ESCAPE!

We lost Margot on March 24, around 6pm, just as the normally chipper blue sky turned to gray and started raining. For the next two weeks, my partner fought for her life and then for her failed kidneys, as we grieved for our daughter in a cold, sterile hospital room.

Then, finally, our kidney specialist sauntered into our room with some better test results and casually stated that we could leave the hospital the next day. That was April 6. And on April 12, one day after Kari’s gloriously pathetic 30th birthday and six days after we left the hospital without a newborn and nineteen days after the worst day of our lives, we bought a ginormous twenty-eight foot 1980 Dodge Jamboree motorhome.

Really? Really.

We followed up our baby’s death by buying a fucking motorhome.

It was pretty sweet too. Off white in color, with vintage orange and gold lines streaking down the side of it and a silver ladder running up it’s back. The inside featured orange shag carpet, big cushy chairs that swiveled and a classic faux wood steering wheel. Add a kitchen, bathroom and two full size beds to the package and we were all set to go.  The day we went to buy it, after trying to learn all it’s quirks from the RV salesman, Kari turned to me and said, “I didn’t picture Margot’s face every moment when we were in there.”  And we both secretly hoped that maybe this RV would save us for the time being. It felt kind of good, this motorhome distraction.

Except Margot was still dead. And nothing about owning the camper, even with the shag carpet, felt satisfying.

So we sold it. But before we knew it, more timely distractions came along, even though we weren’t looking for anything in particular. Suddenly, it sounded good to download all of the past seasons of Survivor and watch them over vodka every night. And then little vacations to Palm Springs and the coast popped up. And then it sounded like a good idea to completely renovate our bedroom and other parts of our little dwelling, so we spent this summer building beds and tables and desks and frames, and endlessly shopping on Craigslist for everything else. When we finally found our perfect little used couch, with it’s carmel colored leather and shiny gold beads, it was nearing October.


I’m not exactly sure why these distractions keep popping up. It’s not as if any of these escapes have brought any long term satisfaction to our lives, or that they are somehow preventing us from facing our grief. And yet, I’m constantly amazed by my ability to get somewhat excited about something, even when I know it’s temporary and unfulfilling in the end.

In the very beginning, I came to loathe the distractions, the motorhome especially, for how it left me feeling like a cheap trick. So much promise followed by zero payoff.  But now I see these distractions as a little gift from grief, as if it’s grief’s way of letting our heads above water, a short breath of air before we are pulled back under. Like earlier this week when I cried for an hour over pictures of Margot, and then promptly opened my web browser and searched for a “vintage chair” for our living room.




Recently, a woman from our support group described the nightmare of losing two babies in the same year. She wept and squeezed her partners hand and shared her losses with a beautiful blend of courage and despondency. And then, towards the end of her story, after a few moments of quiet, her face suddenly changed into a smile as she said, “We have been redecorating our house, so that is nice.”

Yes, that is nice.


Have you used distractions to cope with your losses? Have they been helpful?  Have the distractions lessoned as time marched forward?

Silas' Season

It creeps up on me like the shadow of his absence.
I feel him first as a whisper breeze that cools a hot late summer day.
When a leaf leaves the tree, I fall with it
into piles of grief on the curb.
The suddenly incessant crickets every single night:
Exactly like his name in my head,
every single night.
The days tighten, losing light
as my heart constricts in anti-anticipation.
That moon, that September night, her labor and pain.
One by one, the leaves arrange into place.
The moon eases in its orbit.
The Universe rings my soul like a broken bell
when that perfect autumn eve
exactly captures the essence of the day he was born.
I cannot stand it once again
and once again I cannot move aside from the
drenching, gusting, cold fall storm
that is my face and heart and soul and hands
when his birthday is here
and he is not.

I have to settle for the fall.  For the piles I drive through.  For the crickets that sing their vigil.  For the cleansing rains.  For the chill of our loss on the last bits of summer heat, and the cold nights ahead where we have to hold each other close and let the spark of our souls keep his memory warm in our beautiful and broken hearts.

What does the season of your loss look and feel like?  Has it changed the way you view that time of year entirely?  Or are there other non-seasonal triggers that remind you of the day you lost your child?  And please feel free to offer a poem of your own, if you like.

Searching

When I first became acquainted with Josh's writing at his blog Jack at Random, I became immediately enchanted with the beauty and honesty in which he articulated his deep heartbreak. I grieved with him for his daughter Margot, who died March 24, 2011, after his wife fell and suffered a full placental abruption. In a blink, he lost his second daughter, almost lost his wife. The raw love, jagged and stunning, expressed in each sentence resonated so deeply with me. I found myself crying before I knew I was grieving for another. We are just so honored that Josh has agreed to join us here, as a regular contributor, sharing his journey as father and husband with us. Please help me welcome Josh to this space. --Angie

She was there for a time, in my arms, her cool cheek against my wet cheek, her pale forehead touching my forehead, her limp body held tightly against my chest.

Then she was off, in the care of impassive strangers, having open heart surgery to remove her valves for donation, taking little joyrides around Los Angeles between the hospital and coroner and crematorium.

She arrived back to me in a little white canister, her name neatly typed in courier font on a small strip of paper: Margot June Jackson. Number 4-2389.  Cremated 03/31/2011.

And then she was in my sock drawer. She was partly there to protect us all from the possible awkwardness of others seeing her, and partly to protect us from the harsh reality that our daughter was suddenly reduced to ashes. For those few days before the memorial, I saw nothing in my house but the canister. I’d walk past mourning grandparents, step over my two year olds toys, eat dinner around a table and it was all just a blur. My daughter was in my house, in a canister, and I saw nothing else.

And then we took her into the woods and poured her into the river.

And then I couldn’t find her.

For if we find the deceased in our collective memories, where they still live on, cemented in photos and stories, how can we possibly find our babies? When memories barely exist, a few hours here, a few days there, how can they remain present? And when there are so few collective stories, passed on by those who knew and loved and touched the deceased, how will anyone else remember or find our babies?

Heaven would be nice, if I believed in such a possibility. It’s a comforting thought to think I could meet her one day again. Reincarnation would be nice too, the thought that she might resurface somewhere in the world, another chance at the tricky elusiveness of life.  But instead, my mind only allows what I can know without doubt. She died. We had her cremated. And we placed her ashes into the river.

Even still, I search and search, looking around every river bend, under every mountain rock and desert plant, on the metro and freeway, in the few pictures we have, in my fleeting memories, in my letters to her. But she is rarely there, always just out of my grasp, always still dead.

And yet.

As the months trudge on without her, as my search turns up empty, as the solitary moments I had with her slowly scatter to the far reaches of my memory, I’m starting to notice that as my grief evolves, I can find her from time to time.

Sometimes I find her in this new life that has suddenly emerged, one filled with desperate sorrow over her loss and sadness over a life that has become different than I always imagined. And in carrying these losses from day to day, I carry my daughter along with them. 

Sometimes I find her in the water, in the river where we said goodbye, in the ocean where she eventually ended up.

Sometimes I find her in this new company I’m now apart of, the society of the suffering. We have joined those who know and experience loss, whether close to home or far away. I find intimacy with them, with you, and in those moments, I feel close to her.

Sometimes I find her in new friendships, which have only formed because of her absence.

Sometimes I find her in my broken heart, the fragmented pieces that drip with sadness but also hold her very existence. Since I can never have her back, what’s better - a whole heart without her ever existing, or a broken heart with her dead? No matter how short her life, no matter how little time we had together, she is my second child. And I choose her.



Where do you find your kids? Do you find them in different places as your grief has evolved over the months and years? Do you find them at the grave, in your home or the spot where the ashes were scattered? Do you find your baby in a symbol?






short story

 

I have this idea for a short story.

 

Okay, this woman is sitting in the Perinatal Evaluation and Treatment Unit (PETU). Her husband is holding her hand. She keeps holding her belly and talking to it.

Be alive. She thinks, or maybe she says it out loud. She doesn't remember.

The couple trembles. They are on the verge of giggles. It embarrasses them both that anxiety reacts in them in this similar way. The nurse just listened to her belly with a heartbeat monitor and couldn't detect the heartbeat. She said, "This machine must be broken. I will get an ultrasound machine." The couple want to believe her, but something gnaws at them. It seems an unlikely coincidence that they would come in to find out if their baby died and the heartbeat monitor died instead, especially since they could hear the mother's fast, desperate heartbeat reverberating through the room.

The parents overhear the nurse ushering out the pregnant lady in the other bed. They tell her she will go to another room. The other pregnant lady had been arguing in Spanish on a cellular phone, but even she is quiet now. In the quiet without the woman and nurses, they both realize that the baby is dead, perhaps, or maybe their thoughts aren't quite that developed. But they both have the same impulse to protect the other, so they say nothing just yet about how the baby died and wait for a doctor. The mother's insides get all agitated, empty, nauseated. All turned upside down. Something is happening, her body tells her. It is something bad. It is something scary. Let's run. Let's go back home. They seem to think at the same time. Let's forget this ever happened. Let's yell at someone. Let's hit something. Let's scream.

The ultrasound machine is rolled in followed by a doctor, a midwife and two other doctors. It could still be alright, they seem to want to believe. Usually they don't need a team to hear a heartbeat, but when her baby's small form is shown to her on the small screen, curled in position, she can see there is nothing happening in her chest. It is still. So fucking still.

The mother says, "There is no heartbeat."

And the doctor says, "Yes. I'm sorry your baby passed away." And the mother will think later that is not a phrase that should be used on a baby. Babies die. Old men pass away. In their sleep. Because they are old and lived a good life. The life of this baby was ripped away from her body too early, too heart-fucking-breakingly early. She should have said your daughter has been murdered by Fate.

The medical team leaves them to process this information.

 

I know you know this story already, but hear me out. It is different this time. This short story I want to write. It is different.

 

They keen and howl and hold each other. The mother grabs her husband by the shoulders and says, "I'm sorry, but I am never having another baby again."  Then a nurse walks in to take them to the labor and delivery floor. The woman wonders if she can die now.

Can I just let go and die? I don't want to birth a dead baby. That is about the worst thing I can imagine. I never should have to go through this much physical and emotional pain at the same time. Just kill me, God, please just kill me.

"You cannot die right now, mama," the nurse whispers into her ear. It startles the mother to have her thoughts read so easily. She wonder if she has been speaking out loud, though she knows she would never speak those words aloud. The nurse is older, kindly, has a long salt and pepper braid running down her back. She looks familiar. So familiar. Then she realizes that the nurse is her. The nurse is the mother many years later, decades perhaps. She takes in this fact calmly. Clearly, she is in a nightmare. Or she is dead. Both of which is preferable to what is actually going down in the PETU. She turns forward again in the wheelchair.

Yep, that is me pushing me in a wheelchair about to give birth to my dead fucking daughter. It is so fucking cruel.

It is cruel, mother. All of this is cruel. It doesn't get easier, but it will become bearable.

Will it?

Yes. But like a bruise, it will always be tender, and it can easily become unbearable if you push on the hurt long enough, if you focus on the pain. But for the first eighteen months, you can do nothing but focus on the pain. That is right and good. Your daughter died. It deserves all your attention. Just don't try to die. Your family needs you. And you won't. You won't try to die. Just don't drink so dang much.

Yes, I know you are right. I don't want to kill myself, I just want to stop living.

That's normal. You won't feel like that forever. I promise.

The nurse rolls her into the room. The nurse is her, so technically, she is rolling herself into the labor and delivery room. It is like all L&D rooms.  The mother wonders how on earth she will bear to hear other women labor.

"We have you separated. You won't hear anyone else. All new mothers are taken to the other wing. Unless we fill up. But we do fill up tonight. You hear a baby being born at 5 in the morning. You actually feel joy the one time you hear a mother birth a screaming baby. You are happy for them. Don't worry. We have marked your door with a lily. It is so others will know that there is to be quiet in this room, solemnity, respect. We are all mourning with you here."

"I just wondered what happened with that."

"I know. I know everything that is going to occur to you. What you are thinking, what you are feeling, what will happen. I am here to guide you through this birth. To help you know what the future looks like under your own devices. I am the Ghost of Birthing Dead Baby Past."

"I think you need a new name."

"You will think it is funny in a couple of years."

And through the night and next day of delivery, the nurse tells her about what her life will be like. She says, "Have your mother come to hospital. Ask her to bring your daughter. It is important. It seems like too much right now to deal with a twenty-one month old, but it keeps you up at night that you denied your daughter the privilege of meeting her sister. It is too much to bear that they never met."

Later, the nurse rubs her feet  through fleece hospital footies during the earliest pangs of pitocin-induced contractions. "Don't be afraid of seeing your daughter. You are so terribly afraid of that through all of your labor and you forget about those fears the second you see her. She is beautiful. You see her bruises and it disturbs you, but you also see only her beauty, your nose, your hair. Take off all her clothes, kiss her feet. Take many more pictures than you think. Call Now I Lay Me Down to Sleep. I will find the number."

When the mother begins reading the grief packet, the nurse walks in with ice chips. "When you write the email entitled "Some Sad News," you ask people not to send flowers, or call for a week because a grief therapist told you to write that. Don't. Just tell your news. Don't tell people how to honor your loss. Because people read that as you never want them to call or give you any meals, or send any flowers, and they don't. Not ever again."

Later, after the mother rings for another pillow, the nurse leans in and whispers, "Don't tell anyone in real life about your blog. Ever." She fluffs the pillow and kisses her forehead.

As she is reaching the point of being fully dilated, when her husband and sister go out for some food, and leave her with the television, the nurse walks in. She sits on the edge of the bed and grabs her hand. "You are much more vulnerable than you admit or than anyone thinks. But you are also as strong as everyone believes, and so I must be honest right now. In the next year, you will feel abandoned. Your friends will walk away. You will feel righteous indignation at the injustice of it and you won't call them. Be the bigger person. I'm sorry to tell you that your daughter's death entitled you nothing, not even space to be an asshole. Some people, people you like, will never forgive you for not reaching out to them. You will miss them."

When the baby is born, the nurse cries with the mother. She holds the baby and kisses her again and again. She weeps and screams. More than the mother who is staid and uncrying. The nurse baptizes the baby and the mother in tears. But the nurse is also full of joy. The mother watches in amazement and silent admiration at how she can so easily move between these emotions. The mother feels absolutely numb, just numb.

"Lucia," the nurse says to the mother, "is always missed, mama. Smell her up. Hold her. Talk to her. Be her mama in the next few hours. This is all you get. You can't fully process that right now, but mother this baby." She hands the baby back to the woman. Solemnly, the nurse leaves the room.

The mother holds her baby for a few more hours, doing all the things the nurse advised. Some time later, the woman walks out of the hospital without ever seeing herself again. Not ever.

 

Okay, maybe it is a novel.

 

 

If you were rewriting your story after finding out your child died, what would you change? What advice would you give yourself? What kind of peace do you think that would bring? Would you even want a future you to advise past you on your own grief experience? Would it be easier to hear it from a future you or a stranger?

Make 'em laugh, Make 'em laugh...

My daughter had a tiny little coffin. It was small and white. It was also free. They don’t charge for baby coffins in England. How do you put a price on honouring the memory of your child? They don’t charge for baby funerals at all, unless you want something out-of-the-ordinary.

We wanted ordinary. We wanted the ordinary alive baby that other people took home. Instead we had an ordinary little coffin.

We discussed our wishes with the funeral director. She showed us a death catalogue: the caskets, the urns, the cars. She said ‘you can have any car you want, even a Limo.’ We turned away, our shoulders shaking. She left the room, respectful of our grief.

But we weren’t crying.

She offered us the limo and our eyes met. We knew we were thinking the same thing. We were thinking of driving up and down the main drag of our city hanging out the windows of the limo like kids on their way to prom; whooping it up with our little tiny corpse.

We laughed. Because what the fuck else would we do?

 

The day after we’d been to see Iris for the last time, I was gathering the hot, fresh laundry from our dryer. I held it in my arms and breathed deeply. David said ‘isn’t it nice, having something warm to hold?’ Loaded silence. Hysterical laughter.

We laughed. Because what the fuck else would we do?

We overheard our living daughter and her little friend. They were playing a crying game. They were sobbing huge, fake sobs. ‘Oh boo hoo. Oh boo hoo hoo. We are so sad. Boo hoo hoo hoo. We are so sad that baby Iris is dead. Boo hoo.’

We laughed.

A relative brought a gift for me. A lovely, well-meaning, slightly misguided gift. Iris scented soap-on-a-rope. Because who wouldn’t wash their armpits with sweet babylost memories?

We laughed.

A former colleague bemoaned the lack of sympathy extended to her when her cat had an operation: ‘when Jess’ baby died, everyone was so supportive, but no one seems to care as much about my cat.’ 

We laughed.

When I was pregnant with my son, we'd high-five after every sonogram: 'Woohoo! Let's give it up for an evident HEARTBEAT!'

We laughed

Today my husband had a bad day. A very bad day. He said 'well... no one died... No, wait, actually she did!'

We laughed.

We laughed.

We laughed.

Because what the fuck else would we do?

What makes you laugh now, following the loss of your baby or babies? Do you find humour in the darkest of places, or are some things Just Not Funny? 

the language of loss

A colleague of mine lost her son last month. His car went off the road on a beautiful Saturday afternoon and he passed away from his injuries.  Another friend lost her 8 year old niece recently in a similarly unexpected and tragic accident.  Their deep sadness echoes within me and I've spent many moments living in their skin when I think about their grief. Or maybe it's the other way around.  Maybe it's that suddenly I could see them wearing the same stretched skin and hollow eyes I know so well.

I hated seeing it on them and in them.

I never knew Silas as a grown boy or young adult.  I never knew him as anything more than the potential of everything we were about to become.  I felt his kicks and saw him grow behind the veil of Lu's bulging belly, but I never had him all to myself, not even for a moment.  My friend knew her niece, saw her grow and develop.  My colleague had 23 amazing years to share with her son.  All three of our experiences are terrible beyond words, and I'm certain none of us would like to trade with the other, for any reason at all, ever.

How do you qualify for being one of us here at Glow?  What are the parameters for Medusa-hood, for babylost?  Those people were their babies even though one was a man as well as a son and the other was not her offspring but still her child in so many ways.  Does a miscarriage at 10 weeks count?  How about a father of 80 who buries his son of 40?  Or by that time does the father already know that the Universe is far from fair and things like that just happen?

I went to Tommy's memorial and heard the amazing things his friends and family said about him.  As I absorbed the stories of this wonderful friend, brother, son, man, I wondered what people would have said about my son.  And then I wished I would never know because he would have died after me, after a long life together where I could nurture and cherish him and teach him to be a good person and a great friend like my father taught me.

The twisted layersof 'what-if' and 'what-should' and 'what-isn't' were nearly overwhelming. At the end of the memorial that was 400+ people strong, I gave my colleague a long, deep hug and told her how sorry I was that her son was gone.  I could barely even look at his younger brother, the loss and shock etched into his face was terrible and so all I could do was tell him to hang on and hold on to his parents and just hold each other up, any way they could.

A few weeks later when I saw my colleague again I gave her another huge hug, but I didn't ask her how she was doing.  I always hated that question in those first days and months and years after losing Silas.  I know it is just something people say because they have no idea what to say, but I still hated it so I didn't ask.  Instead I just told her how we have been thinking about her and her family and that I hoped they were holding up as best they could.  And then later that day we talked.  We talked about how some people we knew well were quick to pull away in our times of loss.  How people we never expected were able to stand right up next to us and hold on tight.  How getting up and taking a shower could be counted as an enormous accomplishment, to say nothing of getting back to work, back to the World, back to the everyday experience where our offspring were not.

I could look her in the eye and hold her in my heart and I was not at all afraid of what she had become or what she represented.  This wasn't some theoretical possibility in my life.  In some way that transcends Tommy's age or Silas's even briefer life I knew to the core of my marrow the filthy chaos and shocking confusion that gripped her tight despite her ability to stand there and talk about her son that was gone.  The pit that was hollowed out within me nearly three years ago is so deep and black and awful that her pain just slipped right in and swirled around comfortably.  I hoped that by standing there with her and using his name and letting her speak about her new awful life that I could lessen her burden minutely, if only for a moment, perhaps until the conversation ended, if that.

For so long, the despair I felt seemed larger than me, something I could never contain.  But somehow I've managed to grow and now it fits into my life without overwhelming me.  It doesn't seem less, not at all.  Instead I had to change the shape of my soul so that everything about losing Silas is in me and a part of me.  Speaking to my friend about her son Tom, I realized that I could stand with her and listen and absorb a bit of her grief because I know how to digest the truth of death.  That sick, awful feeling is to be expected, that it will not destroy me, and that hopefully this loss won't destroy her either.

I hoped that I could serve as a signpost along this path of sadness, that somehow by engaging people in their time of grief that I was doing right by Silas.  It is always better if he were here, but since he's not I have to find scraps of good and use them to the best of my ability.  I will never shy away from people when they are confronted with death because I know how important it was to me when people would talk to me and listen to me and help me to pretend that I was not losing my mind during my worst times.

I can talk to people when they are stricken because I know this language, all too well.  It is a terrible gift from Silas but if it helps one other person pull back from the brink I am more than happy to make use of this awful knowledge.  Even though it feels like we are each all alone with our absent child, the fact is it is all too common.  The death of a child, no matter how old, is always exceptionally shocking and wrenching.  It is something no parent should ever have to experience.  But as we know, 'should' doesn't count around here, just what is and what is not. 

Silas isn't here, and now Tom and my friend's niece are absent, too.  And so for those of us left here, devastated and alone, we have to help each other face each day and grow into people that can survive what we should have never had to endure.  We can only do it together because no one can withstand this alone.

Are you able to speak with people that have lost children or relatives?  Is it something you encounter often, sometimes, never?  Do you feel specially qualified to engage in these types of conversations, or do you prefer to keep your grief and experience private? What words do you use?  How do you speak to people when they are raw with sadness?