comfort

Two years out from Lucy's death, a friend called to tell me a mutual acquaintance lost her son at 36 weeks. Stillborn. No reason found. Could I talk to her?

Same as Lucy's death. Of course.

I wanted to talk to her. This person was present for me, you know, the one time I ran into her. She just stopped what she was doing and sat. She listened and cried with me.  I left feeling like a fat fool, getting all blubbery and snotty in front of God and everyone, but also I felt immensely grateful for the safe space she created. I wanted to seek her out again, but I didn't want to burden someone with a new friendship that would most certainly be completely one-sided.

I am finally two years out.  Maybe I can be present for someone else. Maybe I can just listen. Maybe it isn't all about my dead baby. Maybe I can be the person I wanted in my early grief. I made plans with her almost immediately after the phone call. We met for coffee.

photo by marina.shakleina

"I just want it to go away. The pain. I don't want to think about it anymore. He wasn't a person," she said. "He wasn't a person yet."

He was a person to me, I thought. Lucy was a person to me, but I get what you are saying.

I nodded. I did not think her not wanting to acknowledge or remember her son was at all weird or strange. I thought her way of grieving was as normal and natural as mine. Whatever feeling I had about my daughter's death, whatever the reaction, the opposite reaction lurked right behind it. Did I want to take pictures of Lucy? Yes. I took them, but at some point in the hours leading up to that decision, I thought no, I wouldn't. I couldn't. I arrived at a decision, but I wondered the whole time if I made the right one. I realize now, I just made a decision, neither right nor wrong, just the one that worked in that moment.  I did the best I could.

"You won't feel like this forever. But I can't tell you when that will change, just that I know my feelings about Lucy have changed through the years."

She said she just wanted another baby right now. She wanted to move on. She didn't want to talk about it anymore. She didn't want to think about him anymore. It was an unfortunate thing, but it was over. She didn't want to be one of those women whose whole lives become about their dead baby.

There was an uncomfortable silence. I write about my dead baby. I have an altar to my dead baby. I blog about my dead baby. I have an Etsy shop in which I paint about my dead baby. I hang out with other people who have a dead babies. My whole life has become about my dead baby. She looked at me.

"I am one of those women," I said.

"But what you do is good," she reassured me.

"I am not offended, but I still am one of those women. It doesn't feel nearly as depressing as you make it sound."

"I can see that," she whispered.

I couldn't explain it in a way that didn't sound defensive. I wanted to tell her what it is like now, how I am completely different, but that isn't a bad thing. I feel like I have integrated Lucy's death into my life in an organic way, but maybe it is strange. Maybe I am a cautionary tale for newly bereaved parents. I look sad from the outside looking in. This life seems surrounded by sadness, baby death, grief, bereavement and losses upon losses but it is actually full of love and joy and gratitude. It is the opposite of depressing. All of those things I do seem like love to me, they are my ways of parenting the baby I cannot parent.  That is what it feels like from the inside. It feels like comfort. That was it. She was still on the outside looking in, she still hadn't quite figured out that all of this--the dead baby and the grief that comes with it--is her life now too.

In my early days, the days of keening and leaking breasts, I didn't want anyone to inform me about grief. I wanted nothing to do with anyone who tried to tell me anything about what grief was about, or what to expect in the first year of babyloss. When I searched for other women with dead babies, I didn't search for people two years out from their loss. I searched for people on the same time line as me. I didn't search for people with wisdom. I searched for people just as lost as me, just as ripped open, just as damaged, who grieved the same way I grieved. I looked for a place where I seemed normal.

We grew quiet together and I realized that perhaps it was not comforting at all for her to talk to me, as my friend thought. I couldn't offer her what was comforting, because that thing that is comforting is different for each of us. It is like a claw game in the arcade, you can reach blindly into a pile of comforting things, and pull out some shiny thing that works for one person, and it looks like some cheap, anger-inducing cliché for another. And really, here I was, sitting with a woman I respected, liked, felt heartbroken for and with, whose loss was like mine, and I was seeking to comfort her. Had I learned nothing in my grief? Nothing I said or could say would have comforted her, because there is nothing comforting about your baby dying. Our babies died. That is pitiable. That is sad. That is fucking heartbreakingly uncomfortable.

All I could really do is cry into a cup of coffee with her.

Since the death of your child(ren), have you been asked to reach out to someone who has lost a child? What was that experience like? Did you reach out to another babylost parent you knew after your loss? Was it comforting or more upsetting? Have you met a fellow babylost parent who grieved in a different way than you? Did you feel defensive? Did you understand?

Boom

Jess at After Iris submitted a guest post not long ago, and her voice and words resonated with so many. She has a way of capturing a feeling perfectly in the fewest possible words. A gift we all wish we had. She combines cheekiness and deep insight harmoniously to give new wisdom into our own grief.  In May 2008, Jess' second daughter Iris died while she was in early labour. Though she writes infrequently on her blog, Jess is Glow in the Woods' newest regular contributor and fire-spitting medusa. We are so honored. - Angie

I’m a noisy beastie.

Ra-tat-tat-tat-ing. Clattering around.  Today I stood up and made a racket:

LISTEN TO ME WORLD! LISTEN TO ME OCCUPANTS OF MY OFFICE! I HAVE FEELINGS I MUST SHARE WITH YOU!  I AM UNHAPPY ABOUT THE DELAY WE ARE CURRENTLY EXPERIENCING IN OUR RECRUITMENT PROCESS! WE NEED MORE STAFF!  IMMEDIATELY! I AM EXTREMELY PASSIONATE ABOUT THIS! AS EVIDENCED BY THE SHOUTING!  DO NOT SHUSH ME! DO! NOT! SHUSH! ME!

Noisy beastie with her noisy-loud-fist-on-the-table feelings.

I live out loud.

But I grieve in a whisper.

Or even quieter than that.

I grieve in the tap-tap of fingers on a keyboard. I grieve in the silent shudder-shake of waking with an aching face. I grieve in the hush of a turned cheek: turn away, turn away. They don’t know. They don’t know. I grieve by the light of a screen, a muted scream.

But in the quiet, my grief finds a voice. My grief can have a voice here, in this place.

If my tree falls in the forest and no one is around to hear it, does it make a sound?

Yes, in these Woods.

+

This is my first post for Glow as a regular contributor, and I want to hear your voices.  Do you speak your grief in a shout or a whisper? Have you written a post you wish everyone could read about your baby or babies? If you don’t write a blog, what’s the one thing you wish you could mutter in the world’s ear? I'm listening.

Pull up a chair

It's cold and rainy 60 degrees here. So far today I've had a big mug of homemade latte (long live my foam-making gadget) and two medium mugs of hot tea. I am planning to have at least one more of those.

I don't know whether it's because it's a rainy day, or because a fellow medusa and her family are staying with us for a couple of days, or because I'd nursed a general unease for half the day today before locating its source in it being a date of significance, the first of the "five years since..." ones, but whatever it is, I am suddenly feeling that it's been way too long since last we asked how you are doing.

So grab a mug of steaming with whatever you are in the mood for. Or, if you prefer, pretend it's actually nice and sunny outside and we are sitting in a sidewalk cafe, and umbrellas above us are reflecting in our drinks.

(Though if your drink is really reflecting an umbrella above you, I am jealous and I am not sure I want to know.)

Whichever way you go on the drink, though, do stay a bit and tell us how you are. What's been going on? What is on your mind? Let's talk.

Hug Thyself

The other day in the car my preset was broadcasting a program which I sometimes find interesting, but this week according to the  host was about "loving yourself."  And woah, for me that screams touchy feely and sounds as enticing as root canal.  So I found some angry music to hum to instead, but on the way home grew weary of heavy bass lines and forgot about the lurve fest and clicked back through just as the host was asking the guest to explain the difference between self-pity and self-compassion.  She paused, had to figure out which definition to chew through first, landed on self-compassion, and finally blurted out something to the effect of:

Look, everyone hurts.  Everyone experiences hurt.  Everyone suffers.

(I'm paraphrasing pretty heavily, but some of these catch phrases are not mine.)

The words flitted out while my fingers twitched on the dial.  Self compassion respects a common humanity, and the idea that life is difficult for everyone . . .  It's not self-focused, it assumes we're interconnected. . .  Suffering is part of the human experience, this IS normal, everyone experiences suffering.

Ultimately this should feel better than self pity because it means we're not alone.

Huh.

I don't toe that line very often anymore, the pity party one, with the self-absorbed balloons and memememe cupcakes (hey, I'll cry if I want to), but if I get close it usually doesn't take much to pull me back far away from the line with a sharp slap to the face.

It's all but impossible to stay wrapped in my bitter cocoon during a week like this, with a disaster of one sort, followed quickly by one of another, followed immediately by yet a third uncontemplated -- all upon one population.  It makes me realize how lowly and small my place is, and how contained my problems.  The losses there are so massive as to be unbelievable, unfathomable.  How the earth could move and then the sea could rise and make so many disappear within minutes is the stuff of fiction and space ships, not here, not on earth, where we watch television and twitter and eat chocolate and drive to the grocery store listening to the radio chatter about giving yourself hugs.

Sometimes it's hard to watch this hurt, to listen to people talk about how within minutes life changed forever.  I realize I told a similar story once, but now I feel nothing but sympathy:  that control I thought I lost?  I had both hands on the wheel compared to this, not to mention afterwards I got to retreat to my nice warm home while they're talking from a tent without water or food or family.  With the threat of nuclear meltdown to boot.  I wonder if what I felt was really pain at all.

When I hear of a new babyloss blog I try and find the time to go and leave a comment, and 99 times out of 100 I say, "You're not alone."  It's not much, but I hope the message conveys.  I remember feeling so bereft, so completely alone, as if I was the only person living on earth to ever undergo the freakiest of freakshows that ever freaked.  But here this lady is saying what I now know to be true:  not freaky at all, not remotely.  If Japan had a blog, this week I'd say, "You're not alone."  None of us are.  I just hope they hear me and know how sincerely I mean it.

+++

Writers use simile, it's a fact of life like taxes and death.  And when writers are trying to describe something that's happened to them, but not to many others -- like say, the death of an infant -- that hurt like a motherfucker and changed their universe in the blink of an eye, they grasp at any metaphor, any simile, any analogy to try and explain their pain.  I know I'm guilty, I've compared Maddy dying to a car wreck, I've discussed being stabbed in the heart, I've described the earth shifting under my feet, I'm sure I've even spoken of feeling flooded or even waves.  Tidal waves.

And this week I feel like an idiot because it's abundantly clear just looking at the headlines that I know nothing of feeling the earth move or the rush of a wave as high as a building crashing over my head.

Perhaps I shouldn't make comparisons to things I don't know about; losing Maddy was like hell I write, but I know nothing of that other than what I picked up in Inferno. (Although, if it does exist, I am headed there.  And will let you know as soon as I adjust to the lighting.  Call me!)  Am I doing a disservice to excrement saying I felt like shit?  I do know that I will pause before I speak of the auto accidents and volcanic ash and post traumatic stress disorder because maybe . . .  maybe it wasn't like that at all.  

+++

The other thing the guest lady on this radio program said before I moved on down the dial for something more uptempo was that in order to even begin to understand something like what happened in Japan, you need to be compassionate with yourself.  You need to acknowledge that it will hurt, that it's difficult to read about and adjust to, be kind to yourself as you abide with other's pain.  And I wondered, as I clicked away, about all the people who failed to even attempt to understand us:  who just moved on, and ignored it, and forgot it, and refused to talk about it.  The people who thought they were insulating themselves against our deadbaby juju by stepping a good ten feet away and using hand sanitizer.  The people who thought our lives were "too negative!" and they were doing them-positivity-selves a favor by not reaching out into the morass.  

But maybe this woman is right, and these people couldn't muster up enough kindness for themselves to open the door to someone else's hurt.  I'm not sure I have enough self-compassion to feel sorry for them, but it did make me think about them, even for just a few minutes.  I realized we aren't the pity parties, they are.  They're the self-absorbed ones, who blather on about wallowing and moving on.  We're not the one's who are alone, they are.  We're the normal, the ones with suffering, they're in denial.  The people who can sit and be with us and our pain?  Are truly good to themselves and understand compassion and its interconnectedness -- probably to such an extent that it's interwoven and unconscious.  I should probably strive to be one of these people.  I owe them so much.

It also means, if this radio chick is right, that by reaching out to others in our situation, by stepping outside of ourselves for even a few minutes online, that we've done this first step of being good to ourselves.    It's funny to think that I may actually be more gentle on myself after my baby died; here I gained a ton of weight I couldn't lose, and now swear uncontrollably and grew more cynical, and bleed bitter out of my eyeballs  . . . . but maybe I did.  Maybe we all did.  Our interconnectedness -- if this radio chick is right -- proves it.

Good for us.  /pats cyber self on back

Do you ever trip over the line into self-pity?  (It's ok, I'm sure I did.)  How do you pull yourself back?  Do you experience self-compassion -- that is, do you feel some connection with others in your suffering?  How about in their suffering? Are you good to yourself?  Or does the whole "be good to you!" conversation give you the heeby jeebies?

cyber love

My cell phone rings, and I see it is my friend calling. I don’t answer. I heed the voice in my head saying, she won’t say what you want her to say. I leave the phone alone.

It is February 28th, my baby’s birthday and death-day, and a stillness has descended on our house. Outside a cold rain falls from the sky and freezes as it hits the ground. Brian and I sit on the futon in his office with blankets, mugs of tea, and laptops. All day he stokes the fire in the woodstove. We listen to the crackle of burning bark without speaking.  We keep the lights low. Now and then I look out at the branches of our maple tree, steadily being encased in ice.

All day I sit, working a little, reading a little. Meanwhile, my laptop stays open to Fa.cebo.ok and email, and the cyber condolence flows in. A hug sent here, a love note there. All day, my baby is being remembered someplace on the globe.

I get only a few condolence calls. This is okay, because my heart is so full that I can barely speak. I let them go to voicemail. When the call comes from my friend, for a moment I consider answering.  Did she remember?

No, she did not. On my voicemail she leaves a sixty second rant about delayed flights and the price of gasoline. That’s all. Everything she didn’t say adds to the silence in my house.

* * * * *

The nature of my friendships has changed. Wasn’t there some celebrity in the 1980s who survived a plane crash, and then left her husband for a man who was in the same plane crash? I feel like her sometimes -  like you can only really get me if you were on the plane too.

But I haven’t cut anyone out of my life.  I have become an enigma to those “before” friends. They have unknowingly inflicted wounds, yet I still need them badly. Sometimes I need a time-out from grief, and a friend who’s never been to the dark side of the moon – plus a martini – can be just the ticket. My “before” friends link me to the “before” me— a self that I once knew and liked but can no longer access. I might need her someday, and they carry memories of her.

But this one friend – I can’t compartmentalize her. I’ve tried limiting our interaction to occasional social outings. But she is accustomed to our friendship running deeper than that. She probes and wants to know how I’m really doing. So I tell her, and she can’t change the subject, or clear the room, fast enough. I fall for it every time, because I believe that she is better than this. For two years I have been throwing my heart into her path, only to watch her casually step around it.

photo by youngthousands

If only she would say my baby’s name just once.

If only she would not complain to me about how hard it is to raise her daughter, born alive five weeks before mine.

If only she did not wonder how the holidays could be hard for me, since they are so fun for her.

If only she would tear up a little about my loss, the way she does at those TLC shows about moms who give their babies up for adoption.

If only she did not think of my loss as a health problem.

If only she believed my baby were real.

* * * * *

If only she were on Fa.cebo.ok.

Thinking of you.

(((hugs)))

remembering your baby

xoxo

So simple. So easy. That very tiny bit of love, sent regularly by keyboard, lets me know that my friends care, even if they don’t completely understand. It soothes my beastly bitterness at how the world slights this type of loss. Fa.cebo.ok, of all things, has saved some real friendships, by helping me let people off the hook for not being better at this. (Not you, Dad. If you are my parent, Fa.cebo.oking me on the baby’s birthday does not count.)

Maybe if this friend were on Fa.cebo.ok, she would say those needed little things on cue. Maybe she would see what other humans post to me, and a lightbulb would go on. Oh, that’s what I’m supposed to say!

But that’s a fantasy. Cyber love can’t save this friendship. I’ve gotten myself into a tug of war with someone who doesn’t even know she’s holding the other end of the rope. She can’t imagine the sacred stillness of a house on a dead baby’s birthday – she can’t feel what I’m feeling, even a little bit. The only thing left is for me to drop my end of the rope and walk away.

* * * * * *

How’s it going with your friends from before your loss? Is there anything you wish they would say that they haven’t? How do you handle friends who have hurt or abandoned you during this time? What role does the internet play in your friendships these days?

A time to talk

It has been unseasonably warm here. Freakishly warm, I would say. A week or two ago I walked to lunch and it was so warm and sunny that the only thing that seemed out of place was the bright red, orange, and yellow of all the gorgeous trees on campus. I mean, we're past half way point in November, and I have yet to wear a jacket this season.

This is completely and utterly disorienting. During the daylight hours it feels like we are stuck somewhere in early fall, but the early nightfall, the aforementioned crazy leaf colors and the unrelenting advance of the calendar, which insists on telling me that inexplicably Thanksgiving is but a week away, all of these are fairly adamant about it being rather much later into the year. And much later into the year happens to mean much closer to the holidays. So with Thanksgiving pretty much the gateway to and the official start of tree decorating season, the very same Thanksgiving I tell you that is but a week away, I am bewildered, but I bow to the weight of the evidence-- holidays are almost upon us. The holidays are tough for many of us, so today I wanted to do what we haven't done in too long-- ask you how you are.

So how are you? What is going on? How is the weather where you are? What does that feel like to you?