tough as nails

Two weeks after we lost Sadie we were dealt another blow that at the time was inconceivable in the cruelty of its timing. Out of respect for my husband's privacy I won't go into detail here, but the short story involves a sudden and intense health scare that led us to believe that he had a potentially terminal illness.

I am not totally sure how I got through those weeks considering my fragile state to begin with. Actually, that's a bit of a lie. My baby was dead and some wackjob doctor had just told us my husband would be next. The truth is I was higher than a kite, 99% of the time. Between Ativan and red wine, my memories are fuzzy around the edges where they're not altogether black.

During one of our initial hospital visits I broke down in front of a specialist, hysterical with fear and anger at the overwhelming unfairness of it all. It was humiliating and painful beyond words. Soon after that episode something in me clicked, and I realized that letting him see my despair was no longer an option. I proceeded to try my ass off to calm him with some sort of physical osmosis, somehow via my hand intertwined with his, or wrapped up in a tight bear hug.

Six weeks after the nightmare began it was suddenly over. At the root of it all was a misconstrued x-ray and an American emergency room physician whom I will never forgive. We were given the go ahead to return to England, empty handed and shocked, wary shells of the people we once were.

The reason I'm telling this story is because of the intimate way the experience has permeated our lives since. It broke a little something in us both that is difficult to describe, mostly because I don't believe either of us fully understands it. My doctor has her opinion of course, at least for me. A curious infliction she likes to refer to as chronic anxiety.

On a bad day, a chest cold is lung cancer. A bump on my arm is inevitably a tumour. Everyday aches and pains must be underlying signs of something dire to come.

Now, before you conjure up images of my morning commute involving a padded helmet and gas mask, understand that I am not a certified freakshow. But I worry. A lot. About myself, my husband, my loved ones. And more often than not about the health of our future children. Provided, of course, I survive another pregnancy without suffering a stroke at the ripe old age of 32.

I have read that the incidence of depression in parents after babyloss is roughly 69%. I do not believe I'm depressed. However guilty it may make me feel on occasion, I still enjoy the pursuit of life's pleasures. I can take care of myself and get out of bed in the morning and am not at risk of hurting myself. But I'm definitely, one thousand per cent terrified of what the future may hold. What else we may have to endure. On a particularly bad day I wonder why I would even try again when the odds are I'm just going to get sick and die in the end anyway. Horrible, I know. But try as I might to think it away, it still lingers.

As life has sped up these past few months and our time is seemingly endlessly booked with work and social functions, there are days when there is nothing I want to do more than sit at home alone in our safe little house, locked away from the outside world.

I look at my husband in a new light these days as a result of everything we've been through together. The concept of losing him was unfathomable - yet so was the idea of Sadie being so sick. So what exactly we can rely on I'm really not sure. There is nothing I would not do for him. There's nothing I want to do without him. And I want to be a parent with him more than I could ever properly articulate on this page.

If I could just get past all of this damn fear.

.::.

Did you suffer from any form of anxiety after the loss of your child? If so, did it wane with the passage of time? Did it affect your decision to try again?

social quotient

Reaching Out by jmtimages

If there is such a thing as social quotient, I score rather low on that. I am probably in the 5th percentile or something like that.

Back in school, on the last day of the final examinations, hordes of students would surge to town, pouring into theatres to watch a movie, or combing the malls for retail therapy after weeks of study (and performance) stress.

I went to the second-hand bookstore, lugged home a pile of novels, curled up and read. I have always been the rather (in)famous anti-social bird.

After Ferdinand died, my social quotient plunged. Crashed. Failed to register on the scale, because I totally dug a tunnel southwards and went into hiding.

The only way to know that I had not wiped my neck with a sharp blade was that I was writing, spewing all thoughts and emotions out into cyberspace, emptying my grief unbridled.

And, it took me a long time to crawl out of my little dark hole.

At one point, I felt I better be out. My girls need the sunlight, they need a social life, in some form of guise.

But being social was so hard. Talking to other people, I keep making mental footnotes like--

I can't believe I am standing here talking, my son died.

I can't believe I had a stillbirth.

But, you know, my son died.

How can babies die?!

I am not normal, even if I can stand and talk, do you understand?

::

I've never ever been the life of any party, even though for years my horoscope kept insisting that if you would just invite me to your party, I'm gonna kick it up a few notches at least.

Still, I do not consider myself a difficult person to be with. I am usually civil and pleasant, and don't bite too often. (Really!) I do enjoy being social, and (dare I say it) can be fun to be with.

I know for some, keeping with the social life they once had helps with the grieving/healing. It allows the support network to be available, it makes one feel alive and still be part of the fabric of society.

For me, I just want to rip the thread that is me right out of that fabric that is society and announce, with a wave of a black lacy handkerchief, "Forget I ever exist." I feel like I wanna turn my back upon society, upon life, and just be a vagabond, traveling to the farthest corners of the world, dragging my tattered heart in a quaint and worn leather bag. I no longer wished to participate in life.

But, how is that possible?!

It just is not, unless I check myself into some remote mental institute and spend the rest of my days forgetting my name, drooling strained spinach out of the corners of my mouth, rubbing dirt into my hair, and basically just waste away until my body decides it is time.

So, slowly, somehow I became "social" again. And I will admit, sometimes it helps. To just participate in life, be useful from time to time (when I first held a door for someone, I felt... alive), interact with strangers. Instead of just mumbling to the cashiers or pretending to be busy and not want to talk, I reached into the space that contains my heart and give it a squeeze and focus on being attentive to people I talk to. I mean, I really wanted to know about their day. And if they went beyond the usual "Great!" or "Wonderful!" and complain about a leaky toilet or having to be on their feet all day, I listened, I empathized and that made me feel more alive. Even though none of that had direct relation to my grief, it made me feel less disconnected and my heart became enlivened, even if only for a little bit.

I am curious about how others are doing and what excites and bothers them. I like to be able to interact and share my thoughts. But being a bereaved sometimes handicaps that. I still keep making mental foodnotes of My son died, I had a stillbirth and sometimes the mental footnote keeps ringing in my head as I proceed with my social life. There seems to be always this tension between wanting a sense of normalcy and desiring an acknowledgement that one is not exactly normal.

I know my social quotient will slowly go up, by virtue of the primal need to be social, by virtue of my children's needs, and I hope, that this scar in my heart that had made me raw in social situations will one day become a glowing light that shines compassion and deep empathy when I one day become a more normal social animal again.

In our deepest moments of struggle, frustration, fear, and confusion, we are being called upon to reach in and touch our hearts. Then, we will know what to do, what to say, how to be. What is right is always in our deepest heart of hearts. It is from the deepest part of our hearts that we are capable of reaching out and touching another human being. It is, after all, one heart touching another heart.
~ Roberta Sage Hamilton ~

And you? How do you do? What's your social quotent, were you a social maniac before, or were you more of a hermit? How did babylosthood affect your social life? What was hard about being social again? How did being social help? What was the first social event you chose to participate in, and why, and how did it go?

when mama cries

www.flamingpear.com

I do remember my mother crying. I don’t know whether she cried more than most women. She just seemed more comfortable doing it, less reserved, unapologetic. I do remember her crying, and I never really thought there was anything wrong with it. I think it is my mother I have to thank for the ease I have always had releasing my own tears.

I do remember worrying, though, especially when her melancholy would carry on for a while. When she felt blue. When she would spend quiet time with herself, caring for the plants in our garden, rather than engaging with my sister and me as we played nearby. In those moments, I wanted her to cheer up. I wanted to be able to make her feel better. Sometimes I could, but not always.

One day, maybe it just got to be too much for her. And she left, to take care of just herself.

Have you ever read the book or seen the movie, The Hours? About how women throughout time have carried their sorrows? That story just gets me from such a knowing place. After watching it in the theater, my sister and I clung to each other, cathartic tears streaming down our cheeks until the credits had unwound and the lights had come back up in the theater. I looked at my sister stunned and eventually got up to wobble home on spaghetti legs.

Melancholia

The blues

Feeling down

Depression

Mental illness

We are so frightened of these, aren’t we? So stunned by them. I find it irritating when depression is referred to as something surprising…

You’re depressed?! How baffling! How mysterious! How could you possibly be depressed when your life is so good? Look at all the blessings around you! Cheer up! You can do it if you just choose to!

As something that has to be cured, overcome...

We must address this right away! You can feel better with the right help. You have to feel better! We must absolutely help you to feel happy again!

As something that has to be medicated, conquered, eradicated…

There is just so much depression in our society today. But now we know how to treat it! Now we know how to beat it! Now we can free you from its hold with the right combination of science and counseling.

Trust me, I am a big fan of therapy… It has saved me many times from sinking to a place from which I might never return. Zoloft helped me once too, when I just couldn't get my head above water no matter how hard I tried.

But can we look at depression, maybe, in a different way? See it. Recognize it. Say hello to it rather than shoving it down?

Hello melancholy feelings! Hello unexplainable sorrow that won’t go away in an appropriate amount of time! Here you are again! Welcome. I see you. I hear you. I feel you. I befriend you. Tell me what you need to share with me.

As someone who comes from a long line of people who – egads! – have experienced great depression (they called it melancholia back then) for a number of reasons (they were Holocaust survivors, they lost everything and saw horrible things), and some who have felt it without any apparent cause, it just annoys me the way we approach it in our larger culture.

As a woman who has struggled with my own depression, my own melancholia, my own sorrow and loss and grief and misery – several times, even before losing my child – I have a bone to pick with the way we approach our difficult emotions, how we hold them… or rather how intensely we try to shake them off and as far away from us as possible.

.::.

Shortly after Tikva died, an old friend sent me Miriam Greenspan’s book, Healing Through the Dark Emotions. Finally, I thought after reading the introduction, somebody who gets it! Somebody who understands that the way to get through the hard stuff is to go through it. To be with it. To listen to what it has to teach.

Greenspan lost her own first child, who died just weeks after he was born. Her second child was born healthy. Her third child was born with a serious physical disability. It is clear that her children have been her greatest teachers. But it is not a book about losing a child, nor one about parenting a child with special needs.

As a mother, as a human being, and as a psychotherapist with years of experience in private practice, Greenspan writes about three primary emotions, which she calls the dark emotions – grief, fear and despair. She writes about the alchemy possible when we can really feel them, really experience them, go deeply into the darkness that usually scares us away. And she writes of coming through to the other side, the “transformational process by which grief becomes gratitude, fear turns to joy, and despair opens a doorway to a more resilient faith in life.”

Greenspan writes about compassion, about how it is almost impossible to live in our time, in our day, in our society, with so much sorrow and struggle all around us – and not feel dark emotions. Why, then, do we feel there is something wrong with us when we feel depressed? Why are we told so automatically that it is something that should and can be fixed?

I had so many ah-hah! moments when reading her book. Not because it was something I didn’t already know, but because it just resonated with me as truth, and it was a reminder that came at just the right time…

That there is no way I am going to truly survive – and by survive here, I really mean to thrive after (because we are allowed to thrive again, we are!) – the death of my child if I don’t go first to those dark places in my soul, look them in the eye, and ask them what they have to teach me.

It’s that hindsight is 20-20 thing: I have learned enough from my less successful attempts at pushing down my grief in the past to know that this won’t get me far for very long. I have learned that I certainly won’t get anywhere remotely close to growth by ignoring what needs attention in the dark places in my soul. I tried that in high school, shortly after my mother left, and I found myself two years later with 65 extra pounds of weight on my body and an anger shoved so deep inside that I found myself too depressed to get out of bed.

.::.

Here I am now, ten and a half months since my sweet girl died. More than a year since she was born so fragile. Almost a year and a half since her ultrasound, when my world as I knew it imploded and my life changed forever in ways I am only now beginning to understand.

“Grief becomes gratitude, fear turns to joy, and despair opens a doorway to a more resilient faith in life.”

I’ll tell you something that isn’t easy to admit, especially here…

I do feel gratitude.

I do feel joy.

I do still have faith.

Something is being transformed deep inside me since – because – I lost my Tikva. I don’t think it would have happened if she hadn’t been who she was. If she hadn’t come and gone so quickly. I consider it her gift, what I get instead of my second child here in my arms, healthy and well. It is a gift of compassion. True compassion, which starts with compassion towards myself. Begins with patience and understanding towards myself as I go through the messiness of the ups and downs of each day.

When I read about the possibility for gratitude, joy and faith months ago, I opened up to the possibility that I could get there as I went through this dark passage. It’s true. They’re there – the gratitude for Tikva, the joy I feel when I see a hawk flying above or feel Dahlia climbing my body as if I were a jungle gym, the faith I have in good things ahead. They’re there – even when I only feel them in glimmers every once in a while, balanced by their darker counterparts.

I’ll keep going there, through the darkness, towards the light. And as I do, I’ll continue to cry as much as I need. Cry at the sorrow and at the joy. These days I wonder if one can truly exist without the other. Maybe that’s what Tikva came through to teach me.

.::.

How do you experience your dark and your light emotions? What are the ways in which you go there, deep into the shadows or leaping towards joy? Do you sometimes avoid your more difficult emotions? What works for you in navigating all the places in your soul?

from our side

Late for work, late to bed, dishes in the sink, beer bottles strewn through the house like a breadcrumb trail to my evening flameout is how I roll. How about you?

I was ready to start complaining about how tough it was to work after being up all night with that little bugger screaming my sleep away. I was ready to become a machine calibrated only for the mom/baby show to shine.

Instead, now, I'm part therapist, part rock, part disaster, part ogre.

But in the end I can only do so much. No matter what, I'm still something of a spectator to the deep well of grief that my wife inhabits. She can't help but feel this more profoundly because of the specific physicality of her experience. Our emotional trauma is roughly equivalent, but my physical self is essentially unchanged. Sure, my shit is liquid on those mornings when I wake up devastated and insane. Yes, my neck and shoulders are crimped and twisted by this invisible, relentless weight of sadness. There is no question that I have grown fat and lazy on a diet of avoidance and lassitude.

Frankly, I'm psyched when I can get up and do anything at all. The laze comes easy to me. Stayed in bed until noon the other day. Noon. By the time I had breakfast and finished coffee it was time to start thinking about dinner. Lunch didn't even make it into the rotation. Poised on the brink of parenthood, I've been tossed back into a life where sleeping until noon is actually an option. And I choose that option only because facing the day is more difficult than feeling bad about wasting it.

For those of you that already had children, this all must be completely different. I'm sure it is easier to focus on the living children than the one that didn't survive. But for those of us whom our lost offspring is our first, the wrenching denial of everything that was to come is nearly overpowering. I've never been one to descend to the depths of "Fuck Everything" that I now sometimes swim through. Sure I touched on it here and there. Perhaps dipped a toe into that boggy morass of nihilism and disregard during a rough patch, but I never submerged into that particular muck. Wasn't my style at all.

Now, somehow, I have to make this muck into a home. Losing your child is a lesson in how to make Shit Houses. Here's a pile of crap, live in it.

And not only live in it, but you have to share this Feces Condominium with someone else who is probably in many ways even worse off than you.

Are you a patient person? Can you listen well and respond without anger? How do you fare when you see someone that has everything you want, but complains about how tough it is? Are you capable of letting go of expectations and accepting the World at face value? If so, a career in having your child die just might be for you. Everyone else need not apply.

There is no one set of rules and instructions to help us deal with the loss of our child. For each person, this path through grief and despair is utterly solitary and painfully unique. And even though we get it more than anyone else our wives know, we still don't get it like they do. And that pisses me off, too.

I am the necessary, vital partner, but secondary to the vessel that carried my son. Without me she would crumble, but I am a hot breeze away from disintegration myself. She wants me to be there, to help her, to discuss the steaming pile of shit that is our shared life, but all I have been doing all day is fighting back the relentless demons that plague my every thought. By the time I get home I've finally won, and there suddenly is a new battle for me to fight. It's not me against her, it's us against her own horde of demons, but sometimes I've got nothing left.

There is no easy way to say "I've spent the last 10 waking hours thinking about our dead son and I simply cannot hear any words pertaining to said awfulness. Everything you say I have already thought, and I've chosen to keep silent. When you speak these words, they rip me open doubly, once because I know, I know I know, and another time because I know how destroyed you are too."

Can't we just watch TV? Can't we just sigh together and let that be enough? Can't you see how I move slow through the world and lash out at every obstacle? Would it be easier if I showed my true emotions and dismantled this entire reality with my own bare hands? I can destroy everything, you know. I can do it. There's nothing left anyway, so it would be easy to take that next step and show everyone how nothing everything has become by destroying everything in sight.

It wouldn't even be a rage thing. I wouldn't hurt anyone at all. I'd just start with this keyboard, move to the desk and then piece by piece sledgehammer this house into rubble. Sidewalk and street would be next but it would be the car that would really take some time. Those things are built to last. It wouldn't though. Not in the path of my focused pain. Helpless to help my son be alive, I could demonstrate to everyone the futile emptiness of this life. At least it would be action with an end result.

Look, I could say. Look what I've done for us. Now everyone knows what the World looks like from our side. Our desolation is now obvious and clear and we don't have to talk about any of it anymore.

I don't do that, though, and by not I am showing you how much I love you and want this World to work out somehow. The containment of my rage is an act of love. The daily denial of vomit and insanity is proof of my commitment. I can keep standing up and moving forward with you, but every millimeter of motion and attention takes the entire focus of my will.

The big picture of this pain is impossible to comprehend all at once. All I can manage to figure out is the very next thing in front of me. So each next thing that comes my way, I try to make it as good as I can. I know what makes me happy. Simple things I can control like sleeping until noon or steak grilled to perfection gives me pleasure in a world where joy is rare and fleeting.

I don't aim for joy anymore. I aim for contentment, I aim for an absence of pain. The problem is, to get there I sometimes have to shut down so many systems and thoughts that I can barely speak. If I am quiet and distant it is because I have spent the day raging against my pain. When I am brusque and bitter it is because of how much I hate what we have been denied. I know she is not my enemy, but there is no one to battle against to right this terrible wrong. Caresses and communication are sometimes collateral damage to the trauma of this experience.

I cannot take away her pain, so it feels like I can't do anything worthwhile at all. I couldn't stop what happened to our son. I could not fix him before he was gone. I cannot go back and get him and bring him to her, and I cannot alter the awful truth of every single day.

But excuses suck and I can always do better. I can share the simple pleasures with her, and listen even when the words shred me to pieces. I've been shredded so thoroughly by now, another tear doesn't hurt much at all. I can hold her and touch her skin and say nothing at all and be certain it was exactly what she wanted and needed right then and there.

We are not enemies here. One or the other is never to blame. All the tools and methods we had for working together have been tested to the limit or thrown out the window along with our hopes and dreams, everything except for one thing. That One Thing is that there is no one in the world except for her, my wife, and I would do anything and everything to take away all the pain of these last nine months.

I'll do the dishes. I'll sweep this Shit House. I'll drive to the store and buy organic strawberries and fair trade dark chocolate and I'll feed it to her piece by piece and listen quietly while she rages with tears against her internal, implacable demons. I know she'll hold me when I can't fight them either, and she won't make a racket cleaning up my detritus when I'm sleeping till noon.

She knows that in my dreams I just might find our son. It's one of the only place left I have to look. The other place is in her eyes, and I always find Silas there. Sometimes, though I cannot handle that either. The pain I see inside her breaks me to pieces, too.

~~~~~~~~~~

What do you and your partner fight about? How do you each handle stress and pain? What do you need most? What is the worst part of your every day? How do you help each other deal with grief? What could both of you do better? What are you awesome at together?

the shape of grief

Upon Ferdinand's death was a big void. And I filled it with tears and words. I wrote and wrote and wrote, because I did not understand my grief and I had to figure it out.

There were many things repeated: the tears, the hollering, the pain, the hurt, the questions, the anger. Sometimes there were appreciation: gratitude, seeing the beauty.

But sometimes it seems my words were just not touching it, not describing the grief right. I really wanted to yell out to the world what it feels like, how it is, but it seems no matter how I string together the words, no matter how hard I contemplate the letters on my keyboard, there is a glass wall between me and grief. It seems I hold and cradle it, and I rock to sleep murmuring its name, yet it seems so intangible.

Then one day, my wonderful friend Leigh sent me this poem:

The Phoenix Again

On the ashes of this nest
Love wove with deathly fire
The phoenix takes its rest
Forgetting all desire.

After the flame, a pause,
After the pain, rebirth.
Obeying nature’s laws
The phoenix goes to earth.

You cannot call it old
You cannot call it young.
No phoenix can be told,
This is the end of the song.

It struggles now alone
Against death and self-doubt,
But underneath the bone
The wings are pushing out.

And one cold starry night
Whatever your belief
The phoenix will take flight
Over the seas of grief

To sing her thrilling song
To stars and waves and sky
For neither old nor young
The phoenix does not die.

~ May Sarton

and upon reading it, I broke down and cried. I realized that I have been trying to grope with the shape of grief, and perhaps denying what it was. The poem spoke to what I feared to face up to: I had died with my son.

And it spoke for what I desired: to live again.

Those words gave shape to my grief.

Often, it is when reading the blog of a fellow bereaved when I will chance upon a line that makes me say, or think, "Oh, my gosh, you just nailed it. You just said it for me, in a way more eloquent, and more beautiful, and more wide-eyed that I ever could."

Yet, it is not just the fellow bereaved who knew my grief, or who actively and compassionately sought to feel around this hole in my life, groping, tenderly touching, patiently trying to understand it all with me. At my Blessingway, organized by my two wonderful, incredibly awesome friends, a friend read the following poem during the session in which we all honor my son Ferdinand:

When in the paling darkness of the lonely dawn
you stretch out your arms for your baby in the bed,
I shall say, “Baby is not there!”–mother, I am going.

I shall become a delicate draught of air and caress you;
and I shall be ripples in the water when you bathe,
and kiss you and kiss you again.

In the gusty night when the rain patters on the leaves
you will hear my whisper in your bed,
and my laughter will flash with the lightning
through the open window into your room.

If you lie awake, thinking of your baby till late into the night,
I shall sing to you from the stars, “Sleep mother, sleep.”

On the straying moonbeams I shall steal over your bed,
and lie upon your bosom while you sleep.

I shall become a dream,
and through the little opening of your eyelids
I shall slip into the depths of your sleep;
and when you wake up and look round startled,
like a twinkling firefly I shall flit out into the darkness.

When, on the great festival of puja,
the neighbours’ children come and play about the house,
I shall melt into the music of the flute and throb in your heart all day.

Dear auntie will come with puja-presents and will ask,
“Where is our baby, sister?”
Mother, you will tell her softly,
“He is in the pupils of my eyes, he is in my body and in my soul.”

~ Rabindranath Tagore

Oh, how I trembled as those words left her lips. Those words made me realize how close my son is to me, and yet how far away he is. Those words reached deep and touched me where it is the most raw and most tender. My entire being shook, down to the very depth of my soul, because in those words, my grief had once again been given shape. Those words beautifully expressed my grief and longing. I read the poem many times over after the Blessingway and cried many good crys.

::::

How about you? How do you find shape to your grief?- thrugh your own writing, by reading? Do you have a poem that you return to often, be it for comfort, or just to give yourself permission to have a good, good cry?