hard hearted

I am grown hard hearted you might say.

Grief - which might have softened me and uncovered my humanity - turned my core to stone, you might say.

If you did not know.

Sometimes I do not know.

I think of him, wait for grief to rise up and bubble to the surface, tears to come, grief to reassemble, manifest in the centre of my soul - but nothing comes. I wait to be strangled by the loss of him, for my arms to lift themselves up, shocked and empty from the lack of the weight of him. Nothing comes.

I try to write, show the world that still I miss him, that my whole self is changed and nothing will ever be the same without him but the words seem bland and empty now.

I miss that pain. I hanker for it. I ache, in a way I never thought I would for a bottle of grief to take out and tip up on my sleeve to sniff the scent of loss and feel it fill my nostrils, freeze my brain. I want to huddle, struck to stone by the loss of him, the utter total disappearance of my boy. I want to stare at photos and feel tears stream down my face, flicking away from them as child or husband strays to my side. I want to remember when there was no way to make it through a day without saying his name. I want to be back in the supermarket, telling a horror struck assistant over frozen peas that my baby died and so I can't cook a proper meal just now. I want to be folding baby clothes and finding places to hide them, cramming crates into a cupboard and forcing coats and blankets over them, tears of rage and hollow pain pouring down my face. I want to be in sunlight, the world dark around me, furious the world is spinning, wind is blowing, sea crashes and days continue. I want to hear his loss in every song on the radio, pick up every book to read and find a Freddie in the pages. I want to flinch away from baby aisle and pushchair, avert my eyes from bump and newborn, shut the computer in despair as another pregnancy is announced, another baby born.

But time has moved on. The days that sparkled with over bright reality, harsh and glaring and scraping the surface of my skin till I was raw and broken are gone. I felt everything then - and I hated it. Longed for it to end.

My life has grown to hold this pain, pushed it small, forced the grief and disbelief to a tiny molten core inside me, encased and covered by a crust I cooled and grew to cover it.

I can ignore the core. I exist around it, function, smile, talk of my children and skip a beat as I describe them, choose to keep him private. I have learned to slide my tectonic plates over the places where the fault lines are, pushing the broken, ragged places beneath a smoother surface. What was once a brutal landscape has softened, moulded, eroded away, grassed over, become old and gentle.

And if you saw me, you might think me heart hearted.

You might think I do not care. You might think I learned to live without him. You might think I had recovered.

***

I watched one night a story of savannah; the dusty landscape, parched and bare and half dead itself with bare branched trees, empty river, devoid of food or greenery. The smallest elephant in the pack gave up, lay down, stayed down. His bewildered mother, on her knees, tugging at him, lifting at him, trying to pull him back to life and her desperate moan, her grief, her utter helpless disbelief to lose him broke through all the defences I had built.

It was her moan that broke me. It could hardly have been more human. I do not think there could have been an ounce more pain contained in it, not if she had had words to say to us.

I cried for her. Gasping, wrenching, sobbing tears.

That's how recovered I am.

In the early days I had a million triggers; it seemed as if the world was determined to bring me down at every turn. The triggers are more subtle now and often unexpected and in a strange way I welcome them at times. What triggers your grief? Do you have ways to manage them, have you learned to accommodate them in your life or have you had to change to avoid them? Do you, like me, ever welcome them?

all that I left behind

Today we are honored to welcome a guest post by Mrittika. Mrittika is a former journalist, and is now a PhD student and researcher. She writes very rarely on screen and paper these days, but is always writing in her head. She and Som are Aahir and Raahi’s parents. Aahir is four years old. Raahi, born in April 2013, had jejunal atresia. After two surgeries and twelve weeks at the hospital, she came home healthy. She died in her sleep of unexplained reasons eight days after coming home. She would turn three months old two days later.

It is white. Just like a beginning, when one is building a home. Like a blank canvas. And just like when all colors have been neatly folded, and wrapped, and brought home, into this whole. The white of peace. It’s like this nature of ours is building a home, and it’s like she is done, too. It’s strange, how whole, and bare, white feels. The air within the flakes, the space between the grains in the mound, and then as all becomes leveled out in a sea of white, the hollow within its breast. Gently spaced out from each other, a cold air of nothingness hanging between them. As the white lands on the trees, and rests softly on them, there’s a gentle murmur in the branches. The weight of the white, the shifting of shape, the shuffle of wind, and the shifting again. The weight of the bare. The weight of the whole. The subtlety in the tree’s crevices, and the indisputable domination in mounds on the ground. The angularity in the branches, the leveling of the ground. The complete reshaping of a landscape, and yet so floating. The complete persistence of a night, and yet so fleeting. The complete reshaping, and the complete persistence. Just like death. The snow, like a white shroud.

It is a dip, a fall, they say. They measure temperature, something they have named to describe and explain the cold. Something many around the world even use to feel cold. They feel colder, when the temperature is lower. They feel toasty when the temperature is higher. They feel comfortable, shaky, warm, shivering, strong, weak, depending on what weather channels flash on their television, and on their mobile phones. They clean their driveway before it freezes, they light a fire and throw on a throw, and they layer more. The weather, the climate, the environment, the temperature. All the while white, and yet they seem to infuse so much meaning in it. They complain of too much snow, too low temperatures, too many cancellations, too much work shoveling. They feel too heavy, too dry, too angry, too bundled up, too backed up. Too uncertain, about road conditions, phone lines, heating, meetings. They feel too cold. This winter seems too long.

I don’t feel cold anymore. I step out in my corduroy jacket over a sleeveless t-shirt and pajamas and sandals onto the driveway, in what is supposed to be freezing temperatures. My hands are bare, my feet are bare, and I wait for my husband to buckle up our boy before I lean in and give him a kiss again, and tell him again to eat all his lunch. I then touch my husband’s hands, and kiss him. I tell him to drive safe. I then wait for him to start the car and heat it up a little bit. He waves at me to go inside. I don’t listen, and keep standing and smiling. My son waves at me, and they set off. I wait until they have driven two blocks, and turn, out of sight.

I keep standing, and then trudge back. I close the door behind me. The house is quiet, barren, whitewashed white. No playpen in the living room, no rocker. No infant cooing in her crib, eyeing the bright and gentle mobile. Every day, as I close the door behind me and stand at the foyer, I look at the vacuous space around, and think that I could step out only because she is not here. I am back, and she is not here. This is supposed to be my alone time with her. And this is my time alone. Without her.

As I stand there, there is a strange whiteness, in my heart. Her absence, the white of bare. And yet, she is so wholly a part of my life that the white, from all the imaginary colors of her life stacked together, blinds me. No, I did not get the pink of girly cuteness. No, not for me the green eyeshadow from mother-daughter makeup experiments in the middle of the night. No yellow sunny face when her grades came out, or her college acceptance letters were here. No black and grey of rebellious teenage years, or the red her cheeks would be the day she announced that the love of her life had proposed. No, I would not get to choose the purple of her wedding saree, or the golden of her jewelry.

I did not get to walk with her on the colored paths of life, and see how the seasons change. Instead, I have a long, cold, white winter with her, where all colors are heaped in a whole, a sublime and monolithic white in my heart. The whole in the hole. There is white all around in her absence, in the blankness in my life. And there is white deep within, in her permanence in my heart.

As I stand there in silence, I don’t feel cold. My hands are cold, and they often look shriveled, like they have shrunk in size. I have to constantly reach for the hand butter. My feet are cold, and in serious need of a pedicure. My legs, my perpetual trouble zone, are cold too, under the cotton pajamas. My neck, where I diplomatically yet unwillingly house my sore voice, must be cold, as should my ears, which no longer are sharp enough to hear falling snow, and yet are always hearing strange sounds around the empty house. They are all in place in this winter appearance of mine. But I am thinking for someone else, if they touched me now. They would feel cold I know. For me, I don’t feel it. I sense the white. I feel frozen, never to be thawed again. But I don’t feel cold anymore.

Do you associate your loss with any particular color? What in your sensations have changed since your loss? What feelings have you left behind? What new feelings have settled into your body?

Community Voices: Grief is...

Today we are honored to present the writing of two more Glow readers.

Anne is a dancer, teacher, writer and non-profit arts administrator. Anne and her wife Burning Eye's first child Joseph was stillborn at 35 weeks in December, 2012. Some of her poetry is being published in the upcoming anthology "To Linger on Hot Coals" edited by Stephanie Page Cole and Catherine Bayly.

35/35

My poet’s brain never had much use for numbers and formulas—

preferring the symbolism, the metaphor,

of mass, gravity, planetary orbits, chemistry, heredity,

the tiny organs in that poor frog.

But now, in the aftermath of your short life,

I turn to science for solace, trying to find sense and reason,

or make it. 

I write poems about logic, Newton’s laws, math—

the equation never adds up. 

Still, I can’t stop measuring, comparing, weighing—

searching for meaning among misremembered facts,

proving your life with whatever symbols I can find.

Today, the days of your life rest delicately on one side of the scale,

balanced perfectly by the days of your absence. 

Tomorrow, the scale will start to tilt,

listing as the days keep piling up. 

You will always be more gone than here from now on, forever.

But maybe that perfectly balanced scale is an illusion,

an incomplete equation.

Surely, the scale tipped toward loss long ago—

as heavy as these days have been.

Or maybe your realness, the weight of you in our hearts,

still outweighs the loss of you—

the nothing that can never balance your substance.

This next piece is by Carolyn. Carolyn blogs at hangyourhopesfromtrees.wordpress.com. She writes: Lost my first baby to a miscarriage at 17 weeks. I find solace, as I've always done, in writing, art, and thick, wordy books. Finding hope, now, but still burdened often by my loss.

I dig my toes into the rocky incline. Looking down, I can see clouds hovering underneath me. I am high enough that the place where I began isn’t visible, grey and swirling storm. Up here, as I pull myself further, the sun shines upon my shoulders. The sky is a brilliant blue, hopeful, vibrant. I keep climbing, distancing myself from the stormy ground. I don’t know what the plateau above looks like, but I long for flat ground and stable footing. I reach up and grasp at a root emerging from the rock.

It snaps.

Suddenly, I am scrambling, rocks and dirt begin to funnel down around me, I slide, scraping my skin, dust grinding into my wounds. I am falling, slipping down this slope, wind howls in my ears and I plummet below the cloud cover, into the cold, torrential rain 

I came home from work today on shaky legs. I had a sense of panic. I was on edge. Everything seemed too bright, too real, too harsh. My eyes couldn’t adjust. I squirmed uncomfortably, I felt restless.

I caved. And I cried. 

It’s been months since I’ve broken like this. I can hardly recall the last time I sobbed under the weight of the world. I buckled in the grass, hot tears on my face. I pressed my head to the earth and wept.

I clutched at my firefly necklace and I begged God not to take anything more from me.

I composed myself, wandered inside and climbed into my bed.

I slept, shutting out my mind, retreating into a world of quiet.

I find myself halfway down that steep incline, wedged into the rock, covered in blood and gravel. I manage to crawl up onto my knees, rocks and grit piercing my wounded skin. My head reels, my vision weaves, distorted. I breathe deeply as the pouring rain pounds my soul. I breathe in this storm until my mind clears, my heart slows, I regain balance. I pull myself up to my feet, digging my hands into the dirt above. Slivers of blue sky are revealed to me, far above this tempest.

I reach up and begin the climb again.

These are the last two Community Voices posts for this round. We want to know what's on your mind, readers. We want to hear your voices. What questions are you asking yourself in the wake of your loss(es)? What questions are you asking of others?

the hardest thing

I have drawn landscapes with words in my journey through loss these past three years.

Baby lost, I lay gasping upon the scorching desert sand; clothes burnt from my back, undefended against the blasting rays of grief. I spread my hands and grains of a lost reality slid through my fingers. There was no shelter, no relief; time as it should have been marched ahead of me like a mirage; my lost boy, my lost life, my lost self.

The hardest thing I ever did was survive the desert. With my back to my boy, I stumbled on, the dreadful knowledge that I was stuck - forever - in the desert.

Damaged and raw I woke to find myself alive and sunken deep inside a sucking, cloying marsh of despair. To wake and find the nightmare still going, the jungle noises of life as grim and terrifying as anything I could dream, the weight upon my chest enough to press the life from me. I wished to sink, I begged to sink; to never hear the sounds that cawed from morning radio like a heartless mockingbird.

The hardest thing I ever did was gird my loins and shut my ears, throw back the blanket and live another day. Again. Again. Again.

The world tilted and we found ourselves on ice; reality biting at frostbitten, delicate extremities. To grieve a baby is to stand alone, perfectly still, balanced and poised awaiting the next tragedy. To barely breathe and await the cracking, yawning sound of deadly cold that will - must surely - claim all that is left of life and love.

The hardest thing I ever did was touch a fingertip to a small white coffin, say goodbye, be polite and brave and GOOD and bargain with the universe to leave the rest of us alone. Please. Just leave us be. Please.

A blizzard hit, my vision fogged and faded and all was obscured; cold, dizzying, grim and suffocating, wiping clean, covering tracks, bringing a clean, white slate with all the mashed and broken earth beneath it. Time passed. I do not remember it. I know each moment lasted lifetimes.

The hardest thing I ever did was live through New Year, leaving my boy behind, losing him forever.

Spring did not bring hope. Spring blossomed and hope faded and the landscape was not fecund and inviting. I found myself wizened, dried up, barren, scrambling over dusty plains and faced with unimaginable climbs. Thorns scratched, dirt stuck in my throat, breath was gritted, dragging.

The hardest thing I ever did was trying again. The hardest thing I ever did was live the months of failed conception, of bitter galling blood and toil.

And then... a precipice. Flat against the cliff, staring down, rock crumbling, skittering away with each weighted footstep. Uncertain, hope, fear, breathless anxiety, the ache of bones and mind. Inching along, one step, two steps towards an unknown summit. Eight months just moment by moment, a ticking time bomb, a waiting avalanche.

The hardest thing I ever did was carry another child and face the possibility of loss again. Such risk, such potential pain, for the hope of a glorious view.

The view. Spread below me, rolling, green, forgiving, gentle. Breathe in, fill my lungs, breathe out. Grasp the moment. Feel the sun upon my face and not be burned. My skin is strong now, strong enough to weather the sting of those grief rays when they touch upon me. But the view... glorious? I see the shadows that my journey etched across it. The dips and rolling valleys hide iced lakes and craggy cliff; grief and I have walked them as reluctant, sullen companions. The distant haze hides dust and desert - and hides my boy. He drifts in atoms of sun and dust and breeze across the landscape.

The hardest thing I ever did was learn to live again, be grateful for what I have, for luck and joy, like people say I should. But without him.

Without him.

What does your grief landscape look and feel like right now? What phases of your experience stand out, either because you weathered them in unexpected fashion or because they were particularly, perhaps unexpectedly, difficult? What is the hardest thing about where you are at this moment?

lost in translation

We sat across from her, an arrangement of flowers and a small analog clock sitting on the table between us.  She was young, only a few years older than myself, pretty with a well-tailored black dress and an almost preposterously large diamond ring on her finger.  Her office overlooked part of a very famous street in Los Angeles where the wealthy spend ungodly amount of money on handbags and diamond-studded watches.  She was a psychologist or therapist, I can't remember which now, that we found via a referral from our OB after George died.  There were five names on that list and I picked hers from the lot solely because she was the only woman. I naively believed that her sex would somehow imbue her with special counseling superpowers.  I should have known better.

Sitting stiffly in the overstuffed couch, we told her all about how our life had gone from blissfully happy to utterly broken.  I did most of the talking (between wiping away tears and my runny nose) while Leif sat beside me and quietly held my hand.  I relayed the events leading to George's death and watched her reaction to it all with an observant eye.  She furrowed her brow at the right times and nodded sympathetically when I had difficulty maintaining my train of thought.  She said all the right things and reacted in all the right ways, yet something about the blankness in her eyes made me feel as if instead of talking about the death of a much loved baby we were discussing my disappointment over being passed over for a job promotion.  It took all of ten minutes to conclude that she was an experienced actor and that she had little empathy for the ugly circumstance which had brought us in to see her.  Forty minutes later it was over and I was writing a check to her for an absurd amount of money, thankful to be done with experience.  

Back in the car we agreed never to go back to see her.

After that miserable experience I threw out all the other counseling referrals we were given and turned to the Internet.  I tried every combination of words to find counselors who specialized in pregnancy and neonatal losses. Grief + infant + death + depression + counseling = the saddest collection of words I've ever Googled.  The results were abundant and spanned the spectrum of mental health workers: from family therapists to psychiatrists and even naturopaths.  I must have looked through those results dozens of times before gathering up enough courage to pick one and make the call to set up an appointment.   Given how badly our first experience went it still surprises me that I somehow mustered the bravery (desperation, more likely) to even make another attempt. 

Thus the Internet threw me a lifeline -like it has done for me on so many occasions since we lost George- and brought me Anne.

Anne was the antithesis of the first woman we had earlier met with.  Her warmness was as welcoming as the first therapist’s disingenuousness was off-putting.  Even their appearances were starkly contrasted.  Instead of an expensive black dress and hair slicked back in a tight ponytail, Anne wore casual white slacks, a pastel sweater and a string of understated pearls on her neck.  She smiled easily and it never felt inappropriate or forced.  From the moment we began talking it felt like a homecoming and for the next eighteen months it became my refuge.

When I first started seeing Her I felt alone in my grief.  As much as I had tried to convey to friends and family how lost I was or how deeply I missed my baby it was a language completely foreign to them.  It wasn’t as if they didn't try to understand but there was something fundamentally lacking in their ability to interpret my words and behaviors in the wake of George’s death.  Once I wrote in a blog post that it was incredibly painful for me to be faced with images of carefree pregnant women and a pregnant friend took deep offense.  It made me feel awful, both because I had hurt someone who had been a good friend, but also because it made so very clear to me how alien my experience was to those around me.  That was the last time I ever wrote or said anything of that nature outside of the safety of Anne’s office (and later the safety of private conversations with other baby loss people) for fear of offending someone who was not fluent in the language of loss and did not understand the consequences of post-traumatic stress.  After a time I learned to hold back my words for fear that they would be falsely translated into insults or that they would make the impression that I was more depressed then I actually was. 

It was incredibly isolating and not just a little discouraging. 

To Anne, when I told her how much I hated hearing about other women’s pregnancies or how deeply I burned with envy at seeing birth announcements, I was completely normal.  To a grief counselor I was just mourning the loss of my baby, my pregnancy, my previous life, and my self-image.  She understood my language and there was no need for me to make any effort to translate for her.  I did not have to soften the edges of my sharp and sometimes cutting thoughts.  Every week I saw her it was an emotional and physical relief just to sit with someone and not need to filter or mold every word out of my mouth to either A) convey how devastated I was or B) avoid making myself sound like a black-hearted monster. 

One of the most valuable things I learned from our time together was how to accept that no matter how eloquent the words I used to describe my grief there was always going to be something lost in translation for those people who were fortunate enough to have so far been spared any real tragedy in their lives.  They would never ever totally understand (how could they) what I was feeling but the good ones worth keeping around would make an effort to try.   She assured me that there would be people that I would find walking the same long and arduous road that I was on and they would not need any translation.  There would be people who understood.  I just had to keep my eyes and my heart open along the way. 

Anne was the first person I came across after George died who gave me hope that I would not be alone in my grief forever. I found those other people she told me I would find, other souls who were slugging through the same muddy road as I was: other grieving souls who would become friends and for whom no translation was needed.  Hope is an amazing gift.

Have you seen a grief counselor?  Was it a positive experience?  Was there someone else who you felt understood your grief when no one else seemed to?  Has it been frustrating for you to have people not understand or misconstrue your words and/or behaviors in response to your child's or children's deaths?

inside the broken

There are things which broke on that day which will never be repaired.

My ability to give a toss, for one thing. I walked out of the hospital wearing pyjamas, clutching a yoghurt. Less than an hour after watching my 11 day old son die, I left the building having forgotten to dress but feeling it was important to not waste the money spent on a breakfast yoghurt that my throat had been too constricted to eat.

A million times I have reconstructed that morning, imagined that I screamed and howled and refused to be parted from him, imagined myself cradling him - illegally outside a car seat - on the journey home. Imagined his breathless body in our home, loved by us all, for a few hours. Just a few. Long enough for all of us to hold him.

A piece of me broke when I laid the body of my child upon the bed, turned my back, walked away, left him forever. I went quietly. I walked with measured steps, climbed inside my car, composed myself for breaking the news at home.

I stared at the car in front of us, proclaiming in a jolly yellow sign "baby on board" from the back window.

I didn't cry, or snarl, or instruct my husband to ram their smug, unknowing selves off the road with their sneering, crowing, baby sign.

I don't miss the drama queen, nor the woman who put her own needs and wants first and had a baby to suit herself. She broke. She is long gone.

The mother who arrived labouring and optimistic was not the one who walked out empty armed and brokenhearted. I wonder at what became of her on those haunted corridor days, the long nights hovering above a SCBU crib. I wonder at the mother who left, grief already put to one side, able to turn her back to a beloved but dead son and focus on the living.

I would not have believed that I had that in me. I would not have believed that my soft soul, so often such a shaken and shifting thing, would have hardened, frozen, stiffened and done the deed.

I am not sure if I want to be the mother who walked away. It does not feel honourable nor does the walking illustrate the love, or the desire to stay forever, suck him inside of me, curl up upon that bed with him inside my arms and keep him warm with my warmth until we both grew cold.

But the one who arrived home. Broken, yes, but strong. So very, very much stronger than anyone believed. Least of all me.

There are things that broke inside of me that day; faith, trust, patience and tolerance. Energy for the small worries, some measure of mercy for human foibles are long gone. I do not wish to be troubled by the minutiae of petty irritations. I do not suffer them gladly.

What was left, when all that cracked and fell away, was new, pressured hardened, solid, changed.

I survived.

My son died, in my arms, under my gaze.

But I survived. I changed, changed deeply to my core, but I have survived. Sometimes, I rather resent that it is possible to do so.

Can you identify parts of your personality that have changed since the loss of your child? Are there changes you welcome in some way or do you resent them utterly? People talk about 'becoming a better person' as an aspiration after experiencing loss; is it possible for that to happen? Is it damaging to even try? In what ways has grief been a journey for your 'self', your character and how do you feel about it if it has?