasted.
How it still lasts, and will never really go away.
Angry at pregnant women,
Blissfully ignorant that horrible things can happen,
So carefree and certain that all will be well.
Angry that for so many of them, it is.

I needed someone to tell me
It’s okay to feel the pain.
It’s okay to wail, to cry,
To scream out in horror that it is now my lot
To live the rest of my life without my daughter;
To have to live with this hole in my heart instead.
It’s okay to repeat, silently and out loud,
That my baby died, that it’s not fair, that this shouldn’t have happened.

I needed someone to tell me
It’s okay to love her,
Okay to miss her.
It’s okay to be her mother, even in death.

I needed someone to tell me
It’s okay.
It’s okay to feel this way.

 

Did anyone tell you it was okay? What advice did you get after your loss(es) that was helpful to you? What unspoken gestures helped you cope?

here (again)

Twice-bereaved mother Gretchen, of Lost: Boys and Bearings, is our guest writer today.  After her first son B.W. was stillborn in 2006, life was shattered and then slowly and arduously rebuilt.  In January of 2014, Gretchen's third son Zachary was born prematurely but almost fully expected to survive and thrive.  On Zachary's eighth day of life, he contracted a bacterial infection in the NICU environment.  At fourteen days old, after suffering tremendously and having graced his family with more love than they ever imagined, Zachary died. It is our distinct pleasure to have Gretchen writing at Glow today.

It is strange and surreal and brutal to be here again. Now, after having lost our son Zachary, on top of having lost our son B.W. more than seven years previous, here is at once eerily familiar and completely foreign.  

I remember this flavor of devastation so intimately. The raw, desperate longing for my son. The instantaneous shattering of all that was, of long-held, treasured beliefs, of an entire imagined future. The unmistakable reinforcement that the universe will dole out some horrific shit, with no regard for merit or implication. The deep, aching sorrow, the guilt, the anger, the inability to make sense of any of it. And over the course of several years, the clawing back, the attempt to create a new meaningful life despite the tremendous and permanent loss.      

At the same time, I don’t recognize at all where I am now. In the aftermath of watching Zachary unexpectedly suffer and die, the devastation on top of seven-year-old, scabbed-over devastation, the absurdity of what I’m living now, is a nearly indescribable low. Two of my three children are dead.  Just as I had learned to really embrace life again, Zachary died. I am doubled down with grief, mocked and shamed at having hoped again. The grief work I did to assimilate B.W.’s death into my life feels absolutely irrelevant. Wasted. The patches I created and tended to in those years after B.W.’s death don’t even begin to cover the newly broken and reinjured places. 

I don’t think I can (or dare to) muster the same resilience this time, after Zachary has died. What’s the point when I fully expect to be violently pummeled again? The loss of one child felt random, but I find that I can’t relate to the concept of randomness anymore. The loss of my two children, to two completely different set of circumstances, no longer feels random. I glance around in terror now, paranoid and panicked about a target on my back or on the backs of my husband or living son.   

I can’t fathom who I am, can’t imagine what my future looks like, anymore. What I used to think of as my after—the me who emerged in the years after B.W.’s death—now looks as unfamiliar as my before looked, just one year ago when Zachary was still alive.    

*****

Every Tuesday, my living son C.T., comes home from school to report who will be the next Top Banana in his first grade class. The name is drawn randomly out of a bowl and the selected student, the Top Banana, is to prepare a poster about himself, his family, and share it with the class the following week. This is not an unfamiliar exercise for us, having participated in a variation of the idea in both kindergarten and preschool. Preparing for it has never been the effortless, mostly fun activity that I assume it is for most other kids and parents. Nonetheless, we have always found a way to incorporate B.W. into C.T.’s poster and into his somewhat rehearsed comments about his family. 

Before Zachary died, C.T. would say that there was a brother he never knew who came before him. That B.W. was a loved and cherished brother and family member, even though he was dead. He would mention one of the special things we do in B.W.’s memory each year. He would share how we light a candle for him every night at dinner. It was never easy, never painless, and always a bit anxiety-inducing for the three of us. But, each year up until this one, we walked away from the experience with a bittersweet sigh of relief, satisfied that C.T. was able to share honestly about his family, and this one sad thing in his life.

I just cannot fathom how we will do it this year when C.T. is chosen as the Top Banana. As open and innocent and curious as children tend to be, there is no way we can feasibly pretty this up for presentation. Not anymore. How will C.T. get up in front of his classmates and explain that he is now flanked by dead brothers? Only dead brothers. After watching Zachary suffer and die this year, his two week-old brother, his only living sibling, yanked from his life so cruelly—really, HOW will we paint an acceptably positive picture of this, for C.T. to share with his class? 

After Zachary died, C.T. has said how sad and angry he feels to hear his classmates talk about their living siblings. He knows what a massive mockery it is to be here, to have lost Zachary too.

Is your grief reminiscent of, or compounded by, other devastating blows in your life?  Where do you find yourself in your grief journey?  How do your living children cope, when sharing about life/family is required?  

my grief baby

Our guest post today comes from Meghan of Expecting the Unexpected. She lost her daughter Mabel in March, 2014. She writes about her journey:

"'Your baby might die,' they said.  This wasn't the first unexpected news I received in pregnancy. I had thought her Down Syndrome diagnosis and the risk of stillbirth that came with it was my worst nightmare. Now kidney damage, low fluid and pulmonary hypoplasia gave my baby a very poor prognosis. I traveled the pregnancy path with fear, hope and uncertainty. At the end of the road, my daughter was born, alive but struggling. I was gifted six hours with her. Now six months later, I am re-assimilating. Learning to live life childless. Finding my way back to midwifery, to help others find joy in what has brought me grief."

We are honored to have Meghan writing for us today.

 

I startle in my sleep feeling her kick in my belly. Phantom kicks they call them.  But I know differently.  “Hi, baby,” I say.  As I gave away my newborn daughter, pale and lifeless, to the nurse, another baby started growing in my belly.  A seed that quickly grew into a moving, real creature.  She does not speak; she is only a baby.  She is my sorrow, my grief girl, the feeling left behind to fill the space that was meant for my child.  She kicks me in the belly to remind me that even in sleep I can not escape her.  She is mine, a part of me.

Sometime I carry her on my back.  I’m with friends and as I throw my head back in laughter, my head collides with hers, reminding me she is still there.  I suck my in breath, now critical of my easy mirth.  How can I laugh with the outline of a dead baby on my back?  My grief, she clings to me, the shadow of the child she should have been.

I let her lie on my chest, heavy and suffocating.  I recline on the couch, looking at photos of my daughter taken too soon, and remind myself it is only my grief baby, needy and crying out for me.  I embrace her for the moment and then tuck her under my arm, moving forward through the day.

Everyday I carry her around my neck.  I bring the necklace charms, a carrot and the letter M, up between my lips, speaking with my kisses. “I see you, grief.  You’re here. I won’t ever let you go.”


When do you feel grief the most? What kind of shape does it take? Is grief a comfort to you, a menace, or a monster?

a home for my sorrow

We are honored to have Aurelia of Losing Chiara as a guest writer today. Aurelia is a mother of 3 children, 2 living. Her daughter Chiara was born still in August 2012. She writes, "22 months into this grief I find myself still searching for ways to incorporate her into my life, to honor her memory."

 

A cemetery is a good place

to take your sorrow.

Even if the one you grieve is not buried there,

you are still in such good company.

 

Monuments to lives and loves all around.

Widowers walking the grounds for exercise,

and to be close to their wives.

 

I walk past the graves,

read the names, do the math.

I am looking for the children,

the babies.

 

Some are all grouped together in the baby garden.

Chimes and whirlygigs flying in the breeze.

Tiny stones,

most with just one date on them,

a birth and death day.

 

Some are within large family plots,

“to our sweet angel Silvio”

“our daughter Lizzie”

“our beloved baby”

now all cradled in the earth with grandparents, aunts, uncles.

 

Some are not named, an inscription on a bench for all

“children known only to God”.

 

And what of you, my darling girl?

Your ashes reside on a shelf in my house,

but I feel you in these places.

I carry you, my love for you, my sorrow for you,

everywhere.


Here in the cemetery where I learned to ride my bicycle as a child,

where my grandparents and great-grandparents are buried,

my sorrow feels at home.


Do you visit cemeteries? Do you find any comfort there, whether or not your baby is buried in one? Are there other places where your sorrow feels at home, places outside your home where you can be at present with your grief?

 

too busy

I'm too busy raising my son to acknowledge how sad it makes me to see him alone in the yard.  He's playing in the sandbox solo, his cars and trucks pushing the grit around wrapped by his tiny perfect fingers.

 I hide behind the glare of the summer sun in the door, hide behind the glare of the book on my tablet. He's alone, no older brother tormenting or teaching him how to be a maniac.  Luckily he's figured that out all on his own, mostly.  I do have my moments.

Laconic and prone to naps I don't have the energy a 6 year old would have.  That relentless running; that sturdy, focused dash at top speed yet three year old slow would be beaten by the speed of his older brother across the yard, which would now be too small for the four of us.

But here there's three.  Us and him.  Her and us.  Them and me.  Whatever the daily configuration happens to be, it always comes back to us three.

He doesn't know yet.  He has no inkling.

There was a moment about a year ago that I have told no one about when Zeph happened to see a framed memorial to his lost brother.  It was a photo of Silas, his footprint, our tattoos, and his name in the sand at the beach during sunset.  It was on the floor near my dresser where Lu and I can always see it.

"Baby is sleeping," he said when he glanced at it and my heart was knifed.  I nearly fell over.

"Yes, baby is sleeping," I replied and we continued on our daily adventures with my heart pounding and my skin prickly and flushed all over my body.

I rolled on calm because there was no one else to play with, just him and me.  I couldn't collapse like I wanted to.  I couldn't freak out and howl at the unfairness of the world.  I couldn't sit down and tell him everything, that he had an older brother Silas but that Silas was dead and none of us ever knew him at all.

He's two point five.  I'm forty.  Silas should be here with us but he's not, so I have to make sure Zeph has all the fun he would have had with the older brother he will never have.

I am totally distracted by the growth of this being.  I tell him every day that he's my best friend, my squishy boy, my Zephyr.  I am so busy loving him I don't have time to be destroyed by how sad I am he's alone.

~~~~~~~~~~~~~~~~~~~

What excuses do you make for yourself to get by?